Assignment One

1. Assignment 1: Position Statement Paper (20%). This short paper (APA Style 6th Ed., 5-7 pages, double spaced, Times New Roman or Calibri font, 12 point font size, 1 inch margins) should provide a clear, reasoned argument for a position on a current Social Work practice health policy issue or dilemma, while also demonstrating your awareness and understanding of other positions and understandings of the problem (see “Getting Started” on next page). This paper should have the following elements:

elements in order of appearance in paper*

examples of evaluative criteria to be used for grading

Executive summary

· Background of the issue or dilemma

· Description of the social dilemma

· Outcomes of earlier efforts to address the dilemma

· Are recommendations highlighted?

· Are all the important terms clearly defined?

· Are all appropriate dimensions described?

· Are prior efforts clearly assessed?

Scope and severity of the problem

· Assessment of past policy efforts

· Significance of the conflict

· Need for analysis

· Why is the social conflict important?

· What are the major assumptions and questions to be considered?

Issue statement

· Definition of the issue

· Major stakeholders

· Goals and objectives

· Measures of effectiveness

· Potential solutions or new understandings

· Is the issue clearly stated?

· Are all major stakeholders identified?

· Is the approach to analysis clearly specified?

· Are goals and objectives clearly specified?

· Are major value conflicts identified?

Policy alternatives

· Description of alternatives

· Comparison of future outcomes

· Externalities

· Constraints and political feasibility

· Are alternatives compared in terms of costs and effectiveness?

· Are alternatives systematically compared in terms of political feasibility?

Policy recommendations

· Criteria for recommending alternatives

· Descriptions of preferred alternative(s)

· Outline of implementation strategy

· Limitations and possible unanticipated outcomes

· Are all relevant criteria clearly specified?

· Is a strategy for implementation specified?

· Are there adequate provisions for monitoring and evaluating policies, particularly unintended consequences?

References

· Is APA style followed for the references?

Appendices

· Are the Appendices relevant to the paper?

(*Adapted from Dunn, 1994, with material from Rist, 1994; Roe, 1994; and Schon, 1993)

Getting Started: Developing a policy issue or dilemma for Assignment 1

Option 1. Interview

Conduct an interview with an anonymous relative, acquaintance, or client. Someone who is at least 65 years old and/or someone who has a disability or at least one chronic disease would be ideal. Ask them the following questions and summarize their answers. This method may help you to illustrate how policies (Medicare, Medicaid, private insurance and VA, or other policies) impact the health of vulnerable people and bring the issue to the level of someone impacted by the policy.

§ How old is the person, and what health problems or health care access challenges do they have?

§ Do they have health insurance, and if so how do they pay for their health insurance?

How much money do they have to spend, during an average month, for out of pocket health related costs, including co-pays, prescription drugs, over the counter medications/supplies.
Are they able to afford all the prescription medications they need? If not, how do they manage?
Are there other living expenses that pose a problem (rent, food, heat, air, electricity)? If so describe the concern and it impacts their health.
Was there a time in their lives when they had different health insurance coverage? If so, was the coverage better or worse than their current coverage? Have them give a description of the coverage.
What problems do they experience in the current healthcare system? How would they recommend that the healthcare system be changed?

§ Describe a medical emergency or serious illness that occurred in their lives, describe the condition or health issue, any challenges that resulted, and how the cost was paid for by the individual.

Option 2. Choose 1 of 3 Case Studies, which is attached below

“In Freddie Gray’s Baltimore”

“The Hot Spotters”

“When Getting a Blood Pressure Cuff Takes All Day”

NOTE: You may choose either Option 1 or 2, or you may blend the 2 Options by combining 1 case study that relates with your interview; whichever choice you believe makes a stronger paper.

Please choose a Policy Issue by Friday 01/26/18 and make me aware, but the paper is not due until February 10, 2018

In Freddie Gray’s Baltimore, The Best Medical Care Is Nearby

But Elusive

February 15, 20165:00 AM ET

Jay Hancock

From

A recurring bone infection landed Robert Peace in the hospital five times after a 2004 car accident fractured a

hip. He blames his readmissions on a lack of follow-up care.

Doug Kapustin for Kaiser Health News

The Baltimore health system put Robert Peace back together after a car crash shattered his pelvis. Then it nearly

killed him, he says.

A painful bone infection that developed after surgery and a lack of follow-up care landed him in the operating

room five more times, kept him homebound for a year and left him with joint damage and a severe limp.

“It’s really hard for me to trust what doctors say,” Peace said, adding that there was little after-hospital care to try

to control the infection. “They didn’t do what they were supposed to do.”

Pushed by once-unthinkable shifts in how they are reimbursed, Baltimore’s famous medical institutions say they

are trying harder than ever to improve the health of their lower-income neighbors in West

Baltimore.

But dozens of interviews with patients, doctors and local leaders show multiple barriers between the community

and the glassy hospital towers a few blocks away.

Reporters from Kaiser Health News and the University of Maryland’s Merrill College of Journalism spent much

of the fall in and around Sandtown-Winchester, a Baltimore neighborhood where violence flared last year after

Freddie Gray was fatally injured in police custody.

“When you walk into a hospital, it’s like walking into a courtroom. You know who’s in charge, and you know

who’s not.”

Residents say they have little more confidence in the medical system intended to heal them than in the criminal

justice system intended to protect them.

Even though his accident happened in 2004, Peace says he cannot view doctors and hospitals with anything less

than deep suspicion.

“They almost let me die,” he said.

As with so much else, there are two Baltimores when it comes to health. One population is well off and gets the

best results from elite institutions on the city’s west and east sides, the University of Maryland Medical Center

and the Johns Hopkins Hospital.

http://cnsmaryland.org/baltimore-health/

http://www.kaiserhealthnews.org/

The other is a poor minority that gets far less even as it uses hospital services at higher-than-average rates. One

indicator: The typical Sandtown resident lives a decade less than the average American.

“They come in with a great service, but they don’t have relationships with people in the community,” said Louis

Wilson, senior pastor of New Song Community Church in Sandtown, a small wedge of about 5,000 households.

“They want the people in the community to come in and respect them, but they don’t respect the people in the

community. It does not work. It just doesn’t.”

The gap is more than the cultural distance between lower-income African-Americans and the wealthier

practitioners, often of other ethnicities, who treat them, although that’s a part, Wilson said. It’s about insurance

that is still unstable, confusing and perceived as expensive despite the health law’s recent expansion of Medicaid

for low-income patients.

It’s about a system that still treats too many residents in the most expensive way possible — in crisis visits to the

emergency room — rather than keeping people healthy in the community. It’s about having too few primary care

doctors addressing everyday needs to change that.

It’s about inadequate transportation to get to appointments and jail stays that cut patients off from family

doctors. It’s about avoiding medical institutions often seen in the same light as the justice system that held

Freddie Gray when he died: as biased, haughty and dangerous.

‘I Lost Two Aunts In That Hospital’

“When you walk into a hospital, it’s like walking into a courtroom,” said William Honablew Jr., who volunteers

at LIGHT Health and Wellness, a nonprofit whose community services include helping those with HIV and

other chronic illness navigate the system. “You know who’s in charge, and you know who’s not.”

Many in Sandtown have heard of Henrietta Lacks, an African-American woman whose tissue was used without

permission by Johns Hopkins Hospital in the 1950s to establish a line of experimental cells. For years Baltimore

blacks associated Hopkins, on the city’s east side, with the “night doctors” of African-American folklore who

supposedly kidnapped black children for medical experiments, residents and community leaders say.

Bon Secours Baltimore Health System, Catholic, nonprofit and the nearest inpatient provider to Sandtown, has

reduced potentially deadly, in-hospital hazards such as pneumonia and blood and urinary tract infections in

recent years. Adjusted for illness severity, its death rates for Medicare patients with major conditions such as

heart failure and stroke are little different from national scores.

But to the frustration of hospital officials who say they deserve better, Bon Secours is still known across West

Baltimore as “Bon Se-Killer.”

“I lost two aunts in that hospital, an uncle and two cousins — five people,” said Arnold Watts, 60, in a grim

accounting matched, unprompted, by several other residents interviewed.

The average Sandtown resident lives to be 69.7 years old, according to the Baltimore City Health Department —

the same life expectancy as in impoverished North Korea.

Detailed data from the Maryland agency that regulates hospital prices, seldom seen by the public, illustrates

why.

Residents of the ZIP code including Sandtown accounted for the city’s second-highest per-capita rate of

diabetes-related hospital cases in 2011, the second-highest rate of psychiatric cases, the sixth-highest rate of

http://bniajfi.org/community/Sandtown-Winchester_Harlem%20Park/

http://fyb.umd.edu/2011/night-doctors.html

http://bniajfi.org/indicators/Children%20and%20Family%20Health/LifeExp/

http://www.md-medicaid.org/ph-maps/zip5/atlas.html

heart and circulatory cases and the second-highest rate of injury and poisoning cases. Asthma, HIV infection and

drug use are common.

In Sandtown, 2 of 10 babies born in 2013 were underweight — the highest percentage in any of Baltimore’s 55

neighborhoods. The share of Sandtown mothers getting early prenatal care fell by 25 percentage points in 2013

from the year before.

Dr. Jay Perman is a pediatric gastroenterologist who is president of the University of Maryland, Baltimore,

which shares its downtown campus with the University of Maryland Medical Center. Perman, who says the

school has a critical role to play in fighting poverty, looks out of his 14th-floor, paneled office across a

boulevard that marks the beginning of Baltimore’s poor west side.

“Why,” he asks, “in the midst of this extraordinary health care enterprise that is present in Baltimore, with all

this expertise, are we sitting here on this side of Martin Luther King [Boulevard] and on the west side … you

have some of the most disappointing life expectancies that one could imagine?”

Two miles away, residents such as David Johnson start to provide an answer. Johnson, 52, sits in the nave of

First Mount Calvary Baptist Church, waiting for food-bank vegetables and talking about being newly out of jail,

lacking identification and trying to qualify for Medicaid.

Police arrested Freddie Gray, 25, five blocks from the church last April, allegedly for carrying an illegal

switchblade. He died of spinal injuries that prosecutors filing manslaughter charges blamed on police.

Western District police station, where officers removed Gray’s unconscious body from a prisoner van and

protesters surged a week later, is a block south.

“I think I have diabetes,” said Johnson. “I know I have high blood pressure. I know that. I get dizzy a lot,

especially when I wake up in the morning. I need to see a doctor.”

Months To Qualify For Medicaid

But he can’t. Baltimore jail authorities lost his identification cards, he said, before releasing him in October from

an 11-month stay related to a drug arrest. He spent weeks reapplying for a Motor Vehicle Administration

identification card, which social workers said he needed to qualify for Medicaid.

“You need ID to get ID, you know?” he joked. Nobody told him he could use incarceration credentials to

qualify.

Medicaid’s expansion to include low-income adults was seen as an unprecedented opportunity to cover former

inmates such as Johnson as they rejoin the community. (Inmates are not usually eligible while incarcerated.)

But limited administrative resources and a pile of other paperwork for release planning means sign-ups are often

limited to the most severely ill, said Lena Hershkovitz, a vice president with HealthCare Access Maryland, a

nonprofit working to increase enrollment.

“I know for a fact that he’s not unusual,” she said of Johnson. “I would say the majority of people leaving the

prison or detention system are leaving without Medicaid.”

Communication barriers and “poor customer service” are also barriers to care in West Baltimore, according to a

2012 report by John Snow Inc., a Boston consultant hired by an association of community health centers.

http://bniajfi.org/wp-content/uploads/2015/04/VS13-Sandtown-Profile-and-Map

https://www.machc.com/sites/default/files/documents/West%20Baltimore%20-%20Final%20Report

William Ferebee, 66, has obstructive lung disease and a stent implanted after a 2001 heart attack. He avoids

doctors at a University of Maryland Medical Center clinic because “they don’t even really come look at me,” he

said. Instead, they give orders to a nurse or resident, “and then he comes in and says, ‘OK, here’s what we’re

going to do.’ ”

A doctor at a nearby, independent clinic “is a sweetheart,” he said. “But it’s so hard to get an appointment.”

Fear of legal consequences also keeps people away from the health system. Some men worry doctors will report

their undocumented address to social services, which they believe could reduce aid for female partners who live

with them, said Wilson, the New Song pastor.

Medical privacy laws allow hospitals and clinics to help law enforcement officials trace suspects and fugitives.

Residents subject to outstanding warrants fear they’ll be arrested if they seek care.

“Some people got a case out there — they’re not going to the health clinic,” Wilson said. “They’re going to die

without giving up their information.”

Even when patients get access, care is disrupted by physician turnover, poor follow-up or insurance companies’

changing medical networks.

“The system is fragmented,” said Debbie Rock, who has run LIGHT Health and Wellness, on Sandtown’s

western edge, since the 1990s. “I think that people need to go back and talk to each other. I think the doctors and

the health insurance companies need to sit down and listen to each other.”

One homeless West Baltimore patient left an oral surgeon’s office with a wired jaw and no way to pay for the

liquid nutrition he needed to feed himself, said Carol Marsiglia, senior vice president at the Coordinating Center,

a nonprofit consulting organization that is working to reduce readmissions and emergency visits in the

neighborhood.

A home-oxygen company wouldn’t serve a discharged lung patient because he had a $27 balance, she said. A

hospital directed two home-health companies to teach a patient how to deal with a new colostomy bag; neither

showed up. The Coordinating Center fixed the breakdowns.

Poverty makes Sandtown’s health worse. Many say poverty causes Sandtown’s poor health.

“Younger people have seen or feel like their parents and their grandparents didn’t get the best medical treatment

when they went to the hospital,” says Derrick DeWitt, pastor of First Mount Calvary Baptist Church in

Baltimore’s Sandtown-Winchester neighborhood. “So they have this why-go attitude.”

Many residents hold jobs in government or manufacturing, run churches or collect pensions from the military or

Social Security. Even so, the median Sandtown household income in 2011 was $22,000.

Roofs leak. Mold and mildew grow. Baltimore Gas and Electric cuts off energy to Sandtown households for

nonpayment at twice the rate it does in the rest of the city. Lead paint violations like the kind that allegedly

poisoned Freddie Gray are nearly four times higher in Sandtown than in Baltimore as a whole.

Drug and alcohol use are common. Diets are often poor. Many lack cars and the nearest supermarket is more

than a mile away from the church.

“If we walk around this block, we’ll pass four liquor stores and three sub shops,” said Derrick DeWitt, pastor of

First Mount Calvary, on Fulton Avenue.

http://www.hhs.gov/hipaa/for-professionals/faq/505/what-does-the-privacy-rule-allow-covered-entities-to-disclose-to-law-enforcement-officials/

http://health.baltimorecity.gov/sites/default/files/47%20Sandtown

https://www.washingtonpost.com/local/freddie-grays-life-a-study-in-the-sad-effects-of-lead-paint-on-poor-blacks/2015/04/29/0be898e6-eea8-11e4-8abc-d6aa3bad79dd_story.html

Even small copayments required by many health plans dissuade low-income West Baltimore residents from

seeking care, the John Snow report found. Some constantly switch doctors to find the lowest price, leading to

“disjointed services” and potential harm if information falls in the cracks, it found.

“I change doctors like I change underwear,” said Eddie Reaves, 64, who tries to find practices that won’t charge

him copays as little as $12 or $15. His income is $1,170 a month, he said. In 2014, he added, “I must have seen

a good total of about 10 doctors.”

Reaves has diabetes and high blood pressure. He’s on Medicare because of a disability. He has applied twice to

Medicaid since the health law expanded coverage two years ago. That would improve his benefits. But he never

received the paperwork, he said.

The best care he ever received, Reaves said, was when he didn’t need an insurance card — when he was

homeless.

Health Care for the Homeless, a nonprofit a couple miles east of Sandtown, delivers comprehensive services to

the homeless without regard for ability to pay.

“Didn’t have no bills,” Reaves said of the clinic when he used it a few years ago. “Your medicine they helped

pay for. They did a lot for you. You could get your teeth done and everything. It was just great, man.”

“I change doctors like I change underwear sometimes” to avoid copayments of $12 or $15, said Eddie Reaves,

who has diabetes and high blood pressure.

The rest of the medical system is so unsatisfactory by comparison that low-income Baltimoreans sometimes

claim to be homeless when they’re not, just to use the clinic, he said.

What happened after a 2004 car accident that broke Robert Peace’s pelvis is a glaring example of what many say

is the kind of medicine that has been practiced too long in West Baltimore and what many say they are working

to change.

Emergency surgery at UMMC fixed the fracture. But Peace developed a persistent bone infection. He received

little or no follow-up care, he said, getting treatment only when the infection surged out of control and required

repeated, expensive surgeries.

“The pain would be so intense — it’s like, wracking my body. I would literally sit there and shake,” he said.

“That’s when I would know I had to go to the hospital, because I knew the infection was back.”

He said he required five more surgeries over a year and a half — the kind of return trips to the hospital, or

readmissions, the health industry and the Affordable Care Act of 2010 are trying to reduce by promoting

coordination between hospitals and community doctors.

“I’m blaming it on the follow-up,” said Peace, 58. “They knew the infection wasn’t going away, but the only time

they would really tend to it was when I was in the hospital.”

Today Peace walks with a cane and a pronounced limp.

It’s a story that’s still too common in West Baltimore, said Antoine Bennett, a lifelong Sandtown resident and an

elder at New Song Community Church.

“We’ve got a joke here, but it’s a serious joke,” he said. “If they ain’t medicating, they’re amputating or operating.

But what’s missing is the care. Primary care.”

When asked about Peace’s case, UMMC spokesman Michael Schwartzberg said, “Much has changed in the

Maryland hospital environment” since his surgeries. Improvements include new emphasis on preventing

readmissions and “significant investment” in care coordinators and other post-discharge management, he said.

Keeping People Healthy And Out Of The Hospital

By many accounts, hospitals, doctors, health plans and governments in Annapolis, Maryland’s capital, and

Washington are making unprecedented efforts to bridge the medical divide with Sandtown and the rest of low-

income Baltimore.

The grand idea is to save money and simultaneously improve lives by keeping people healthier in the

community instead of letting them become ill enough to land in the hospital.

Maryland undertook an ambitious overhaul of hospital reimbursement, made possible by the federal health law,

that is supposed to back that philosophy with powerful incentives. Starting in 2014, hospitals have been assigned

annual budgets for all government and private payers, instead of being paid per admission or treatment.

The idea is to boost their motivation to contain costs by delivering preventive, community care — to pay them

for keeping people out of the hospital. Hospitals are also getting penalized for excessive readmissions and

preventable harm such as infections and accidental punctures.

In October Bon Secours bought a nearby church that it intends to turn into a primary care and wellness center.

UMMC and Bon Secours are working with “transition coaches” from the Coordinating Center to make sure

people leaving the hospitals take medicine and schedule follow-up appointments. UMMC’s transition clinic

serves hundreds of recently discharged patients.

Maryland is developing one of the most advanced electronic networks for letting medical providers collaborate

by sharing patient records. Health Care for the Homeless has opened a clinic in Bon Secours.

Dr. Samuel Ross, Bon Secours’ CEO, talks about working more closely with the churches and continuing to

improve the hospital’s outcomes and reputation.

“No, it’s not solved,” he said. “We need to keep doing what we’re doing, and understand that some of this is a

person at a time. There is no wholesale campaign or branding message that’s going to cause people to say,

‘You’re wonderful.’ ”

In 2012 Maryland’s legislature created “health enterprise zones” to increase the supply of primary caregivers in

West Baltimore and other underserved areas. UMMC puts emergency room patients in touch with a primary

care doctor if they don’t have one.

In September hospitals proposed taxing insurance companies, employers and other payers so they could hire up

to 1,000 caregivers directly from West Baltimore and other low-income communities with poor health results.

The Baltimore health department is pressing hospitals to collaborate on high-risk patients and is building ties

with lower-income neighborhoods by hiring residents, said Dr. Leana Wen, the city’s health commissioner.

http://www.baltimoresun.com/health/blog/bal-bon-secours-church-deal-story.html

http://www.bizjournals.com/baltimore/news/2015/09/22/health-care-for-the-homeless-expanding-to-west.html

Baltimore’s B’more for Healthy Babies program has reduced the city’s African-American infant mortality rate by

nearly a third since 2009, to 12.8 per thousand births. But that’s still a fifth higher than the African-American

rate for all of Maryland.

UMMC has workshops and internships for high schoolers interested in health careers. The University of

Maryland, Baltimore, got a federal grant to mentor and train West Baltimore middle schoolers to increase the

number of African-Americans in health care jobs.

More and more professionals echo UMB’s Perman, who said a medical professional’s duty to patients does not

end at the hospital or clinic door.

“As a profession, as an industry, we have not sufficiently appreciated, let alone done something about, the

impact of social determinants” such as poverty, poor housing, lack of food choices and low education, he said.

“Guys like me and gals like me can easily say, ‘I made the correct diagnosis. I wrote a proper prescription. I’m

done.’ What I say to my students is, if you think you’re done — if ‘done’ means the patient is going to get better

— you’re fooling yourself.”

Poor people, however, know that between ambitions and accomplishments is a chasm of disappointment.

In the face of wider primary care shortages and the difficulty for doctors to make a living in low-income

neighborhoods, the zone fell far short of its original goal of adding 48 primary care professionals to West

Baltimore.

“Some of the goals and objectives across almost all of the zones were a bit ambitious,” said Maura Dwyer, a

senior policy advisor for the Maryland Department of Health and Mental Hygiene.

In 2014 People’s Community Health Center closed three nonprofit clinics for low-income patients in Baltimore

and later entered bankruptcy proceedings, demonstrating the difficulty.

Officials at Total Health Care, a federally supported nonprofit with several primary care clinics near Sandtown,

say they are proud of their service to West Baltimore.

“We want to bring the standard health in this neighborhood up to national standards,” Dr. Marcia Cort, Total’s

chief medical officer, told students from the Merrill College. “We don’t want it to be the neighborhood and area

[where] life expectancy is low and people are dying from preventable things.”

Still, she said, “Baltimore City is in a health crisis.”

Readmission rates for Bon Secours were still the highest in the state in 2014, although the Coordinating Center’s

transition coaches helped reduce them by 14 percent from the year before.

But state financing to pay for the transition coaches expires at the end of March. The Coordinating Center is

optimistic it will be renewed but nothing is set, Marsiglia said.

In 2014 only 37 percent of surveyed Bon Secours patients “strongly agreed” that they understood their care after

they left the hospital. Many resent that it took this long for the industry to try the very solutions — improving

primary care, giving communities resources to help themselves — that residents of neighborhoods like

Sandtown have been advocating for years.

http://dhmh.maryland.gov/vsa/Documents/imrrep14_draft%201

http://dhmh.maryland.gov/vsa/Documents/imrep10

http://umm.edu/about/community/difference/workforce-development-community-partnerships/our-future-workforce

http://www.baltimoresun.com/news/maryland/education/blog/bs-md-ci-umb-middle-school-program-20141027-story.html

http://dhmh.maryland.gov/healthenterprisezones/Documents/HG%2020-1407%20-%20CHRC%20-%20HEZ%20-%20Final%20Signed

http://articles.baltimoresun.com/2014-06-17/news/bs-md-ci-clinic-closing-20140617_1_community-health-centers-anne-arundel-county-baltimore-health-officials

http://www.hscrc.state.md.us/hsp-gbr-tpr-update.cfm

http://www.whynotthebest.org/reports/view/Patient%20Experience%20(HCAHPS)

“Unfortunately the hospitals didn’t hear us,” said Diane Bell-McKoy, CEO of Associated Black Charities, a

Maryland nonprofit. “As a person of color giving that information — most people think we don’t know what

we’re talking about.”

Distrust of the system, still more widespread than medical officials imagine, is passing to a new generation,

residents say.

“It’s a culture that has come about over time, because younger people have seen or feel like their parents and

their grandparents didn’t get the best medical treatment when they went to the hospital,” said First Mount

Calvary’s DeWitt. “So they have this why-go attitude.”

On Dec. 9, Maryland regulators shrank funding by two-thirds for the proposal made three months earlier to

create hospital jobs in poorer neighborhoods.

Other initiatives do little to address the low incomes and unemployment linked to Sandtown’s poor health. Nor

do they simplify the shifting maze of private and government insurance plans and hospital and doctor networks

that patients must navigate to get care.

One example: Nearly 2,000 low-income Medicaid members, including many in Sandtown and nearby, had to

change coverage in August or get new doctors because insurer UnitedHealthcare dropped University of

Maryland Faculty Physicians from its Medicaid network in a contract dispute, said Shannon McMahon, deputy

secretary of the Maryland Department of Health and Mental Hygiene.

United “had thorough continuity of care measures in place before the contract ended to ensure ongoing care was

not disrupted,” said company spokesman Ben Goldstein.

For many residents, enrolling in a plan is too complicated and time-consuming, requiring time off from work to

get coverage they don’t understand and can’t afford, said LIGHT Health’s Rock. In some ways the health law and

its new coverage rules have made things more complex, she said.

“As the landscape is changing, people really just don’t know what to do,” she said. “They sit you down with

somebody that’s supposed to help you fill [an insurance application] out, which is like a Charlie Brown episode.

Once you start on the second page it’s like ‘Wah, wah, wah.’ You don’t hear nothing else. You walk out and it’s

like, ‘What happened?’ ”

David Johnson, who was concerned about his blood pressure, dizziness and possible diabetes, joined Medicaid

in December. It took two months, three trips to the motor vehicle bureau to get a new ID and two trips to social

services to enroll.

An estimated 133,000 eligible but uninsured Marylanders still hadn’t signed up for Medicaid as of October. As

of early February, Eddie Reaves, the man with diabetes who gave up applying after his second attempt, was still

among them.

This story is part of a reporting partnership between Kaiser Health News and University of Maryland College

Park’s Philip Merrill College of Journalism, which operates Capital News Service. Kaiser’s Jay Hancock and

students from the school are examining how Baltimore’s respected health system serves the community where

violence flared in April after Freddie Gray was fatally injured in police custody. To see all the students’ work go

to the CNS website.

For classroom use only – accessed at: https://www.npr.org/sections/health-shots/2016/02/15/466550095/in-

freddie-grays-baltimore-the-best-medical-care-is-nearby-but-elusive

http://www.hscrc.state.md.us/documents/commission-meeting/2015/12-09/Final-Report-Population-Health-Workforce-Support-121515

http://kff.org/health-reform/issue-brief/new-estimates-of-eligibility-for-aca-coverage-among-the-uninsured/

http://khn.org/

http://merrill.umd.edu/

http://cnsmaryland.org/baltimore-health/

https://www.npr.org/sections/health-shots/2016/02/15/466550095/in-freddie-grays-baltimore-the-best-medical-care-is-nearby-but-elusive

MEDICAL REPORT

THE HOT SPOTTERS

Can we lower medical costs by giving the neediest patients better care?

by Atul Gawande JANUARY 24, 2011

In Camden, New Jersey, one per cent of patients account for a third of the city’s medical costs.

If Camden, New Jersey, becomes the first American community to lower its medical costs, it will have a

murder to thank. At nine-fifty on a February night in 2001, a twenty-two-year-old black man was shot

while driving his Ford Taurus station wagon through a neighborhood on the edge of the Rutgers

University campus. The victim lay motionless in the street beside the open door on the driver’s side, as if

the car had ejected him. A neighborhood couple, a physical therapist and a volunteer firefighter,

approached to see if they could help, but police waved them

back.

“He’s not going to make it,” an officer reportedly told the physical therapist. “He’s pretty much

dead.” She called a physician, Jeffrey Brenner, who lived a few doors up the street, and he ran to the

scene with a stethoscope and a pocket ventilation mask. After some discussion, the police let him enter

the crime scene and attend to the victim. Witnesses told the local newspaper that he was the first person to

lay hands on the man.

http://www.newyorker.com/magazine/bios/atul_gawande/search?contributorName=atul%20gawande

http://www.newyorker.com/

“He was slightly overweight, turned on his side,” Brenner recalls. There was glass everywhere.

Although the victim had been shot several times and many minutes had passed, his body felt warm.

Brenner checked his neck for a carotid pulse. The man was alive. Brenner began the chest compressions

and rescue breathing that should have been started long before. But the young man, who turned out to be

a Rutgers student, died soon afterward.

The incident became a local scandal. The student’s injuries may not have been survivable, but the

police couldn’t have known that. After the ambulance came, Brenner confronted one of the officers to ask

why they hadn’t tried to rescue him.

“We didn’t want to dislodge the bullet,” he recalls the policeman saying. It was a ridiculous answer, a

brushoff, and Brenner couldn’t let it go.

He was thirty-one years old at the time, a skinny, thick-bearded, soft-spoken family physician who

had grown up in a bedroom suburb of Philadelphia. As a medical student at Robert Wood Johnson

Medical School, in Piscataway, he had planned to become a neuroscientist. But he volunteered once a

week in a free primary-care clinic for poor immigrants, and he found the work there more challenging

than anything he was doing in the laboratory. The guy studying neuronal stem cells soon became the guy

studying Spanish and training to become one of the few family physicians in his class. Once he completed

his residency, in 1998, he joined the staff of a family-medicine practice in Camden. It was in a cheaply

constructed, boxlike, one-story building on a desolate street of bars, car-repair shops, and empty lots. But

he was young and eager to recapture the sense of purpose he’d felt volunteering at the clinic during

medical school.

Few people shared his sense of possibility. Camden was in civic free fall, on its way to becoming one

of the poorest, most crime-ridden cities in the nation. The local school system had gone into receivership.

Corruption and mismanagement soon prompted a state takeover of the entire city. Just getting the sewage

system to work could be a problem. The neglect of this anonymous shooting victim on Brenner’s street

was another instance of a city that had given up, and Brenner was tired of wondering why it had to be that

way.

Around that time, a police reform commission was created, and Brenner was asked to serve as one of

its two citizen members. He agreed and, to his surprise, became completely absorbed. The experts they

called in explained the basic principles of effective community policing. He learned about George Kelling

and James Q. Wilson’s “broken-windows” theory, which argued that minor, visible neighborhood

disorder breeds major crime. He learned about the former New York City police commissioner William

Bratton and the Compstat approach to policing that he had championed in the nineties, which centered on

mapping crime and focusing resources on the hot spots. The reform panel pushed the Camden Police

Department to create computerized crime maps, and to change police beats and shifts to focus on the

worst areas and times.

When the police wouldn’t make the crime maps, Brenner made his own. He persuaded Camden’s

three main hospitals to let him have access to their medical billing records. He transferred the reams of

data files onto a desktop computer, spent weeks figuring out how to pull the chaos of information into a

searchable database, and then started tabulating the emergency-room visits of victims of serious assault.

He created maps showing where the crime victims lived. He pushed for policies that would let the

Camden police chief assign shifts based on the crime statistics—only to find himself in a showdown with

the police unions.

“He has no clue,” the president of the city police superiors’ union said to the Philadelphia Inquirer. “I

just think that his comments about what kind of schedule we should be on, how we should be deployed,

are laughable.”

The unions kept the provisions out of the contract. The reform commission disbanded; Brenner

withdrew from the cause, beaten. But he continued to dig into the database on his computer, now mostly

out of idle interest.

Besides looking at assault patterns, he began studying patterns in the way patients flowed into and out

of Camden’s hospitals. “I’d just sit there and play with the data for hours,” he says, and the more he

played the more he found. For instance, he ran the data on the locations where ambulances picked up

patients with fall injuries, and discovered that a single building in central Camden sent more people to the

hospital with serious falls—fifty-seven elderly in two years—than any other in the city, resulting in

almost three million dollars in health-care bills. “It was just this amazing window into the health-care

delivery system,” he says.

So he took what he learned from police reform and tried a Compstat approach to the city’s health-care

performance—a Healthstat, so to speak. He made block-by-block maps of the city, color-coded by the

hospital costs of its residents, and looked for the hot spots. The two most expensive city blocks were in

north Camden, one that had a large nursing home called Abigail House and one that had a low-income

housing tower called Northgate II. He found that between January of 2002 and June of 2008 some nine

hundred people in the two buildings accounted for more than four thousand hospital visits and about two

hundred million dollars in health-care bills. One patient had three hundred and twenty-four admissions in

five years. The most expensive patient cost insurers $3.5 million.

Brenner wasn’t all that interested in costs; he was more interested in helping people who received bad

health care. But in his experience the people with the highest medical costs—the people cycling in and

out of the hospital—were usually the people receiving the worst care. “Emergency-room visits and

hospital admissions should be considered failures of the health-care system until proven otherwise,” he

told me—failures of prevention and of timely, effective care.

If he could find the people whose use of medical care was highest, he figured, he could do something

to help them. If he helped them, he would also be lowering their health-care costs. And, if the stats

approach to crime was right, targeting those with the highest health-care costs would help lower the entire

city’s health-care costs. His calculations revealed that just one per cent of the hundred thousand people

who made use of Camden’s medical facilities accounted for thirty per cent of its costs. That’s only a

thousand people—about half the size of a typical family physician’s panel of patients.

Things, of course, got complicated. It would have taken months to get the approvals needed to pull

names out of the data and approach people, and he was impatient to get started. So, in the spring of 2007,

he held a meeting with a few social workers and emergency-room doctors from hospitals around the city.

He showed them the cost statistics and use patterns of the most expensive one per cent. “These are the

people I want to help you with,” he said. He asked for assistance reaching them. “Introduce me to your

worst-of-the-worst patients,” he said.

They did. Then he got permission to look up the patients’ data to confirm where they were on his cost

map. “For all the stupid, expensive, predictive-modelling software that the big venders sell,” he says,

“you just ask the doctors, ‘Who are your most difficult patients?,’ and they can identify them.”

The first person they found for him was a man in his mid-forties whom I’ll call Frank Hendricks.

Hendricks had severe congestive heart failure, chronic asthma, uncontrolled diabetes, hypothyroidism,

gout, and a history of smoking and alcohol abuse. He weighed five hundred and sixty pounds. In the

previous three years, he had spent as much time in hospitals as out. When Brenner met him, he was in

intensive care with a tracheotomy and a feeding tube, having developed septic shock from a gallbladder

infection.

Brenner visited him daily. “I just basically sat in his room like I was a third-year med student,

hanging out with him for an hour, hour and a half every day, trying to figure out what makes the guy

tick,” he recalled. He learned that Hendricks used to be an auto detailer and a cook. He had a longtime

girlfriend and two children, now grown. A toxic combination of poor health, Johnnie Walker Red, and, it

emerged, cocaine addiction had left him unreliably employed, uninsured, and living in a welfare motel.

He had no consistent set of doctors, and almost no prospects for turning his situation around.

After several months, he had recovered enough to be discharged. But, out in the world, his life was

simply another hospitalization waiting to happen. By then, however, Brenner had figured out a few things

he could do to help. Some of it was simple doctor stuff. He made sure he followed Hendricks closely

enough to recognize when serious problems were emerging. He double-checked that the plans and

prescriptions the specialists had made for Hendricks’s many problems actually fit together—and, when

they didn’t, he got on the phone to sort things out. He teamed up with a nurse practitioner who could

make home visits to check blood-sugar levels and blood pressure, teach Hendricks about what he could

do to stay healthy, and make sure he was getting his medications.

A lot of what Brenner had to do, though, went beyond the usual doctor stuff. Brenner got a social

worker to help Hendricks apply for disability insurance, so that he could leave the chaos of welfare

motels, and have access to a consistent set of physicians. The team also pushed him to find sources of

stability and value in his life. They got him to return to Alcoholics Anonymous, and, when Brenner found

out that he was a devout Christian, he urged him to return to church. He told Hendricks that he needed to

cook his own food once in a while, so he could get back in the habit of doing it. The main thing he was up

against was Hendricks’s hopelessness. He’d given up. “Can you imagine being in the hospital that long,

what that does to you?” Brenner asked.

I spoke to Hendricks recently. He has gone without alcohol for a year, cocaine for two years, and

smoking for three years. He lives with his girlfriend in a safer neighborhood, goes to church, and weathers

family crises. He cooks his own meals now. His diabetes and congestive heart failure are under much

better control. He’s lost two hundred and twenty pounds, which means, among other things, that if he falls

he can pick himself up, rather than having to call for an ambulance.

“The fun thing about this work is that you can be there when the light switch goes on for a patient,”

Brenner told me. “It doesn’t happen at the pace we want. But you can see it happen.”

With Hendricks, there was no miraculous turnaround. “Working with him didn’t feel any different

from working with any patient on smoking, bad diet, not exercising—working on any particular rut

someone has gotten into,” Brenner said. “People are people, and they get into situations they don’t

necessarily plan on. My philosophy about primary care is that the only person who has changed anyone’s

life is their mother. The reason is that she cares about them, and she says the same simple thing over and

over and over.” So he tries to care, and to say a few simple things over and over and over.

I asked Hendricks what he made of Brenner when they first met.

“He struck me as odd,” Hendricks said. “His appearance was not what I expected of a young, clean-

cut doctor.” There was that beard. There was his manner, too. “His whole premise was ‘I’m here for you.

I’m not here to be a part of the medical system. I’m here to get you back on your feet.’ ”

An ordinary cold can still be a major setback for Hendricks. He told me that he’d been in the hospital

four times this past summer. But the stays were a few days at most, and he’s had no more cataclysmic,

weeks-long I.C.U. stays.

Was this kind of success replicable? As word went out about Brenner’s interest in patients like

Hendricks, he received more referrals. Camden doctors were delighted to have someone help with their

“worst of the worst.” He took on half a dozen patients, then two dozen, then more. It became increasingly

difficult to do this work alongside his regular medical practice. The clinic was already under financial

strain, and received nothing for assisting these patients. If it were up to him, he’d recruit a whole staff of

primary-care doctors and nurses and social workers, based right in the neighborhoods where the costliest

patients lived. With the tens of millions of dollars in hospital bills they could save, he’d pay the staff

double to serve as Camden’s élite medical force and to rescue the city’s health-care system.

But that’s not how the health-insurance system is built. So he applied for small grants from

philanthropies like the Robert Wood Johnson Foundation and the Merck Foundation. The money allowed

him to ramp up his data system and hire a few people, like the nurse practitioner and the social worker

who had helped him with Hendricks. He had some desk space at Cooper Hospital, and he turned it over to

what he named the Camden Coalition of Healthcare Providers. He spoke to people who had been doing

similar work, studied “medical home” programs for the chronically ill in Seattle, San Francisco, and

Pennsylvania, and adopted some of their lessons. By late 2010, his team had provided care for more than

three hundred people on his “super-utilizer” map.

I spent a day with Kathy Jackson, the nurse practitioner, and Jessica Cordero, a medical assistant, to

see what they did. The Camden Coalition doesn’t have enough money for a clinic where they can see

patients. They rely exclusively on home visits and phone calls.

Over the phone, they inquire about emerging health issues, check for insurance or housing problems,

ask about unfilled prescriptions. All the patients get the team’s urgent-call number, which is covered by

someone who can help them through a health crisis. Usually, the issue can be resolved on the spot—it’s a

headache or a cough or the like—but sometimes it requires an unplanned home visit, to perform an

examination, order some tests, provide a prescription. Only occasionally does it require an emergency

room.

Patients wouldn’t make the call in the first place if the person picking up weren’t someone like

Jackson or Brenner—someone they already knew and trusted. Even so, patients can disappear for days or

weeks at a time. “High-utilizer work is about building relationships with people who are in crisis,”

Brenner said. “The ones you build a relationship with, you can change behavior. Half we can build a

relationship with. Half we can’t.”

One patient I spent time with illustrated the challenges. If you were a doctor meeting him in your

office, you would quickly figure out that his major problems were moderate developmental deficits and

out-of-control hypertension and diabetes. His blood pressure and blood sugars were so high that, at the

age of thirty-nine, he was already developing blindness and advanced kidney disease. Unless something

changed, he was perhaps six months away from complete kidney failure.

You might decide to increase his insulin dose and change his blood-pressure medicine. But you

wouldn’t grasp what the real problem was until you walked up the cracked concrete steps of the two-story

brownstone where he lives with his mother, waited for him to shove aside the old newspapers and

unopened mail blocking the door, noticed Cordero’s shake of the head warning you not to take the

rumpled seat he’s offering because of the ant trail running across it, and took in the stack of dead

computer monitors, the barking mutt chained to an inner doorway, and the rotten fruit on a newspaper-

covered tabletop. According to a state evaluation, he was capable of handling his medications, and,

besides, he lived with his mother, who could help. But one look made it clear that they were both

incapable.

Jackson asked him whether he was taking his blood-pressure pills each day. Yes, he said. Could he

show her the pill bottles? As it turned out, he hadn’t taken any pills since she’d last visited, the week

before. His finger-stick blood sugar was twice the normal level. He needed a better living situation. The

state had turned him down for placement in supervised housing, pointing to his test scores. But after

months of paperwork—during which he steadily worsened, passing in and out of hospitals—the team was

finally able to get him into housing where his medications could be dispensed on a schedule. He had

made an overnight visit the previous weekend to test the place out.

“I liked it,” he said. He moved in the next week. And, with that, he got a chance to avert dialysis—

and its tens of thousands of dollars in annual costs—at least for a while.

Not everyone lets the team members into his or her life. One of their patients is a young woman of no

fixed address, with asthma and a crack-cocaine habit. The crack causes severe asthma attacks and puts her

in the hospital over and over again. The team members have managed occasionally to track her down in

emergency rooms or recognize her on street corners. All they can do is give her their number, and offer

their help if she ever wanted it. She hasn’t.

Work like this has proved all-consuming. In May, 2009, Brenner closed his regular medical practice

to focus on the program full time. It remains unclear how the program will make ends meet. But he and

his team appear to be having a major impact. The Camden Coalition has been able to measure its long-

term effect on its first thirty-six super-utilizers. They averaged sixty-two hospital and E.R. visits per

month before joining the program and thirty-seven visits after—a forty-per-cent reduction. Their hospital

bills averaged $1.2 million per month before and just over half a million after—a fifty-six-per-cent

reduction.

These results don’t take into account Brenner’s personnel costs, or the costs of the medications the

patients are now taking as prescribed, or the fact that some of the patients might have improved on their

own (or died, reducing their costs permanently). The net savings are undoubtedly lower, but they remain,

almost certainly, revolutionary. Brenner and his team are out there on the boulevards of Camden

demonstrating the possibilities of a strange new approach to health care: to look for the most expensive

patients in the system and then direct resources and brainpower toward helping them.

Jeff Brenner has not been the only one to recognize the possibilities in focusing on the hot spots of

medicine. One Friday afternoon, I drove to an industrial park on the outskirts of Boston, where a rapidly

growing data-analysis company called Verisk Health occupies a floor of a nondescript office complex. It

supplies “medical intelligence” to organizations that pay for health benefits—self-insured businesses,

many public employers, even the government of Abu Dhabi.

Privacy laws prevent U.S. employers from looking at the details of their employees’ medical

spending. So they hand their health-care payment data over to companies that analyze the patterns and tell

them how to reduce their health-insurance spending. Mostly, these companies give financial advice on

changing benefits—telling them, say, to increase employee co-payments for brand-name drugs or

emergency-room visits. But even employers who cut benefits find that their costs continue to outpace

their earnings. Verisk, whose clients pay health-care bills for fifteen million patients, is among the data

companies that are trying a more sophisticated approach.

Besides the usual statisticians and economists, Verisk recruited doctors to dive into the data. I met

one of them, Nathan Gunn, who was thirty-six years old, had completed his medical training at the

University of California, San Francisco, and was practicing as an internist part time. The rest of his time

he worked as Verisk’s head of research. Mostly, he was in meetings or at his desk poring through “data

runs” from clients. He insisted that it was every bit as absorbing as seeing sick patients—sometimes more

so. Every data run tells a different human story, he said.

At his computer, he pulled up a data set for me, scrubbed of identifying information, from a client that

manages health-care benefits for some two hundred and fifty employers—school districts, a large church

association, a bus company, and the like. They had a hundred thousand “covered lives” in all. Payouts for

those people rose eight per cent a year, at least three times as fast as the employers’ earnings. This wasn’t

good, but the numbers seemed pretty dry and abstract so far. Then he narrowed the list to the top five per

cent of spenders—just five thousand people accounted for almost sixty per cent of the spending—and he

began parsing further.

“Take two ten-year-old boys with asthma,” he said. “From a disease standpoint, they’re exactly the

same cost, right? Wrong. Imagine one of those kids never fills his inhalers and has been in urgent care

with asthma attacks three times over the last year, probably because Mom and Dad aren’t really on top of

it.” That’s the sort of patient Gunn uses his company’s medical-intelligence software program to zero in

on—a patient who is sick and getting inadequate care. “That’s really the sweet spot for preventive care,”

Gunn said.

He pulled up patients with known coronary-artery disease. There were nine hundred and twenty-one,

he said, reading off the screen. He clicked a few more times and raised his eyebrows. One in seven of

them had not had a full office visit with a physician in more than a year. “You can do something about

that,” he said.

“Let’s do the E.R.-visit game,” he went on. “This is a fun one.” He sorted the patients by number of

visits, much as Jeff Brenner had done for Camden. In this employed population, the No. 1 patient was a

twenty-five-year-old woman. In the past ten months, she’d had twenty-nine E.R. visits, fifty-one doctor’s

office visits, and a hospital admission.

“I can actually drill into these claims,” he said, squinting at the screen. “All these claims here are

migraine, migraine, migraine, migraine, headache, headache, headache.” For a twenty-five-year-old with

her profile, he said, medical payments for the previous ten months would be expected to total twenty-

eight hundred dollars. Her actual payments came to more than fifty-two thousand dollars—for

“headaches.”

Was she a drug seeker? He pulled up her prescription profile, looking for narcotic prescriptions.

Instead, he found prescriptions for insulin (she was apparently diabetic) and imipramine, an anti-migraine

treatment. Gunn was struck by how faithfully she filled her prescriptions. She hadn’t missed a single

renewal—“which is actually interesting,” he said. That’s not what you usually find at the extreme of the

cost curve.

The story now became clear to him. She suffered from terrible migraines. She took her medicine, but

it wasn’t working. When the headaches got bad, she’d go to the emergency room or to urgent care. The

doctors would do CT and MRI scans, satisfy themselves that she didn’t have a brain tumor or an

aneurysm, give her a narcotic injection to stop the headache temporarily, maybe renew her imipramine

prescription, and send her home, only to have her return a couple of weeks later and see whoever the next

doctor on duty was. She wasn’t getting what she needed for adequate migraine care—a primary physician

taking her in hand, trying different medications in a systematic way, and figuring out how to better keep

her headaches at bay.

As he sorts through such stories, Gunn usually finds larger patterns, too. He told me about an analysis

he had recently done for a big information-technology company on the East Coast. It provided health

benefits to seven thousand employees and family members, and had forty million dollars in “spend.” The

firm had already raised the employees’ insurance co-payments considerably, hoping to give employees a

reason to think twice about unnecessary medical visits, tests, and procedures—make them have some

“skin in the game,” as they say. Indeed, almost every category of costly medical care went down: doctor

visits, emergency-room and hospital visits, and drug prescriptions. Yet employee health costs continued

to rise—climbing almost ten per cent each year. The company was baffled.

Gunn’s team took a look at the hot spots. The outliers, it turned out, were predominantly early

retirees. Most had multiple chronic conditions—in particular, coronary-artery disease, asthma, and

complex mental illness. One had badly worsening heart disease and diabetes, and medical bills over two

years in excess of eighty thousand dollars. The man, dealing with higher co-payments on a fixed income,

had cut back to filling only half his medication prescriptions for his high cholesterol and diabetes. He

made few doctor visits. He avoided the E.R.—until a heart attack necessitated emergency surgery and left

him disabled with chronic heart failure.

The higher co-payments had backfired, Gunn said. While medical costs for most employees flattened

out, those for early retirees jumped seventeen per cent. The sickest patients became much more expensive

because they put off care and prevention until it was too late.

The critical flaw in our health-care system that people like Gunn and Brenner are finding is that it was

never designed for the kind of patients who incur the highest costs. Medicine’s primary mechanism of

service is the doctor visit and the E.R. visit. (Americans make more than a billion such visits each year,

according to the Centers for Disease Control.) For a thirty-year-old with a fever, a twenty-minute visit to

the doctor’s office may be just the thing. For a pedestrian hit by a minivan, there’s nowhere better than an

emergency room. But these institutions are vastly inadequate for people with complex problems: the

forty-year-old with drug and alcohol addiction; the eighty-four-year-old with advanced Alzheimer’s

disease and a pneumonia; the sixty-year-old with heart failure, obesity, gout, a bad memory for his eleven

medications, and half a dozen specialists recommending different tests and procedures. It’s like arriving at

a major construction project with nothing but a screwdriver and a crane.

Outsiders tend to be the first to recognize the inadequacies of our social institutions. But, precisely

because they are outsiders, they are usually in a poor position to fix them. Gunn, though a doctor, mostly

works for people who do not run health systems—employers and insurers. So he counsels them about

ways to tinker with the existing system. He tells them how to change co-payments and deductibles so they

at least aren’t making their cost problems worse. He identifies doctors and hospitals that seem to be

providing particularly ineffective care for high-needs patients, and encourages clients to shift contracts.

And he often suggests that clients hire case-management companies—a fast-growing industry with

telephone banks of nurses offering high-cost patients advice in the hope of making up for the deficiencies

of the system.

The strategy works, sort of. Verisk reports that most of its clients can slow the rate at which their

health costs rise, at least to some extent. But few have seen decreases, and it’s not obvious that the

improvements can be sustained. Brenner, by contrast, is reinventing medicine from the inside. But he

does not run a health-care system, and had to give up his practice to sustain his work. He is an outsider on

the inside. So you might wonder whether medical hot-spotting can really succeed on a scale that would

help large populations. Yet there are signs that it can.

A recent Medicare demonstration program, given substantial additional resources under the new

health-care-reform law, offers medical institutions an extra monthly payment to finance the coordination

of care for their most chronically expensive beneficiaries. If total costs fall more than five per cent

compared with those of a matched set of control patients, the program allows institutions to keep part of

the savings. If costs fail to decline, the institutions have to return the monthly payments.

Several hospitals took the deal when the program was offered, in 2006. One was the Massachusetts

General Hospital, in Boston. It asked a general internist named Tim Ferris to design the effort. The

hospital had twenty-six hundred chronically high-cost patients, who together accounted for sixty million

dollars in annual Medicare spending. They were in nineteen primary-care practices, and Ferris and his

team made sure that each had a nurse whose sole job was to improve the coordination of care for these

patients. The doctors saw the patients as usual. In between, the nurses saw them for longer visits, made

surveillance phone calls, and, in consultation with the doctors, tried to recognize and address problems

before they resulted in a hospital visit.

Three years later, hospital stays and trips to the emergency room have dropped more than fifteen per

cent. The hospital hit its five-per-cent cost-reduction target. And the team is just getting the hang of what

it can do.

Recently, I visited an even more radically redesigned physician practice, in Atlantic City. Cross the bridge

into town (Atlantic City is on an island, I learned), ignore the Trump Plaza and Caesars casinos looming

ahead of you, drive a few blocks along the Monopoly-board streets (the game took its street names from

here), turn onto Tennessee Avenue, and enter the doctors’ office building that’s across the street from the

ninety-nine-cent store and the city’s long-shuttered supermarket. On the second floor, just past the

occupational-health clinic, you will find the Special Care Center. The reception area, with its rustic taupe

upholstery and tasteful lighting, looks like any other doctors’ office. But it houses an experiment started

in 2007 by the health-benefit programs of the casino workers’ union and of a hospital, AtlantiCare

Medical Center, the city’s two largest pools of employees.

Both are self-insured—they are large enough to pay for their workers’ health care directly—and both

have been hammered by the exploding costs. Yes, even hospitals are having a hard time paying their

employees’ medical bills. As for the union, its contracts are frequently for workers’ total compensation—

wages plus benefits. It gets a fixed pot. Year after year, the low-wage busboys, hotel cleaners, and kitchen

staff voted against sacrificing their health benefits. As a result, they have gone without a wage increase

for years. Out of desperation, the union’s health fund and the hospital decided to try something new. They

got a young Harvard internist named Rushika Fernandopulle to run a clinic exclusively for workers with

exceptionally high medical expenses.

Fernandopulle, who was born in Sri Lanka and raised in Baltimore, doesn’t seem like a radical when

you meet him. He’s short and round-faced, smiles a lot, and displays two cute rabbit teeth as he tells you

how ridiculous the health-care system is and how he plans to change it all. Jeff Brenner was on his

advisory board, along with others who have pioneered the concept of intensive outpatient care for

complex high-needs patients. The hospital provided the floor space. Fernandopulle created a point system

to identify employees likely to have high recurrent costs, and they were offered the chance to join the new

clinic.

The Special Care Center reinvented the idea of a primary-care clinic in almost every way. The

union’s and the hospital’s health funds agreed to switch from paying the doctors for every individual

office visit and treatment to paying a flat monthly fee for each patient. That cut the huge expense that

most clinics incur from billing paperwork. The patients were given unlimited access to the clinic without

charges—no co-payments, no insurance bills. This, Fernandopulle explained, would force doctors on staff

to focus on service, in order to retain their patients and the fees they would bring.

The payment scheme also allowed him to design the clinic around the things that sick, expensive

patients most need and value, rather than the ones that pay the best. He adopted an open-access

scheduling system to guarantee same-day appointments for the acutely ill. He customized an electronic

information system that tracks whether patients are meeting their goals. And he staffed the clinic with

people who would help them do it. One nurse practitioner, for instance, was responsible for trying to get

every smoker to quit.

I got a glimpse of how unusual the clinic is when I sat in on the staff meeting it holds each morning to

review the medical issues of the patients on the appointment books. There was, for starters, the very

existence of the meeting. I had never seen this kind of daily huddle at a doctor’s office, with clinicians

popping open their laptops and pulling up their patient lists together. Then there was the particular

mixture of people who squeezed around the conference table. As in many primary-care offices, the staff

had two physicians and two nurse practitioners. But a full-time social worker and the front-desk

receptionist joined in for the patient review, too. And, outnumbering them all, there were eight full-time

“health coaches.”

Fernandopulle created the position. Each health coach works with patients—in person, by phone, by

e-mail—to help them manage their health. Fernandopulle got the idea from the promotoras, community

health workers, whom he had seen on a medical mission in the Dominican Republic. The coaches work

with the doctors but see their patients far more frequently than the doctors do, at least once every two

weeks. Their most important attribute, Fernandopulle explained, is a knack for connecting with sick

people, and understanding their difficulties. Most of the coaches come from their patients’ communities

and speak their languages. Many have experience with chronic illness in their own families. (One was

himself a patient in the clinic.) Few had clinical experience. I asked each of the coaches what he or she

had done before working in the Special Care Center. One worked the register at a Dunkin’ Donuts.

Another was a Sears retail manager. A third was an administrative assistant at a casino.

“We recruit for attitude and train for skill,” Fernandopulle said. “We don’t recruit from health care.

This kind of care requires a very different mind-set from usual care. For example, what is the answer for a

patient who walks up to the front desk with a question? The answer is ‘Yes.’ ‘Can I see a doctor?’ ‘Yes.’

‘Can I get help making my ultrasound appointment?’ ‘Yes.’ Health care trains people to say no to

patients.” He told me that he’d had to replace half of the clinic’s initial hires—including a doctor—

because they didn’t grasp the focus on patient service.

In forty-five minutes, the staff did a rapid run-through of everyone’s patients. They reviewed the

requests that patients had made by e-mail or telephone, the plans for the ones who had appointments that

day. Staff members made sure that all patients who made a sick visit the day before got a follow-up call

within twenty-four hours, that every test ordered was reviewed, that every unexpected problem was

addressed.

Most patients required no more than a ten-second mention. Mr. Green didn’t turn up for his cardiac

testing or return calls about it. “I know where his wife works. I’ll track her down,” the receptionist said.

Ms. Blue is pregnant and on a high-blood-pressure medication that’s unsafe in pregnancy. “I’ll change her

prescription right now,” her doctor said, and keyed it in. A handful of patients required longer discussion.

One forty-five-year-old heart-disease patient had just had blood tests that showed worsening kidney

failure. The team decided to repeat the blood tests that morning, organize a kidney ultrasound in the

afternoon if the tests confirmed the finding, and have him seen in the office at the end of the day.

A staff member read out the hospital census. Of the clinic’s twelve hundred chronically ill patients,

just one was in the hospital, and she was being discharged. The clinic’s patients had gone four days

without a single E.R. visit. On hearing this news, staffers cheered and broke into applause.

Afterward, I met a patient, Vibha Gandhi. She was fifty-seven years old and had joined the clinic

after suffering a third heart attack. She and her husband, Bharat, are Indian immigrants. He cleans casino

bathrooms for thirteen dollars an hour on the night shift. Vibha has long had poor health, with diabetes,

obesity, and congestive heart failure, but things got much worse in the summer of 2009. A heart attack

landed her in intensive care, and her coronary-artery disease proved so advanced as to be inoperable. She

arrived in a wheelchair for her first clinic visit. She could not walk more than a few steps without losing

her breath and getting a viselike chest pain. The next step for such patients is often a heart transplant.

A year and a half later, she is out of her wheelchair. She attends the clinic’s Tuesday yoga classes.

With the help of a walker, she can go a quarter mile without stopping. Although her condition is still

fragile—she takes a purseful of medications, and a bout of the flu would send her back to an intensive-

care unit—her daily life is far better than she once imagined.

“I didn’t think I would live this long,” Vibha said through Bharat, who translated her Gujarati for me.

“I didn’t want to live.”

I asked her what had made her better. The couple credited exercise, dietary changes, medication

adjustments, and strict monitoring of her diabetes.

But surely she had been encouraged to do these things after her first two heart attacks. What made the

difference this time?

“Jayshree,” Vibha said, naming the health coach from Dunkin’ Donuts, who also speaks Gujarati.

“Jayshree pushes her, and she listens to her only and not to me,” Bharat said.

“Why do you listen to Jayshree?” I asked Vibha.

“Because she talks like my mother,” she said.

Fernandopulle carefully tracks the statistics of those twelve hundred patients. After twelve months in the

program, he found, their emergency-room visits and hospital admissions were reduced by more than forty

per cent. Surgical procedures were down by a quarter. The patients were also markedly healthier. Among

five hundred and three patients with high blood pressure, only two were in poor control. Patients with

high cholesterol had, on average, a fifty-point drop in their levels. A stunning sixty-three per cent of

smokers with heart and lung disease quit smoking. In surveys, service and quality ratings were high.

But was the program saving money? The team, after all, was more expensive than typical primary

care. And certain costs shot up. Because patients took their medications more consistently, drug costs

were higher. The doctors ordered more mammograms and diagnostic tests, and caught and treated more

cancers and other conditions. There’s also the statistical phenomenon known as “regression to the mean”:

the super-high-cost patients may have been on their way to getting better (and less costly) on their own.

So the union’s health fund enlisted an independent economist to evaluate the clinic’s one-year results.

According to the data, these workers made up a third of the local union’s costliest ten per cent of

members. To determine if the clinic was really making a difference, the economist compared their costs

over twelve months with those of a similar group of Las Vegas casino workers. The results, he cautioned,

are still preliminary. The sample was small. One patient requiring a heart transplant could wipe away any

savings overnight. Nonetheless, compared with the Las Vegas workers, the Atlantic City workers in

Fernandopulle’s program experienced a twenty-five-per-cent drop in costs.

And this was just the start. The program, Fernandopulle told me, is still discovering new tricks. His

team just recently figured out, for instance, that one reason some patients call 911 for problems the clinic

would handle better is that they don’t have the clinic’s twenty-four-hour call number at hand when they

need it. The health coaches told the patients to program it into their cell-phone speed dial, but many didn’t

know how to do that. So the health coaches began doing it for them, and the number of 911 calls fell.

High-cost habits are sticky; staff members are still learning the subtleties of unsticking them.

Their most difficult obstacle, however, has been the waywardness not of patients but of doctors—the

doctors whom the patients see outside the clinic. Jeff Brenner’s Camden patients are usually uninsured or

on welfare; their doctors were happy to have someone else deal with them. The Atlantic City casino

workers and hospital staff, on the other hand, had the best-paying insurance in town. Some doctors

weren’t about to let that business slip away.

Fernandopulle told me about a woman who had seen a cardiologist for chest pain two decades ago,

when she was in her twenties. It was the result of a temporary, inflammatory condition, but he continued

to have her see him for an examination and an electrocardiogram every three months, and a cardiac

ultrasound every year. The results were always normal. After the clinic doctors advised her to stop, the

cardiologist called her at home to say that her health was at risk if she didn’t keep seeing him. She went

back.

The clinic encountered similar troubles with some of the doctors who saw its hospitalized patients.

One group of hospital-based internists was excellent, and coordinated its care plans with the clinic. But

the others refused, resulting in longer stays and higher costs (and a fee for every visit, while the better

group happened to be the only salaried one). When Fernandopulle arranged to direct the patients to the

preferred doctors, the others retaliated, trolling the emergency department and persuading the patients to

choose them instead.

“ ‘Rogues,’ we call them,” Fernandopulle said. He and his colleagues tried warning the patients about

the rogue doctors and contacting the E.R. staff to make sure they knew which doctors were preferred.

“One time, we literally pinned a note to a patient, like he was Paddington Bear,” he said. They’ve ended

up going to the hospital, and changing the doctors themselves when they have to. As the saying goes, one

man’s cost is another man’s income.

The AtlantiCare hospital system is in a curious position in all this. Can it really make sense for a

hospital to invest in a program, like the Special Care Center, that aims at reducing hospitalizations, even if

its employees are included? I asked David Tilton, the president and C.E.O. of the system, why he was

doing it. He had several answers. Some were of the it’s-the-right-thing-to-do variety. But I was interested

in the hard-nosed reasons. The Atlantic City economy, he said, could not sustain his health system’s

perpetually rising costs. His hospital either fought the pressure to control costs and went down with the

local economy or learned how to benefit from cost control.

And there are ways to benefit. At a minimum, a successful hospital could attract patients from

competitors, cushioning it against a future in which people need hospitals less. Two decades ago, for

instance, Denmark had more than a hundred and fifty hospitals for its five million people. The country

then made changes to strengthen the quality and availability of outpatient primary-care services

(including payments to encourage physicians to provide e-mail access, off-hours consultation, and nurse

managers for complex care). Today, the number of hospitals has shrunk to seventy-one. Within five years,

fewer than forty are expected to be required. A smart hospital might position itself to be one of the last

ones standing.

Could anything that dramatic happen here? An important idea is getting its test run in America: the

creation of intensive outpatient care to target hot spots, and thereby reduce over-all health-care costs. But,

if it works, hospitals will lose revenue and some will have to close. Medical companies and specialists

profiting from the excess of scans and procedures will get squeezed. This will provoke retaliation,

counter-campaigns, intense lobbying for Washington to obstruct reform.

The stats-and-stethoscope upstarts are nonetheless making their dash. Rushika Fernandopulle has set

up a version of his Special Care program in Seattle, for Boeing workers, and is developing one in Las

Vegas, for casino workers. Nathan Gunn and Verisk Health have landed new contracts during the past

year with companies providing health benefits to more than four million employees and family members.

Tim Ferris has obtained federal approval to spread his program for Medicare patients to two other

hospitals in the Partners Healthcare System, in Boston (including my own). Jeff Brenner, meanwhile, is

seeking to lower health-care costs for all of Camden, by getting its primary-care physicians to extend the

hot-spot strategy citywide. We’ve been looking to Washington to find out how health-care reform will

happen. But people like these are its real leaders.

During my visit to Camden, I attended a meeting that Brenner and several community groups had

organized with residents of Northgate II, the building with the highest hospital billing in the city. He

wanted to run an idea by them. The meeting took place in the building’s ground-floor lounge. There was

juice in Styrofoam cups and potato chips on little red plastic plates. A pastor with the Camden Bible

Tabernacle started things off with a prayer. Brenner let one of the other coalition members do the talking.

How much money, he asked, did the residents think had been spent on emergency-room and hospital

visits in the past five years for the people in this one building? They had no idea. He wrote out the

numbers on an easel pad, but they were imponderable abstractions. The residents’ eyes widened only

when he said that the payments, even accounting for unpaid bills, added up to almost sixty thousand

dollars per person. He asked how many of them believed that they had received sixty thousand dollars’

worth of health care. That was when the stories came out: the doctors who wouldn’t give anyone on

Medicaid an office appointment; the ten-hour emergency-room waits for ten minutes with an intern.

Brenner was proposing to open a doctor’s office right in their building, which would reduce their

need for hospital visits. If it delivered better care and saved money, the doctor’s office would receive part

of the money that it saved Medicare and Medicaid, and would be able to add services—services that the

residents could help choose. With enough savings, they could have same-day doctor visits, nurse

practitioners at night, a social worker, a psychologist. When Brenner’s scenario was described, residents

murmured approval, but the mention of a social worker brought questions.

“Is she going to be all up in my business?” a woman asked. “I don’t know if I like that. I’m not sure I

want a social worker hanging around here.”

This doctor’s office, people were slowly realizing, would be involved in their lives—a medical

professional would be after them about their smoking, drinking, diet, medications. That was O.K. if the

person were Dr. Brenner. They knew him. They believed that he cared about them. Acceptance, however,

would clearly depend upon execution; it wasn’t guaranteed. There was similar ambivalence in the

neighborhoods that Compstat strategists targeted for additional—and potentially intrusive—policing.

Yet the stakes in health-care hot-spotting are enormous, and go far beyond health care. A recent

report on more than a decade of education-reform spending in Massachusetts detailed a story found in

every state. Massachusetts sent nearly a billion dollars to school districts to finance smaller class sizes and

better teachers’ pay, yet every dollar ended up being diverted to covering rising health-care costs. For

each dollar added to school budgets, the costs of maintaining teacher health benefits took a dollar and

forty cents.

Every country in the world is battling the rising cost of health care. No community anywhere has

demonstrably lowered its health-care costs (not just slowed their rate of increase) by improving medical

services. They’ve lowered costs only by cutting or rationing them. To many people, the problem of

health-care costs is best encapsulated in a basic third-grade lesson: you can’t have it all. You want higher

wages, lower taxes, less debt? Then cut health-care services.

People like Jeff Brenner are saying that we can have it all—teachers and health care. To be sure,

uncertainties remain. Their small, localized successes have not yet been replicated in large populations.

Up to a fourth of their patients face problems of a kind they have avoided tackling so far: catastrophic

conditions. These are the patients who are in the top one per cent of costs because they were in a car crash

that resulted in a hundred thousand dollars in surgery and intensive-care expenses, or had a cancer

requiring seven thousand dollars a week for chemo and radiation. There’s nothing much to be done for

those patients, you’d think. Yet they are also victims of poor and disjointed service. Improving the value

of the services—rewarding better results per dollar spent—could lead to dramatic innovations in

catastrophic care, too.

The new health-reform law—Obamacare—is betting big on the Brenners of the world. It says that we

can afford to subsidize insurance for millions, remove the ability of private and public insurers to cut

high-cost patients from their rolls, and improve the quality of care. The law authorizes new forms of

Medicare and Medicaid payment to encourage the development of “medical homes” and “accountable

care organizations”—doctors’ offices and medical systems that get financial benefits for being more

accessible to patients, better organized, and accountable for reducing the over-all costs of care. Backers

believe that, given this support, innovators like Brenner will transform health care everywhere.

Critics say that it’s a pipe dream—more money down the health-care sinkhole. They could turn out to

be right, Brenner told me; a well-organized opposition could scuttle efforts like his. “In the next few

years, we’re going to have absolutely irrefutable evidence that there are ways to reduce health-care costs,

and they are ‘high touch’ and they are at the level of care,” he said. “We are going to know that, hands

down, this is possible.” From that point onward, he said, “it’s a political problem.” The struggle will be to

survive the obstruction of lobbies, and the partisan tendency to view success as victory for the other side.

Already, these forces of resistance have become Brenner’s prime concern. He needs state legislative

approval to bring his program to Medicaid patients at Northgate II and across Camden. He needs federal

approval to qualify as an accountable care organization for the city’s Medicare patients. In Camden, he

has built support across a range of groups, from the state Chamber of Commerce to local hospitals to

activist organizations. But for months—even as rising health costs and shrinking state aid have forced the

city to contemplate further school cuts and the layoff of almost half of its police—he has been stalled.

With divided branches at both the state and the federal level, “government just gets paralyzed,” he says.

In the meantime, though, he’s forging ahead. In December, he introduced an expanded computer

database that lets Camden doctors view laboratory results, radiology reports, emergency-room visits, and

discharge summaries for their patients from all the hospitals in town—and could show cost patterns, too.

The absence of this sort of information is a daily impediment to the care of patients in Boston, where I

practice. Right now, we’re nowhere close to having such data. But this, I’m sure, will change. For in

places like Camden, New Jersey, one of the poorest cities in America, there are people showing the way.

♦

For classroom use only – Accessed at:

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all#ixzz1TLADTiVK

http://www.newyorker.com/reporting/2011/01/24/110124fa_fact_gawande?printable=true&currentPage=all#ixzz1TLADTiVK

When Getting A Blood Pressure Cuff Takes All Day

February 18, 20163:48 PM ET by Rachel Bluth, Capital News Service

Sharlene Adams rode three buses to get to an East Baltimore medical supply store.

Rachel Bluth/Capital News Service

The doctor told Sharlene Adams to get a blood pressure cuff, so she set out to buy one.

For Adams, who lives in West Baltimore, that meant four bus rides, a stop for a doctor’s signature, two visits to a

downtown pharmacy for other medical supplies, a detour to borrow money for a copay, a delay when a bus broke down

and, at last, a purchase at a pharmacy on the east side of town.

The 7-mile trip there took 5 1/2 hours. Then she had to get back home.

She seemed unfazed. For Adams, this is what it takes to follow a doctor’s recommendations.

Adams’ neighborhood is not far from where Freddie Gray grew up and died after being injured in police custody last

April, an event that triggered unrest.

Incomes here average less than $28,000 a year, according to the U.S. Census. Drugs and violence plague the area.

Adams’ story isn’t about huge barriers to medical care but about a series of smaller hurdles that hinder access for her and

many other low-income people.

Adams, 55, has no car, no computer and no credit card. Her insurance will pay for a blood pressure cuff, but only with a

prescription. She doesn’t have the ready cash that would allow her to pop into a drugstore and pick up a $40 blood

pressure cuff off the shelf.

She has been treated for mental health problems including bipolar disorder, and she has been homeless — a time when she

never saw a doctor.

Adams acknowledges she used to use illegal drugs, but that, she said, ended years ago. Yet when doctors hear she used

crack, she said, they sometimes dismiss her complaints.

“You have some of them that, they treat you like dirt, really, because they think you’re the scum of the earth anyway,”

Adams said.

She tries to stay healthy, but she is working with few resources and has to overcome most of a lifetime spent ignoring her

health. She fails as often as she succeeds.

Adams has diabetes but isn’t clear on exactly when to test her blood sugar. She doesn’t like needles and doesn’t want to

take insulin. She wants to eat better but says the food her doctor recommends costs too much. She wants to lower her

blood pressure but she still smokes.

For Adams, seeing a doctor, filling a prescription or scheduling a medical test comes with frustration that middle-class

patients don’t have to deal with. She knows the difference, and she resents it.

When Adams needed a colonoscopy, for example, a doctor referred her to a center in Pikesville, about 8 miles from her

home on North Bentalou Street. Adams says she can’t get there.

“We don’t have the opportunity to get things like some other people get,” she said. “You lost. You run around, you don’t

know if you have cancer.”

The Journey Begins

Adams has lived on North Bentalou Street since December 2014 and uses a housing voucher to help with her rent

payments. One Monday morning last fall, she pulled on a pair of brightly patterned leggings and topped them with a pink

zip-up jacket.

Her long, fake nails were painted with ornate patterns, and she wore earrings. She was ready for the long trip she hoped

would end with the purchase of a blood

pressure cuff.

Adams went out the door of her rent-subsidized, porch-front brick rowhouse and headed to the bus stop.

Along the way, Adams seemed to know everyone. She said hi to the women with children clad in school uniforms, to the

men sitting on their porches sipping cans wrapped in black plastic bags.

Sharlene Adams bought a cigarette from a neighbor as she waited for a bus.

She asked every one of them for a cigarette or for spare change to buy a loose cigarette from a former Army medic who

lives next to the bus stop.

“I can’t start my day without a cigarette,” Adams said. She knows smoking is bad for her, but quitting is low on her list of

priorities.

The quest for a blood pressure cuff had been initiated the week before, when Adams visited her primary care doctor at

University Family Medicine on Redwood Street.

During the 20-minute visit with Dr. Kerry Reller, she managed to discuss Adams’ two dozen prescriptions, check her

blood sugar and pressure, make sure she was scheduled for a mammogram and colonoscopy and attend to Adams’

seemingly endless list of ailments, from her eyes to her ankles. She also asked about Adams’ diet and if she’s getting the

right kind of exercise.

Reller told Adams to start monitoring her blood pressure daily along with her blood sugar.

Medicaid, the health insurance plan for low-income people that covers Adams, would pay for a blood pressure cuff to help

her.

But there was a problem with the paperwork. Later in the week, when Adams called to check on her order, the pharmacy

where she was going to buy the cuff told her she would need the doctor to sign a new prescription and fax it over again.

That missing signature was the reason Adams was once again heading downtown. She had left her house a little after 11

a.m. She watched three No. 13 buses, part of Baltimore’s notoriously unreliable public transportation system, go by. It

would be 45 minutes before a No. 91 bus would come to take her downtown.

Bus riders with smartphones can use an app to track the buses and see what time they will really arrive, but the app is of

no use to Adams. She doesn’t have a smartphone.

Before getting to the doctor’s office, she stopped at the University of Maryland pharmacy to pick up lancets for her

diabetes test monitor. Adams is supposed to check her sugars, in West Baltimore parlance, every morning, fasting until

she draws her blood and writes down the results.

On this morning, she was out of lancets, the tiny needles she uses to prick her skin to get the blood sample, so she hadn’t

done the test. Because she hadn’t yet checked her blood sugar, she also hadn’t eaten — dangerous for someone with

diabetes. But Adams was trying to follow the doctor’s instructions literally.

This was another miscommunication between Adams and her doctor, something that happens regularly. Adams

acknowledges that she has a short attention span and says she doesn’t read well, problems that make it difficult for her to

fully understand doctors’ instructions.

She said she is like many other people she knows. “A lot of people don’t understand the words they use,” she said. “Half

of them don’t know the meaning. Half of them can’t even read. Half of them can’t even spell. Half of them are partially

illiterate,” Adams said. “Basically they are going to be lost.”

Adams said she tries to take care of herself. She weighs herself at exercise classes she attends at a community center on

Mondays and Wednesdays. She stays away from fried foods and salt, but sweets are her weakness — one cookie can turn

into 24.

She said she often can’t afford the foods and sugar substitutes that her doctor recommends. “It is kind really of confusing

and hard because prices are so high,” Adams said. “You don’t get that many [food] stamps, the check’s not that big, you

are barely making it to pay your bills. And you go to pantries and they don’t have food that you basically can eat as a

diabetic.”

At The Doctor’s Office

By 12:30 p.m., Adams had left the pharmacy and walked a block to her doctor’s office on Redwood Street to begin the

process of getting a signed prescription faxed over to the medical supply store. It would take an hour and a half.

While Adams waited, Reller faxed a refill for a diabetes prescription to a downtown pharmacy — the same one Adams

had just been to for lancets. At 2 p.m., Adams was out of the clinic, walking back to the university pharmacy to pick up

her pills. But they weren’t ready. She would have to return another day.

At 2:15, Adams boarded another bus for the trip to East Baltimore to the medical supply store where she now had a

prescription to buy a blood pressure cuff.

But she first had to make another stop, this time at a friend’s house to borrow money in case the pharmacy demanded a

copay. The friend lives next door to Adams’ daughter, Shardaye.

The friend gave Adams a cigarette and $11, seven of which were in rolls of coins.

They chatted a bit, so that Adams could be updated on the comings and goings at her daughter’s house. Then Adams went

back up the street to catch a bus to Northern Pharmacy & Medical Equipment on Harford Road.

There would be another complication.

The bus broke down on the way. It got rolling again, but it would be 3:30 before the bus finally dropped Adams off

outside the pharmacy.

Inside the store, Adams browsed the aisles of medical equipment like a budget-conscious shopper in a high-end

department store. She muttered to herself about getting her Medicaid plan to pay for diabetic socks and canes.

There was a bowl of old Halloween candy on the counter. Adams picked up a mini chocolate bar. It was the first thing she

had eaten all day.

At 4 p.m., a woman in a short lab coat and high heels handed her a box holding the cuff and moved on to the next

customer. Adams stepped back and opened the box, unwilling to leave until she understood the equipment. She hunted

down another worker and, trying the cuff on, asked if it fit correctly. The clerk assured her that it was big enough.

Three bus rides, three trips to two pharmacies, a stop at the doctor’s office and five hours later, Adams had her blood

pressure cuff.

Now she’d have one more bus ride to carry her home. She left the pharmacy and crossed the street. But before the bus

arrived, Adams strode over to a gas station, pulled out the rolls of coins her friend had given her, and bought a pack of

cigarettes.

This story is part of a reporting partnership between Kaiser Health News and University of Maryland College Park’s

Philip Merrill College of Journalism, which operates Capital News Service.

For classroom use only – accessed at:

https://www.npr.org/sections/health-shots/2016/02/18/467209573/when-getting-a-blood-pressure-cuff-takes-all-day

http://khn.org/

http://merrill.umd.edu/

https://www.npr.org/sections/health-shots/2016/02/18/467209573/when-getting-a-blood-pressure-cuff-takes-all-day

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