UON Case InstructionsReview the UON Case Study Guidelines as well as the excel data from the survey sent to 1500…

UON Case Instructions Review the UON Case Study Guidelines as well as the excel data from the survey sent to 1500 ostemy patients (both are attached to this assignment). Once you are familiar with the data content and overall case, answer the following based on pivot tables you create or other statistical tools. The paper will answer the questions and provide recommendations and should be no longer than 6 pages. Pivot tables and appendix can be longer. UON Case The directors of UON feel that the key to their decision making is the demographic profile of the sample, information as to where the sample currently gets its health care information, information as to the provisions determined by the key health care opinion leaders, and other recommendations based on the data. They are expecting the analysis will provide answers to the following questions along with supporting analysis: 1. Does the survey satisfy the goal of obtaining a demographic profile of the general ostomy population within the US and Canada? Provide pivot tables and descriptive statistics are required to support the answer. All pivot tables must include n and percent. a.what is the gender distribution of the sample? b.provide descriptive statistics of age of the survey respondent, age by stoma type, and age by gender. c.provide descriptive statistics of the length of time since their surgery. How many of these are less than three years post surgery. d.provide a pivot table of type of stoma by originating diagnosis. Hint: use an Excel function to combine stoma types (Q3_1 thought Q3_5 ) into a single variable. e.provide a pivot table of the frequency of permanent and temporary stomas. f.provide a pivot table of expected and unexpected surgeries. g.provide a pivot table of the respondents current health status. h.provide a pivot tables showing Q9 (How much do you think having a stoma affects your life) by Q10 (Have you adapted to living with a stoma). 2. Where does this sample currently get its health care information? a.Does the sample consider itself well informed about their stoma? Provide a pivot table of Q19. b.Where do they currently get their information? Provide pivot tables of Q22_1 through Q22_4. How many respondents do none of these? c.What is their primary source of new ostomy information? Provide frequencies of Q23_1 through Q23_8. 3. Key health care opinion leaders in a focus group determined that the UON should provide stoma management and support services, support services for complications of stoma management such as hernias and skin irritation or infection, support with ordering stoma management products, counseling in support of stoma management, and support with health insurance related to the stoma. What information do you have that this should be pursued? a.Provide a pivot table of Q24 (The very last time you asked a health care professional about the management of your stoma, did you receive useful information?). b.Provide a pivot table that cross-tabulates Q25 and Q26 (Many health care organizations provide stoma management and support services. If an organization provides health care information and support related to stoma management, how important is this to you? by How satisfied are you with the stoma management and support information you currently receive?) c.Provide pivot tables to determine the importance of Q27 through Q30. d.Provide a pivot table to determine the frequency of those that have sough help via the internet (Q31). Recommendations to the directors of the UON: Flower and the directors are anxiously awaiting your finding on the demographic profile of the general ostomy population within the US and Canada, and whether or not you believe they should proceed with their plans to restructure the website, and if yes, to provide recommendations as how to best do this. There are two attachments to go with this that I can send.

2

>Q

4

Q

5

.5%

.4%

%

%

1

Col%

.6%

.3%

.7%

.3%

Count

2

Col%

.

%

.4

%

Count

6 45

0.0%

.0% 100.0% 100.0%

3

	q5
	q4		Data																																																																																																																																																																																																																																																																																																																																											permanent																																temporary		Grand Total
																																																																																																																																																										cancer					Col%					44			1	9			3																																3.3		4																																																					2.3
					Count		14	7			6	1														54
																																																																																																																																																																					chronic bowel disease						43								61											66						45
	144		19	1									65
																																																																																			other		11	8	19.4%	0.0%			12
	39
	Total Col%									10	100
	Total Count	3				30		31		3																					64

Q

13

Q14

4

Data

t apply

Grand Total

Col%

.0%

%

.7%

.2%

Count

54

1

Col%

.0%

.3%

Count 65

30

3

Total Col% 100.0% 100.0% 100.0% 100.0%

Total Count

71

4

	q1
	q13																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																		No																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																			Yes	Does																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																									no
																																																																																																																																																																																																									Female												62	4													4.3														57									55
	106				41		20
																																																																																																																																																																			Male					38	55.7%			42	44.8%
									68		16
1														71	1	22	36

Data

Q7

Q7

3.6

0.3

0.8

Count

1

Mean	11.1
Standard Error	0.7
Median																	6.3
Mode																																																												0.3
Standard Deviation	1	2.4
Sample Variance		15
Kurtosis	1.6
Skewness	1.5
Range	61.2
Minimum
Maximum		61.5
Sum	3	89
					35

Database

q1

q4 q5

q13

_1

1

colostomy stoma cancer permanent

3.3

No No Female No No

,000

No Yes no no

no

yes

Very important Very important Important

64

2 9/22/07

ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 4.3 I am in very good health

Yes, quite well No No Female No No

No Yes no no yes no

yes Very important

Important

Neither important or unimportant Important yes, within the past 6 months

57

3 9/22/07

urostomy stoma cancer permanent expected (I knew in advance)

Does not affect my life at all Yes, quite well No Yes Male No No

No Yes no no no no

yes Important Neither satisfied or dissatisfied Neither important or unimportant Important Important

5

65

4

ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 3.3 I am in very good health Has greatly affected my life for the better Yes, quite well No Yes Male No No gainfully employed fulltime

,000 and $100,000

No Yes no yes no no from your ostomy retailer magazines or other literature yes Very important Neither satisfied or dissatisfied Very important Very important Important Very important no

5 9/22/07 ileostomy stoma ileostomy stoma other permanent

0.3 Overall, my health is good

No Yes Female Yes

does not apply No Yes no no no no none of the above

Very important

Important Very important Very important

yes, within the past 6 months

32

6

colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No Yes Male Does not apply Does not apply retired, but not due to health

,000

Yes Yes no no yes no the internet Important Neither satisfied or dissatisfied Important Important Very important Important yes, within the past 6 months

9

71

7 9/20/07 colostomy stoma colostomy stoma chronic bowel disease temporary unexpected

Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Female No No retired, but not due to health

No No no no no no none of the above from your ostomy retailer no

Important Important Very important Very important no

8 9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 7.3 Overall, my health is good Does not affect my life at all Yes, quite well No Yes Female No No gainfully employed fulltime

No Yes no yes yes no from your ostomy retailer magazines or other literature yes Very important

Neither important or unimportant Important Important Important no

9 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected

Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Male Yes No retired, but not due to health less than $20,000 No No no yes yes no from your ostomy retailer magazines or other literature no Important Neither satisfied or dissatisfied Important Important Unimportant Important no

8

10 9/20/07 urostomy stoma urostomy stoma other permanent expected (I knew in advance) 2.3 Overall, my health is good

Yes, quite well Yes No Female Does not apply Does not apply

does not apply No Yes no no yes no the internet

Very important Very dissatisfied Very important Very important Very important Very important yes, within the past 6 months 1

3 57

11 9/20/07 colostomy stoma colostomy stoma chronic bowel disease permanent unexpected 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No Yes Male Does not apply Does not apply retired, but not due to health does not apply Yes No yes no yes no

the internet Important Satisfied Neither important or unimportant Important Important Neither important or unimportant yes, but more than 6 months ago

7

93

12

colostomy stoma colostomy stoma cancer permanent unexpected 5.3

Has somewhat had a negative effect on my life Yes, quite well Yes Yes Male Yes Yes my illness does not permit work of any type does not apply Yes Yes no no no no none of the above the internet Very important Very satisfied Important Important Very important Important yes, within the past 6 months

2

13 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected

Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Male No Yes retired, but not due to health does not apply No Yes no no yes no from your ostomy retailer the internet no Very important Satisfied Important Very important Important Important yes, within the past 6 months

2

68

14 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected

I am in very good health Has somewhat had a positive effect on my life Yes, quite well No Yes Female No No gainfully employed, but part time between $40,000 and $60,000 No Yes yes yes no no from your ostomy retailer yes Very important Satisfied Neither important or unimportant Very important Neither important or unimportant Very unimportant no

5

55

15 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 2.3 I am in very good health Has greatly affected my life for the better Yes, quite well No Yes Female No No gainfully employed fulltime between $40,000 and $60,000 No Yes no no yes no I don’t have a source of ostomy information n/a Very important Very satisfied Neither important or unimportant Neither important or unimportant Important Neither important or unimportant no

41

16 9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 5.3 Overall, my health is good Does not affect my life at all Yes, quite well No Yes Female No No gainfully employed fulltime between $20,000 and $40,000 No Yes yes no no yes

yes Very important Satisfied Important Important Very important Important no

17 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

I am in very good health Has somewhat had a negative effect on my life Yes, quite well No Yes Male Yes No gainfully employed, but part time

No Yes no no yes no from your ostomy retailer from an enterostomal therapist/ostomy nurse yes Very important Very satisfied Important Very important Important Very important no

64

18 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 3.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No Yes Female Yes No gainfully employed, but part time between $20,000 and $40,000 Yes Yes no no no no none of the above I don’t have a source of ostomy information n/a Important Neither satisfied or dissatisfied Neither important or unimportant Neither important or unimportant Neither important or unimportant Neither important or unimportant yes, within the past 6 months

35

19 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Overall, my health is good Has greatly affected my life for the better Yes, quite well No Yes Female No No gainfully employed fulltime

No Yes yes yes yes no magazines or other literature an ostomy support group the internet yes Very important Neither satisfied or dissatisfied Neither important or unimportant Neither important or unimportant Very unimportant Unimportant yes, but more than 6 months ago

20 9/20/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 2.3 I am in very good health Does not affect my life at all Yes, quite well No No Male No No gainfully employed fulltime Between $60,000 and $80,000 No Yes no no no no none of the above magazines or other literature yes Important Very satisfied Unimportant Unimportant Unimportant Unimportant yes, within the past 6 months 1946 64

9/20/07 colostomy stoma colostomy stoma chronic bowel disease permanent expected (I knew in advance) I am in very good health Does not affect my life at all Yes, quite well No No Male No No gainfully employed fulltime between $40,000 and $60,000 No Yes no no no no none of the above I don’t have a source of ostomy information n/a Very important Do not receive any Important Important Important Neither important or unimportant no

1

22 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Does not affect my life at all Yes, quite well No No Female Yes No other does not apply No Yes no no no no none of the above I don’t have a source of ostomy information n/a Important Do not receive any Important Very important Important Important no

61

23 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Female Yes No unemployed, but not due to illness does not apply No Yes yes no yes no an ostomy support group the internet no Very important Satisfied Important Very important Neither important or unimportant Important yes, within the past 6 months

48

24 9/20/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 6.3 I am in very good health Has greatly affected my life for the better Yes, quite well No Yes Male No No retired, but not due to health does not apply No Yes no no no no none of the above from your ostomy retailer yes Important Very satisfied Neither important or unimportant Neither important or unimportant Neither important or unimportant Neither important or unimportant no

65

25 9/20/07 colostomy stoma colostomy stoma chronic bowel disease permanent unexpected

Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Male Yes No retired, but not due to health between $20,000 and $40,000 No Yes no no yes no the internet yes, but not to my satisfaction Important

Important Important Important Neither important or unimportant yes, within the past 6 months

26 9/20/07 colostomy stoma colostomy stoma cancer permanent unexpected 2.3 Overall, my health is good

No Yes Male Yes Yes gainfully employed fulltime between $20,000 and $40,000 No Yes no no no no none of the above from your ostomy retailer no Very important Very dissatisfied Very important Very important Very important Very important no 1954 56

27 9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 8.3 I am in very good health Does not affect my life at all Yes, quite well No Yes Female No No gainfully employed, but part time between $20,000 and $40,000 No Yes no no yes no from your ostomy retailer yes Very important Satisfied Very important Important Very important Important no 1946 64
28 9/20/07 colostomy stoma colostomy stoma chronic bowel disease permanent unexpected 6.3 Overall, my health is poor Has somewhat had a positive effect on my life Yes, quite well No Yes Female Does not apply No unemployed, but not due to illness does not apply No Yes yes no no no the internet yes Important Satisfied Important Important Neither important or unimportant Important yes, but more than 6 months ago

54

29 9/20/07

multiple cancer permanent expected (I knew in advance) 7.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Male Yes Yes gainfully employed fulltime between $40,000 and $60,000 No Yes no no yes no I don’t have a source of ostomy information n/a Important Do not receive any Important Important Very important Very important no

43

30

urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 8.3 Overall, my health is good Does not affect my life at all Yes, quite well No No Male No No retired, but not due to health does not apply No Yes no no yes no from your ostomy retailer

no Very important Satisfied Very important Important Neither important or unimportant Neither important or unimportant no

7

31

ileostomy stoma ileostomy stoma chronic bowel disease temporary

Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No No Female Does not apply Does not apply retired, but not due to health does not apply No Yes no no no yes from your ostomy retailer Satisfied Important Very important Important Important no

5

32 9/20/07 colostomy stoma colostomy stoma cancer permanent unexpected 3.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Male Yes Yes my illness does not permit work of any type does not apply No Yes yes no yes yes from an enterostomal therapist/ostomy nurse an ostomy support group the internet yes Very important Satisfied Important Very important Very important Very important yes, within the past 6 months 1956 54

urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No Yes Male Yes No gainfully employed fulltime

No No no no no no none of the above

yes, but not to my satisfaction Very important Neither satisfied or dissatisfied Very important Very important Important Neither important or unimportant no

34 9/20/07 ileostomy stoma ileostomy stoma other permanent expected (I knew in advance) 3.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, somewhat No Yes Female Yes Does not apply retired, but not due to health does not apply Yes No no no yes no magazines or other literature no Very important Satisfied Very important Very important Very important Very important no

69

35 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Overall, my health is good Has greatly affected my life for the worse Yes, quite well No Yes Male Yes Yes gainfully employed, but part time less than $20,000 yes no no no from your ostomy retailer yes Neither important or unimportant Very satisfied Neither important or unimportant Important Important Important no 1946 64

36 9/20/07 ileostomy stoma ileostomy stoma cancer permanent unexpected 3.3 I am in very good health Has greatly affected my life for the better Yes, quite well No No Female No No gainfully employed, but part time less than $20,000 No no no no no none of the above from your ostomy retailer yes, but not to my satisfaction Very important Satisfied Very important Very important Very important Important no

2

38

37 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected

Overall, my health is good Has greatly affected my life for the better Yes, quite well No Yes Female No No gainfully employed fulltime between $20,000 and $40,000 No Yes no no no no none of the above the internet yes Very important Very satisfied Very important Neither important or unimportant Very important Neither important or unimportant yes, within the past 6 months 1967 43

38 9/20/07 colostomy stoma colostomy stoma chronic bowel disease temporary unexpected 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No Yes Male Yes No unemployed, but not due to illness No Yes no no no no none of the above from an enterostomal therapist/ostomy nurse your doctor yes Important Neither satisfied or dissatisfied Important Important Very important Neither important or unimportant yes, within the past 6 months

59

39 9/20/07 urostomy stoma urostomy stoma other permanent expected (I knew in advance)

Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Male Yes Does not apply other does not apply No Yes no no no no none of the above magazines or other literature no Very important Very satisfied Very important Very important Very important Very important no

62

40 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease temporary expected (I knew in advance) 9.3 Overall, my health is good Does not affect my life at all Yes, quite well No No Male No No

does not apply No Yes no no no no none of the above I don’t have a source of ostomy information n/a Neither important or unimportant Do not receive any Neither important or unimportant Important Neither important or unimportant Neither important or unimportant no 1941 69

41 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Male Yes Does not apply retired, but not due to health does not apply No Yes no no no no none of the above the internet no Important Satisfied Important Very important Very important Very important yes, but more than 6 months ago

42 9/20/07 colostomy stoma colostomy stoma cancer permanent unexpected 0.3 Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Female Does not apply Does not apply retired, but not due to health does not apply No Yes no no no no none of the above from your ostomy retailer from an enterostomal therapist/ostomy nurse the internet yes, but not to my satisfaction Very important Satisfied Very important Very important Very important Very important yes, within the past 6 months

43 9/20/07 colostomy stoma colostomy stoma cancer temporary unexpected 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well Yes Yes Male No No gainfully employed fulltime greater than $100,000 No Yes no no no no none of the above the internet yes Very important Satisfied Important Very important Very important Very important yes, within the past 6 months

58

44 9/20/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Female No No gainfully employed fulltime greater than $100,000 No No no no yes no from your ostomy retailer yes, but not to my satisfaction Neither important or unimportant Neither satisfied or dissatisfied Important Very important Neither important or unimportant Important no

45 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 39.4 I am in very good health Has greatly affected my life for the better Yes, quite well No Yes Male No No retired, but not due to health does not apply No Yes no no no no none of the above Very important Satisfied Neither important or unimportant Very important Important Very important no

46 9/20/07 colostomy stoma colostomy stoma chronic bowel disease permanent unexpected

I am in very good health Does not affect my life at all Yes, quite well No No Female No No gainfully employed fulltime between $40,000 and $60,000 No Yes no no no no none of the above from your ostomy retailer from an enterostomal therapist/ostomy nurse yes Neither important or unimportant Satisfied Neither important or unimportant Neither important or unimportant Important Neither important or unimportant no

68

47 9/20/07 colostomy stoma colostomy stoma chronic bowel disease permanent expected (I knew in advance) 2.3 Overall, my health is poor Has somewhat had a positive effect on my life Yes, somewhat Yes Yes Female Does not apply Does not apply my illness does not permit work of any type does not apply No Yes no yes yes no magazines or other literature yes, but not to my satisfaction Very important Satisfied Important Very important Very important Important no

60

48 9/20/07 colostomy stoma colostomy stoma chronic bowel disease unexpected 0.3 Overall, my health is good Has greatly affected my life for the worse Not at all No No Female Does not apply Does not apply retired, but not due to health does not apply No No no no no no none of the above I don’t have a source of ostomy information no Do not receive any Very important Very important Very important Very important no

83

49 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 2.3 I am in very good health Does not affect my life at all Yes, quite well No No Male No No gainfully employed fulltime Between $80,000 and $100,000 No Yes no yes yes no from your ostomy retailer magazines or other literature the internet no Very important Very satisfied Very important Very important Neither important or unimportant Very important yes, but more than 6 months ago 1956 54
50 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected

Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No No Male Yes Does not apply gainfully employed fulltime greater than $100,000 No No no no no no none of the above from your ostomy retailer I don’t have a source of ostomy information no Very important Do not receive any Important Important Neither important or unimportant Important no 1946 64

51 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease temporary expected (I knew in advance) 0.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well No Yes Male Yes No gainfully employed fulltime between $20,000 and $40,000 No Yes no yes yes no the internet yes Very important Neither satisfied or dissatisfied Very important Very important Very important Important yes, within the past 6 months

0

30

52 9/20/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 5.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, quite well No Yes Female Does not apply Does not apply retired, but not due to health does not apply Yes Yes no no no no none of the above I don’t have a source of ostomy information n/a Important Do not receive any Important Unimportant Neither important or unimportant Neither important or unimportant no 1927 83
53 9/20/07 colostomy stoma colostomy stoma cancer temporary unexpected 3.3 I am in very good health Has somewhat had a negative effect on my life Yes, quite well No Yes Male Does not apply Yes other does not apply Yes Yes no no no no none of the above I don’t have a source of ostomy information n/a Very important Do not receive any Neither important or unimportant Very important Neither important or unimportant Unimportant no

66

54 colostomy stoma colostomy stoma chronic bowel disease temporary expected (I knew in advance) 3.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Female Does not apply Does not apply my illness does not permit work of any type does not apply No Yes no no yes no magazines or other literature yes Very important Dissatisfied Very important Very important Very important Very important no

73

55 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected

I am in very good health Has somewhat had a negative effect on my life Yes, quite well No Yes Female Yes No gainfully employed fulltime between $40,000 and $60,000 No Yes no no no no none of the above the internet Very important Dissatisfied Important Neither important or unimportant Neither important or unimportant Neither important or unimportant yes, within the past 6 months

50

56 9/20/07 colostomy stoma colostomy stoma chronic bowel disease temporary unexpected 2.3 Overall, my health is good Has greatly affected my life for the worse Yes, somewhat Yes Yes Female Does not apply Does not apply my illness does not permit work of any type does not apply No Yes no no yes no from your ostomy retailer yes Very important Dissatisfied Very important Very important Very important Very important no 1951 59
57 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Overall, my health is poor Has somewhat had a negative effect on my life Yes, quite well No No Female No Does not apply gainfully employed fulltime between $20,000 and $40,000 No No no no no no none of the above I don’t have a source of ostomy information n/a Very important Do not receive any Important Very important Very important Very important no

52

58 9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 0.3 Overall, my health is good Does not affect my life at all Yes, quite well Yes Yes Female Does not apply Does not apply other does not apply No Yes no no no no none of the above from your ostomy retailer the internet yes Very important Satisfied Important Very important Very important Very important yes, but more than 6 months ago 1942 68
59 9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 3.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Female Yes No other does not apply No Yes no no no no none of the above from your ostomy retailer your doctor the internet yes Very important Satisfied Very important Very important Important Very important yes, within the past 6 months

53

60 9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 3.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Female No No gainfully employed fulltime Between $60,000 and $80,000 No Yes yes no yes no from your ostomy retailer magazines or other literature an ostomy support group the internet yes, but not to my satisfaction Very important Satisfied Important Very important Very important Important yes, within the past 6 months 1957 53
61 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease expected (I knew in advance)

Overall, my health is good Female Yes No doing volunteer work does not apply No Yes no yes no no magazines or other literature no Important Very satisfied Neither important or unimportant Very important Very important Neither important or unimportant no 1941 69

62 9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 6.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Female No No gainfully employed fulltime between $40,000 and $60,000 No Yes no no yes no the internet yes Very important Satisfied Important Important Very important Important yes, within the past 6 months 1946 64
63 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 3.3 I am in very good health Has somewhat had a positive effect on my life Yes, quite well Yes Yes Male Yes No gainfully employed fulltime less than $20,000 Yes No no no no no none of the above the internet Important Satisfied Neither important or unimportant Very important Unimportant Very important yes, within the past 6 months

60

64 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 0.3 I am in very good health Has somewhat had a positive effect on my life Yes, quite well Yes No Male No No gainfully employed fulltime between $20,000 and $40,000 No Yes no no no no none of the above the internet yes Very important Satisfied Very important Very important Neither important or unimportant Neither important or unimportant yes, within the past 6 months

2 38

65 9/20/07 colostomy stoma colostomy stoma other permanent unexpected 5.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Female Does not apply Does not apply doing volunteer work does not apply No Yes no no no no none of the above from your ostomy retailer yes Very important Very satisfied Very important Very important Very important Very important no 1946 64
66 colostomy stoma colostomy stoma other permanent expected (I knew in advance)

Overall, my health is poor Has somewhat had a negative effect on my life Yes, quite well Yes Yes Male No No other does not apply No Yes no no no no none of the above from your ostomy retailer yes Neither important or unimportant Neither satisfied or dissatisfied Neither important or unimportant Unimportant Unimportant Important no 1950 60

67 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 5.3 Overall, my health is good Has greatly affected my life for the better Yes, somewhat No No Female Yes Yes other does not apply No Yes no no yes no the internet no Very important Neither satisfied or dissatisfied Very important Very important Very important Very important yes, within the past 6 months 1956 54
68 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 24.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well Yes No Female No No gainfully employed, but part time Between $60,000 and $80,000 No Yes no no no no none of the above from your ostomy retailer the internet yes Very important Neither satisfied or dissatisfied Important Very important Very important Neither important or unimportant yes, but more than 6 months ago

45

69 9/20/07 multiple multiple cancer permanent expected (I knew in advance) 3.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Male Yes Yes other does not apply No Yes no yes no no the internet yes, but not to my satisfaction Very important Very dissatisfied Very important Neither important or unimportant Unimportant Neither important or unimportant yes, within the past 6 months

71

70 9/20/07 colostomy stoma colostomy stoma chronic bowel disease permanent unexpected 0.3 Overall, my health is poor Has greatly affected my life for the worse Not at all No Yes Female Yes No gainfully employed, but part time between $20,000 and $40,000 No No no no no no none of the above I don’t have a source of ostomy information no Very important Do not receive any Very important Very important Very important Very important no

63

71 9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Male Yes Yes my illness does not permit work of any type does not apply No Yes no no no no none of the above from your ostomy retailer Very important Neither satisfied or dissatisfied Important Important Very important Neither important or unimportant no 1950 60
72 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No Yes Male No No gainfully employed fulltime between $20,000 and $40,000 No Yes no no no no none of the above I don’t have a source of ostomy information yes Very important Do not receive any Very important Very important Important Very important no

49

73 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 14.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well Yes Yes Female Yes No other does not apply No Yes no yes yes no from your ostomy retailer from an enterostomal therapist/ostomy nurse magazines or other literature the internet yes Important Satisfied Neither important or unimportant Neither important or unimportant Neither important or unimportant Important yes, within the past 6 months

40

74 9/22/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected

Overall, my health is good Has greatly affected my life for the better Yes, quite well Yes Yes Female No No retired, but not due to health between $20,000 and $40,000 No Yes no yes no no from your ostomy retailer yes, but not to my satisfaction Very important Satisfied Very important Very important Very important Important no 1940 70

75 colostomy stoma colostomy stoma chronic bowel disease permanent expected (I knew in advance) 0.3 Overall, my health is poor Has somewhat had a positive effect on my life Yes, somewhat Yes Yes Female Yes Does not apply gainfully employed, but part time between $20,000 and $40,000 No Yes no yes yes yes from an enterostomal therapist/ostomy nurse your doctor your doctor’s nurse yes Very important Satisfied Important Very important Very important Very important yes, within the past 6 months

42

76 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 12.3 I am in very poor health Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Female Does not apply Does not apply my illness does not permit work of any type does not apply No Yes no no no no none of the above I don’t have a source of ostomy information n/a Very important Dissatisfied Important Very important Very important Very important no 1927 83
77 9/20/07 ileostomy stoma ileostomy stoma cancer permanent expected (I knew in advance) 4.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, quite well No Yes Male Does not apply Does not apply retired, but not due to health does not apply Yes Yes no no no no none of the above the internet no Neither important or unimportant Very satisfied Neither important or unimportant Important Unimportant Very important yes, within the past 6 months 1924 86
78

ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 24.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, quite well No No Female Yes Does not apply other less than $20,000 No Yes no no yes no from your ostomy retailer your doctor the internet yes Very important Neither satisfied or dissatisfied Very important Very important Very important Very important yes, within the past 6 months 1947 63

9/20/07 multiple multiple other permanent expected (I knew in advance) 3.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No Yes Male Does not apply Does not apply retired, but not due to health does not apply Yes Yes no no no yes your doctor’s nurse yes, but not to my satisfaction Very important Very dissatisfied Very important Very important Very important Very important no

80 9/20/07 urostomy stoma urostomy stoma other permanent expected (I knew in advance) 0.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well Yes Yes Female No Does not apply other does not apply No Yes no no no no none of the above your doctor yes, but not to my satisfaction Very important Very satisfied Very important Very important Very important Very important yes, within the past 6 months 1954 56
81 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 32.4 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Male Does not apply Does not apply gainfully employed fulltime between $40,000 and $60,000 No Yes no no no no none of the above I don’t have a source of ostomy information no Neither important or unimportant Do not receive any Important Very important Neither important or unimportant Important no 1957 53

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 8.3 I am in very good health Has somewhat had a positive effect on my life Yes, quite well No Yes Female No No gainfully employed fulltime between $40,000 and $60,000 No Yes no no yes no magazines or other literature yes Important Satisfied Neither important or unimportant Very unimportant Very unimportant Very unimportant no

76

83 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 3.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat Yes No Female Yes No retired, but not due to health between $20,000 and $40,000 No Yes yes no yes no magazines or other literature an ostomy support group yes Important Satisfied Important Important Important Important yes, within the past 6 months

72

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 0.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well Yes No Female No No gainfully employed fulltime between $20,000 and $40,000 No Yes no no no no none of the above the internet Very important Satisfied Very important Very important Very important Very important yes, within the past 6 months

47

85 9/20/07 colostomy stoma colostomy stoma cancer permanent unexpected 11.3 I am in very good health Does not affect my life at all Yes, quite well No No Female No No doing volunteer work does not apply No Yes no no no no none of the above I don’t have a source of ostomy information Neither important or unimportant Do not receive any Neither important or unimportant Important Neither important or unimportant Neither important or unimportant no 1939 71
86 9/20/07 colostomy stoma colostomy stoma cancer permanent unexpected 8.3 I am in very good health Has greatly affected my life for the worse Yes, somewhat No Yes Male Yes No gainfully employed, but part time less than $20,000 No Yes yes no yes no the internet yes, but not to my satisfaction Very important Neither satisfied or dissatisfied Very important Very important Very important Very important yes, within the past 6 months 1936 74

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance)

Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Male No No gainfully employed, but part time less than $20,000 No Yes yes no no no an ostomy support group yes Very important Very satisfied Very important Very important Important Important no 1944 66

9/20/07 colostomy stoma colostomy stoma other temporary unexpected 4.3 Overall, my health is poor Has greatly affected my life for the worse Yes, somewhat Yes Yes Female Does not apply Does not apply other less than $20,000 No No no no yes no the internet yes, but not to my satisfaction Very important Satisfied Very important Very important Very important Very important yes, within the past 6 months 1962 48

89 9/20/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Male No No gainfully employed fulltime between $40,000 and $60,000 No Yes no no no no none of the above magazines or other literature yes Very important Very satisfied Important Very important Important Neither important or unimportant yes, within the past 6 months

75

9/20/07 colostomy stoma colostomy stoma cancer permanent unexpected 0.3 Overall, my health is good Does not affect my life at all Yes, quite well Yes No Female Does not apply Does not apply unemployed, but not due to illness does not apply No No no no no no none of the above from your ostomy retailer the internet yes Very important Satisfied Important Very important Very important Important yes, within the past 6 months 1949 61

91 9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No Yes Male Does not apply Does not apply retired, but not due to health does not apply No Yes no no no no none of the above I don’t have a source of ostomy information n/a Very important Do not receive any Important Very important Very important Very important yes, but more than 6 months ago 1939 71
92 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 0.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well No Yes Male Yes Does not apply retired, but not due to health between $20,000 and $40,000 No Yes no no yes no I don’t have a source of ostomy information n/a Do not receive any Unimportant Important Important Neither important or unimportant yes, but more than 6 months ago

80

93 9/20/07 ileostomy stoma ileostomy stoma other permanent unexpected 8.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Female Does not apply Does not apply other does not apply No Yes no no yes no the internet yes, but not to my satisfaction Very important Dissatisfied Very important Very important Neither important or unimportant Neither important or unimportant yes, within the past 6 months 1948 62
94 9/20/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 0.3 I am in very good health Does not affect my life at all Yes, quite well No Yes Male No No retired, but not due to health does not apply No Yes no no no no none of the above I don’t have a source of ostomy information yes Important Do not receive any Important Unimportant Very unimportant Very unimportant yes, within the past 6 months 1940 70
95 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 16.3 I am in very good health Has greatly affected my life for the better Yes, quite well No No Female No No gainfully employed fulltime between $20,000 and $40,000 No Yes no no no no none of the above from your ostomy retailer the internet Neither important or unimportant Neither satisfied or dissatisfied Neither important or unimportant Very important Neither important or unimportant Very important yes, within the past 6 months 1961 49
96 9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 29.3 Overall, my health is good Does not affect my life at all Yes, quite well No No Male No No retired, but not due to health between $40,000 and $60,000 No Yes no no no no none of the above I don’t have a source of ostomy information n/a Neither important or unimportant Do not receive any Unimportant Important Neither important or unimportant Neither important or unimportant no 1939 71
97 9/20/07 colostomy stoma colostomy stoma chronic bowel disease temporary expected (I knew in advance) 0.3 I am in very good health Has greatly affected my life for the better Yes, quite well No No Female No No gainfully employed fulltime between $40,000 and $60,000 No Yes no no no no none of the above your doctor’s nurse the internet yes Very important Satisfied Important Important Neither important or unimportant Important yes, within the past 6 months

46

98 9/20/07 colostomy stoma colostomy stoma other permanent unexpected 6.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, somewhat No Yes Female Yes No retired, but not due to health does not apply No Yes no no no no none of the above the internet yes Very important Neither satisfied or dissatisfied Neither important or unimportant Neither important or unimportant Neither important or unimportant yes, within the past 6 months 1941 69

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 19.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well No No Female No No retired, but not due to health does not apply No Yes yes no no no magazines or other literature yes Very important Satisfied Very important Important Neither important or unimportant Neither important or unimportant no 1937 73

100 9/20/07 colostomy stoma colostomy stoma cancer temporary unexpected 5.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Male Yes No gainfully employed fulltime between $40,000 and $60,000 No Yes no no no no none of the above I don’t have a source of ostomy information n/a Important Do not receive any Neither important or unimportant Neither important or unimportant Important Important no 1957 53

ileostomy stoma ileostomy stoma cancer permanent unexpected

Overall, my health is good Does not affect my life at all Yes, quite well No Yes Male No Does not apply retired, but not due to health does not apply No Yes no no no no none of the above yes Neither important or unimportant Satisfied Neither important or unimportant Very important no

84

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 0.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No No Male No No other less than $20,000 No Yes no no yes no magazines or other literature yes Very important Neither satisfied or dissatisfied Important Very important Very important Important yes, within the past 6 months

78

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 6.3 Overall, my health is good Has greatly affected my life for the better Yes, somewhat No Yes Female No No gainfully employed, but part time less than $20,000 No Yes no no no no none of the above from your ostomy retailer yes Very important Neither satisfied or dissatisfied Very important Neither important or unimportant Unimportant Unimportant no 1970 40

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 19.3 I am in very good health Does not affect my life at all Yes, quite well No No Female No No retired, but not due to health does not apply No Yes no yes no no from your ostomy retailer yes Neither important or unimportant Neither satisfied or dissatisfied Neither important or unimportant Neither important or unimportant Neither important or unimportant Neither important or unimportant no 1939 71

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 9.3 Overall, my health is good Does not affect my life at all Yes, quite well No No Female Does not apply Does not apply retired, but not due to health does not apply No Yes no no yes no from your ostomy retailer no Neither important or unimportant Very satisfied Neither important or unimportant Neither important or unimportant Neither important or unimportant Important no 1933 77

106 9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 24.3 I am in very good health Has somewhat had a negative effect on my life Yes, quite well No Yes Male No No retired, but not due to health does not apply No Yes no no yes no magazines or other literature yes Important Very satisfied Neither important or unimportant Important Very important Important no 1933 77

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected

Overall, my health is good Has greatly affected my life for the better Yes, quite well No Yes Female No No retired, but not due to health does not apply No Yes no no no no none of the above from your ostomy retailer yes Very important Very important Very important Very important no 1939 71

9/20/07 urostomy stoma urostomy stoma other permanent expected (I knew in advance) 39.4 Overall, my health is good Has greatly affected my life for the better Yes, quite well No No Female No No unemployed, but not due to illness does not apply No No no no no no none of the above I don’t have a source of ostomy information no Very important Do not receive any Unimportant Important Unimportant Neither important or unimportant yes, within the past 6 months

57

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 18.3 Overall, my health is good Does not affect my life at all Yes, quite well Yes Yes Female No No gainfully employed, but part time less than $20,000 No Yes no no no no none of the above from your ostomy retailer yes Very important Very satisfied Very important Very important Important Neither important or unimportant no 1965 45

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 5.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Male Yes Does not apply other does not apply No Yes no no no no none of the above Very important Very dissatisfied Very important Very important Very important Very important no 1946 64

9/20/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is good Does not affect my life at all Yes, quite well Yes No Male Does not apply Does not apply retired, but not due to health does not apply No Yes yes no no no an ostomy support group yes Important Satisfied Important Very important Neither important or unimportant Important no 1935 75

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 40.4 I am in very good health Has greatly affected my life for the better Yes, quite well No Yes Male No No retired, but not due to health does not apply No Yes no no yes no magazines or other literature the internet Very important Very satisfied Very important Important Neither important or unimportant Unimportant no 1939 71

9/20/07 ileostomy stoma ileostomy stoma cancer permanent unexpected 13.3 Overall, my health is good Does not affect my life at all Yes, quite well No No Male Yes Yes other less than $20,000 No Yes no no no no none of the above from your ostomy retailer yes Important Satisfied Neither important or unimportant Important Neither important or unimportant Important no 1929 81

9/20/07 multiple multiple cancer permanent expected (I knew in advance) 29.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Female No Does not apply retired, but not due to health does not apply No Yes no no no no none of the above your doctor the internet yes, but not to my satisfaction Very important Neither satisfied or dissatisfied Very important Very important Very important Important no 1941 69

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 3.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well Yes No Female Does not apply Does not apply unemployed, but not due to illness does not apply No Yes no no no no none of the above from your ostomy retailer no Very important Satisfied Important Very important Very important Important yes, within the past 6 months 1956 54

colostomy stoma colostomy stoma cancer permanent unexpected 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well Yes Yes Male Does not apply No retired, but not due to health Yes Yes no no no no none of the above your doctor your doctor’s nurse the internet yes, but not to my satisfaction Important Satisfied Important Very important Important Important yes, within the past 6 months 1943 67

9/20/07 colostomy stoma colostomy stoma other permanent unexpected 3.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well Yes Yes Female Does not apply Does not apply other does not apply No Yes no no no no none of the above from your ostomy retailer yes Very important Very satisfied Neither important or unimportant Very important Very important Unimportant yes, within the past 6 months 1963 47

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 12.3 Overall, my health is good Does not affect my life at all Yes, quite well No Yes Female Yes No gainfully employed fulltime between $40,000 and $60,000 No Yes no no yes no the internet yes Important Satisfied Neither important or unimportant Very important Very important Very important yes, within the past 6 months 1950 60

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 21.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, somewhat Yes No Female Yes Yes other between $20,000 and $40,000 No Yes no no yes no the internet yes, but not to my satisfaction Very important Neither satisfied or dissatisfied Very important Very important Very important Important yes, within the past 6 months 1953 57

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 3.3 Overall, my health is poor Has greatly affected my life for the better Yes, quite well No Yes Female Does not apply Does not apply retired, but not due to health does not apply No Yes yes yes no no magazines or other literature an ostomy support group the internet yes Important Very satisfied Important Important Very important Important yes, within the past 6 months 1930 80

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 5.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Female No No gainfully employed, but part time does not apply No Yes no no no no none of the above from your ostomy retailer yes, but not to my satisfaction Very important Neither satisfied or dissatisfied Important Important Important Important no 1950 60

9/20/07 ileostomy stoma ileostomy stoma cancer permanent expected (I knew in advance) 0.3 I am in very good health Has somewhat had a positive effect on my life Yes, quite well No Yes Male No No gainfully employed fulltime greater than $100,000 No Yes no no no no none of the above the internet yes Very important Satisfied Very important Important Important Important yes, within the past 6 months

44

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 3.3 I am in very good health Does not affect my life at all Yes, quite well Yes Yes Male No No retired, but not due to health between $20,000 and $40,000 No Yes no no yes no magazines or other literature the internet Important Satisfied Neither important or unimportant Important Important Important yes, within the past 6 months 1947 63

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 2.3 I am in very good health Does not affect my life at all Yes, quite well No Yes Female No No gainfully employed fulltime less than $20,000 No Yes no no no no none of the above from an enterostomal therapist/ostomy nurse yes Very important Satisfied Very important Very important Important Very important no 1947 63

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 4.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Male No No gainfully employed, but part time does not apply No Yes no no no no none of the above your doctor yes Very important Very satisfied Very important Important Important Important yes, within the past 6 months 1941 69

9/19/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 0.3 I am in very good health Does not affect my life at all Yes, quite well No Yes Male Does not apply Does not apply retired, but not due to health does not apply No Yes yes no no no from your ostomy retailer from an enterostomal therapist/ostomy nurse your doctor’s nurse magazines or other literature an ostomy support group the internet yes Neither important or unimportant Very satisfied Unimportant Important Unimportant Important yes, within the past 6 months

79

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No No Female No No gainfully employed, but part time less than $20,000 No Yes no yes no no magazines or other literature yes Very important Satisfied Important Important Very important Neither important or unimportant no 1952 58

9/20/07 colostomy stoma colostomy stoma other permanent unexpected 4.3 Overall, my health is good Has greatly affected my life for the worse Yes, somewhat Yes Yes Male Yes No other does not apply Yes Yes no no no no none of the above I don’t have a source of ostomy information no Very important Very dissatisfied Very important Very important Very important Very important no 1941 69

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Overall, my health is good Does not affect my life at all Yes, quite well No No Male No No retired, but not due to health does not apply No Yes no no no no none of the above from your ostomy retailer no Important Very satisfied Neither important or unimportant Neither important or unimportant Neither important or unimportant Neither important or unimportant no

87

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 6.3 I am in very good health Does not affect my life at all Yes, quite well No Yes Female No No retired, but not due to health does not apply No Yes no no yes no from your ostomy retailer magazines or other literature the internet yes Very important Very satisfied Very important Neither important or unimportant Neither important or unimportant Neither important or unimportant yes, within the past 6 months 1944 66

9/19/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Female Yes Yes retired, but not due to health does not apply No No no no no no none of the above I don’t have a source of ostomy information yes Very important Do not receive any Very important Very important Very important Very important no 1953 57

9/20/07 ileostomy stoma ileostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well Yes Yes Female No No my illness does not permit work of any type does not apply No Yes no no yes yes the internet yes Very important Neither satisfied or dissatisfied Very important Very important Very important Very important yes, within the past 6 months 1962 48

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Overall, my health is good Has greatly affected my life for the better Yes, quite well Yes Yes Male No No gainfully employed fulltime greater than $100,000 No Yes yes yes yes no magazines or other literature an ostomy support group the internet Important Satisfied Neither important or unimportant Unimportant Unimportant Neither important or unimportant yes, within the past 6 months 1947 63

9/20/07 ileostomy stoma ileostomy stoma other permanent expected (I knew in advance) 8.3 Overall, my health is good Does not affect my life at all Yes, quite well No Yes Female Yes No other does not apply No Yes no no no no none of the above I don’t have a source of ostomy information yes Very important Do not receive any Very important Important Very important Important no 1964 46

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 27.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well Yes No Male No No my illness does not permit work of any type does not apply No Yes no no yes no no Important Very satisfied Neither important or unimportant Very important Important Important no 1963 47

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 16.3 I am in very good health Has greatly affected my life for the better Yes, quite well No Yes Female No No gainfully employed, but part time between $20,000 and $40,000 No Yes yes yes yes yes an ostomy support group yes, but not to my satisfaction Very important Very satisfied Very important Neither important or unimportant Important Neither important or unimportant no

35

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected

Overall, my health is poor Has somewhat had a negative effect on my life Yes, quite well No No Female No No retired, but not due to health between $20,000 and $40,000 No Yes yes no yes no from your ostomy retailer your doctor magazines or other literature an ostomy support group the internet no Very important Very satisfied Neither important or unimportant Important Important Important yes, within the past 6 months 1934 76

9/21/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 28.3 Overall, my health is good Does not affect my life at all Yes, quite well No No Female Yes Yes my illness does not permit work of any type does not apply No No no no no no none of the above I don’t have a source of ostomy information no Very important Dissatisfied Neither important or unimportant Important Neither important or unimportant Neither important or unimportant no 1949 61

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Has greatly affected my life for the better Yes, quite well No Yes Female Does not apply No retired, but not due to health does not apply No Yes yes yes no yes from your ostomy retailer from an enterostomal therapist/ostomy nurse magazines or other literature yes Important Satisfied Neither important or unimportant Neither important or unimportant Neither important or unimportant no 1926 84

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 0.3 Overall, my health is good Does not affect my life at all Yes, quite well Yes No Female No No gainfully employed, but part time Between $60,000 and $80,000 No Yes no no no no none of the above the internet yes Very important Satisfied Very important Neither important or unimportant Important Neither important or unimportant yes, within the past 6 months 1951 59

9/20/07 ileostomy stoma ileostomy stoma other permanent expected (I knew in advance) 2.3 I am in very good health Does not affect my life at all Yes, quite well No No Female Yes No gainfully employed fulltime greater than $100,000 No Yes no no no no none of the above the internet no Very important Very satisfied Important Neither important or unimportant Neither important or unimportant Important yes, within the past 6 months 1946 64

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 2.3 Overall, my health is good Has greatly affected my life for the worse Yes, quite well Yes No Female Yes No unemployed, but not due to illness does not apply No Yes no no no no none of the above the internet yes Very important Dissatisfied Very important Neither important or unimportant Neither important or unimportant Neither important or unimportant yes, within the past 6 months 1966 44

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 6.3 Overall, my health is good Does not affect my life at all Yes, quite well No Yes Female Does not apply Does not apply retired, but not due to health does not apply No Yes no yes yes no from your ostomy retailer yes Important Very satisfied Important Important Very important Very important yes, within the past 6 months 1936 74

144 9/20/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 8.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Male Yes No gainfully employed fulltime between $20,000 and $40,000 No Yes no no no no none of the above I don’t have a source of ostomy information yes Very important Do not receive any Important Important Neither important or unimportant Important no 1939 71

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

I am in very good health Has greatly affected my life for the better Yes, quite well No No Female No No gainfully employed, but part time between $20,000 and $40,000 No Yes no no no no none of the above I don’t have a source of ostomy information no Important Do not receive any Neither important or unimportant Very important Very important Very important no 1947 63

9/20/07 colostomy stoma colostomy stoma other permanent unexpected 7.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, somewhat No Yes Male Does not apply Does not apply my illness does not permit work of any type does not apply Yes Yes no no no no none of the above from your ostomy retailer Very important Satisfied Neither important or unimportant Very important Important Neither important or unimportant no 1934 76

ileostomy stoma ileostomy stoma other permanent unexpected 4.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Female Does not apply No other less than $20,000 No Yes no no yes no magazines or other literature Important Satisfied Important Very important Very important no 1941 69

colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Female No No retired, but not due to health does not apply No Yes no no no no none of the above I don’t have a source of ostomy information yes Important Do not receive any Important Important Very important Important no 1935 75

9/20/07 ileostomy stoma ileostomy stoma cancer permanent unexpected 2.3 Overall, my health is good Has greatly affected my life for the worse Yes, somewhat No Yes Male Yes No retired, but not due to health does not apply Yes Yes no no yes no from your ostomy retailer yes Important Neither satisfied or dissatisfied Important Very important Important Important no 1936 74

9/20/07 colostomy stoma colostomy stoma cancer permanent unexpected 3.3 Overall, my health is good Does not affect my life at all Yes, quite well No No Male No No retired, but not due to health does not apply No Yes no no yes no magazines or other literature the internet no Important Satisfied Important Important Important Important yes, within the past 6 months 1927 83

9/20/07 ileostomy stoma ileostomy stoma other permanent expected (I knew in advance) 7.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Female No No gainfully employed, but part time less than $20,000 No Yes no no no no none of the above from your ostomy retailer yes, but not to my satisfaction Very important Dissatisfied Very important Very important Important Important no 1943 67

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 16.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well No Yes Female No Does not apply retired, but not due to health does not apply No Yes no no no no none of the above from your ostomy retailer yes Very unimportant Very satisfied Very unimportant Very important Neither important or unimportant Very unimportant no 1937 73

9/20/07 colostomy stoma colostomy stoma other temporary unexpected 2.3 Overall, my health is good Has greatly affected my life for the worse Yes, somewhat No No Male Yes No gainfully employed fulltime Between $80,000 and $100,000 No Yes no no no no none of the above the internet yes, but not to my satisfaction Very important Satisfied Neither important or unimportant Important Important Important yes, within the past 6 months 1949 61

multiple multiple cancer permanent expected (I knew in advance) 8.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, quite well No Yes Female Does not apply Does not apply my illness does not permit work of any type does not apply No Yes no no no no none of the above from your ostomy retailer no Very important Very satisfied Very important Very important Very important Very important no 1934 76

9/20/07 ileostomy stoma ileostomy stoma cancer permanent expected (I knew in advance) 0.3 I am in very good health Has somewhat had a negative effect on my life Yes, quite well No Yes Female No No gainfully employed fulltime between $40,000 and $60,000 No Yes no no yes no from your ostomy retailer yes Very important Very satisfied Very important Very important Very important Very important yes, within the past 6 months 1948 62

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well Yes Yes Male Yes Does not apply my illness does not permit work of any type less than $20,000 No Yes no no yes no from your ostomy retailer magazines or other literature yes, but not to my satisfaction Very important Neither satisfied or dissatisfied Very important Very important Very important Neither important or unimportant yes, within the past 6 months 1948 62

9/20/07 colostomy stoma colostomy stoma cancer permanent unexpected 6.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well Yes No Female Yes Yes gainfully employed, but part time less than $20,000 No Yes no yes no no magazines or other literature the internet yes Very important Satisfied Very important Very important Very important Very important no

51

9/20/07 colostomy stoma colostomy stoma chronic bowel disease temporary unexpected 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Male Yes No gainfully employed fulltime between $40,000 and $60,000 No Yes no no no no none of the above from an enterostomal therapist/ostomy nurse no Important Satisfied Important Very important Important Very important no 1958 52

9/19/07 multiple multiple cancer permanent unexpected Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No Yes Female Does not apply Does not apply my illness does not permit work of any type does not apply No Yes no no yes no the internet yes Important Dissatisfied Important Very important Important yes, within the past 6 months 1940 70

9/19/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Female Does not apply Does not apply retired, but not due to health does not apply No Yes no no no no none of the above the internet yes Important Neither satisfied or dissatisfied Important Very important Very important Important yes, within the past 6 months 1930 80

9/20/07 ileostomy stoma ileostomy stoma cancer permanent unexpected 13.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No Yes Female Does not apply No retired, but not due to health does not apply No Yes no no yes no none of the above from an enterostomal therapist/ostomy nurse Important Neither satisfied or dissatisfied Important Very important Very important Very important yes, within the past 6 months 1941 69

9/20/07 colostomy stoma colostomy stoma chronic bowel disease temporary unexpected 2.3 I am in very good health Has somewhat had a negative effect on my life Yes, somewhat No Yes Female No Yes gainfully employed fulltime between $20,000 and $40,000 No Yes no no yes no from your ostomy retailer yes Very important Satisfied Very important Very important Very important Very important yes, within the past 6 months 1957 53

9/21/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 26.3 Overall, my health is good Does not affect my life at all Yes, quite well No No Female Does not apply Does not apply retired, but not due to health does not apply No Yes no no no no none of the above I don’t have a source of ostomy information yes Very important Do not receive any Very important Very important Very important Neither important or unimportant no 1953 57

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 3.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No Yes Male No No gainfully employed fulltime between $40,000 and $60,000 No Yes no no no no none of the above from your ostomy retailer yes, but not to my satisfaction Very important Satisfied Very important Very important Neither important or unimportant Important yes, within the past 6 months 1960 50

9/20/07 colostomy stoma colostomy stoma other permanent expected (I knew in advance) 4.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well No Yes Female No No gainfully employed fulltime between $20,000 and $40,000 No No no no no no none of the above from your ostomy retailer magazines or other literature the internet yes, but not to my satisfaction Important Satisfied Neither important or unimportant Important Important Important yes, within the past 6 months 1946 64

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 12.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well No No Female No No retired, but not due to health does not apply Yes Yes no yes yes no magazines or other literature yes Very important Satisfied Important Important Important Important no 1930 80

9/21/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is poor Does not affect my life at all Yes, quite well Yes Yes Female No Does not apply other does not apply No Yes no no no no none of the above your doctor’s nurse the internet yes, but not to my satisfaction Important Satisfied Neither important or unimportant Very important Very important Neither important or unimportant yes, within the past 6 months 1940 70

ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 0.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well No Yes Female Yes Does not apply retired, but not due to health does not apply Yes Yes no no yes no yes Very important Satisfied Important Very important Very important Very important no 1938 72

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Female No No gainfully employed fulltime between $20,000 and $40,000 No Yes no no no no none of the above I don’t have a source of ostomy information Very important Do not receive any Very important Important Important Important no 1952 58

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected

I am in very good health Does not affect my life at all Yes, quite well No No Male No No retired, but not due to health does not apply No Yes yes no no no from your ostomy retailer magazines or other literature yes Very important Very satisfied Neither important or unimportant Important Neither important or unimportant Neither important or unimportant no 1933 77

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 10.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Male No No gainfully employed fulltime Between $60,000 and $80,000 No Yes no yes no no magazines or other literature Very important Very satisfied Neither important or unimportant Neither important or unimportant Neither important or unimportant Unimportant no 1954 56

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 28.3 I am in very good health Does not affect my life at all Yes, quite well No No Female No No gainfully employed fulltime between $40,000 and $60,000 No Yes no no no no none of the above from an enterostomal therapist/ostomy nurse the internet Very important Satisfied Neither important or unimportant Very important Neither important or unimportant Very important yes, within the past 6 months 1953 57

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Male Does not apply Does not apply retired, but not due to health between $20,000 and $40,000 No Yes no no yes no from your ostomy retailer yes Important Dissatisfied Important Important Important Very important no 1938 72

9/20/07 multiple multiple other permanent unexpected 0.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, somewhat No Yes Male Does not apply Does not apply retired, but not due to health less than $20,000 Yes Yes no no no no none of the above from an enterostomal therapist/ostomy nurse no Unimportant Neither satisfied or dissatisfied Neither important or unimportant Unimportant Unimportant Neither important or unimportant yes, within the past 6 months 1944 66

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 2.3 I am in very good health Does not affect my life at all Yes, quite well Yes No Male No No retired, but not due to health Between $80,000 and $100,000 No Yes no no no no none of the above from your ostomy retailer yes Important Neither satisfied or dissatisfied Important Important Very important Neither important or unimportant no 1943 67

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 3.3 I am in very good health Has greatly affected my life for the better Yes, quite well No Yes Female No No gainfully employed fulltime Between $80,000 and $100,000 No Yes yes yes yes no magazines or other literature yes Very important Neither satisfied or dissatisfied Very important Very important Very important Very important yes, within the past 6 months 1957 53

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 11.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well No No Female No Yes other does not apply No Yes no yes no no magazines or other literature yes, but not to my satisfaction Very important Satisfied Important Very important Important Important no 1950 60

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 24.3 I am in very good health Has somewhat had a negative effect on my life Yes, quite well No Female No No other does not apply No Yes no no no no none of the above from your ostomy retailer yes Very important Satisfied Very important Very important Very important no 1939 71

9/21/07 colostomy stoma colostomy stoma cancer permanent unexpected 3.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Female Yes No retired, but not due to health does not apply No Yes no no yes no from your ostomy retailer I don’t have a source of ostomy information yes Important Do not receive any Important Very important Important Important yes, but more than 6 months ago 1940 70

9/21/07 ileostomy stoma ileostomy stoma cancer permanent expected (I knew in advance) 6.3 I am in very good health Has somewhat had a positive effect on my life Yes, quite well No Yes Female Does not apply Does not apply retired, but not due to health does not apply No Yes no no no no none of the above I don’t have a source of ostomy information yes, but not to my satisfaction Neither important or unimportant Do not receive any Neither important or unimportant Neither important or unimportant Neither important or unimportant Neither important or unimportant yes, but more than 6 months ago

82

9/21/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Female No No gainfully employed fulltime Between $80,000 and $100,000 No Yes no no yes no from an enterostomal therapist/ostomy nurse yes Very important Very dissatisfied Very important Very important Very important Very important no 1954 56

9/21/07 colostomy stoma colostomy stoma other temporary unexpected 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Female Does not apply Does not apply my illness does not permit work of any type does not apply No Yes yes no no no from your ostomy retailer no Very important Very important Very important Important Important no 1946 64

9/20/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 7.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Female Yes No other does not apply Yes No yes no no no from your ostomy retailer yes Very important Neither satisfied or dissatisfied Important Very important Very important Very important no 1938 72

9/20/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 3.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No No Female Yes No gainfully employed fulltime between $40,000 and $60,000 No Yes yes yes yes no from an enterostomal therapist/ostomy nurse magazines or other literature an ostomy support group yes Very important Neither satisfied or dissatisfied Important Very important Very important Very important no 1954 56

9/21/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 8.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Male Yes No other does not apply No Yes no no no no none of the above from an enterostomal therapist/ostomy nurse yes Very important Satisfied Very important Very important Very important Very important no 1947 63

9/21/07 ileostomy stoma ileostomy stoma other permanent unexpected 2.3 I am in very poor health Has greatly affected my life for the worse Yes, somewhat Yes Yes Male Does not apply Does not apply retired, but not due to health does not apply Yes Yes no no no no none of the above from your ostomy retailer yes Very important Dissatisfied Important Very important Very important Very important yes, within the past 6 months 1941 69

colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 15.3 I am in very good health Has somewhat had a negative effect on my life Yes, quite well No Yes Male Yes Does not apply retired, but not due to health does not apply No Yes no no yes no magazines or other literature yes Very important Very satisfied Neither important or unimportant Very important Neither important or unimportant Very important no 1934 76

9/21/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 27.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Female No No gainfully employed fulltime between $20,000 and $40,000 No Yes no yes no no from your ostomy retailer yes, but not to my satisfaction Important Satisfied Neither important or unimportant Neither important or unimportant Neither important or unimportant Important no 1951 59

9/21/07 colostomy stoma colostomy stoma cancer permanent unexpected 8.3 Overall, my health is good Does not affect my life at all Yes, quite well Yes Yes Female Does not apply Does not apply retired, but not due to health does not apply No Yes no no no yes from your ostomy retailer yes Neither important or unimportant Very satisfied Neither important or unimportant Neither important or unimportant Important Neither important or unimportant no 1935 75

9/21/07 colostomy stoma colostomy stoma chronic bowel disease temporary unexpected 2.3 I am in very good health Has somewhat had a positive effect on my life Yes, somewhat No Yes Male Yes No gainfully employed, but part time less than $20,000 No Yes no no yes no the internet no Very important Satisfied Very important Important Very important yes, within the past 6 months 1954 56

9/21/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 6.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Female Yes No gainfully employed fulltime Between $80,000 and $100,000 No Yes yes yes yes no magazines or other literature yes, but not to my satisfaction Important Satisfied Important Important Neither important or unimportant Important no 1948 62

192 9/21/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 7.3 I am in very good health Has greatly affected my life for the better Yes, quite well No Yes Female Yes Does not apply gainfully employed fulltime less than $20,000 No Yes yes no no no from your ostomy retailer the internet yes Very important Satisfied Important Very important Neither important or unimportant Important yes, within the past 6 months

4

26

193 9/21/07 colostomy stoma colostomy stoma chronic bowel disease permanent unexpected 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No Yes Male Yes No gainfully employed fulltime less than $20,000 No Yes no no no no none of the above I don’t have a source of ostomy information n/a Very important Do not receive any Very important Very important Neither important or unimportant yes, but more than 6 months ago 1951 59
194 9/21/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 22.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well Yes No Male No No retired, but not due to health does not apply No Yes no no yes no magazines or other literature yes Very important Satisfied Important Very important Important Important no 1947 63
195

7

ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No Yes Female No No gainfully employed, but part time less than $20,000 No Yes no yes yes no magazines or other literature the internet yes Very important Satisfied Important Important Important Neither important or unimportant no 1957 53

196 9/21/07 multiple multiple cancer permanent unexpected 3.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, somewhat Yes No Male Does not apply Does not apply my illness does not permit work of any type does not apply No Yes no no yes no from your ostomy retailer from an enterostomal therapist/ostomy nurse your doctor your doctor’s nurse magazines or other literature yes, but not to my satisfaction Important Satisfied Very important Very important Very important Very important yes, within the past 6 months 1932 78
197 9/21/07 urostomy stoma urostomy stoma other permanent expected (I knew in advance) 37.4 I am in very good health Does not affect my life at all Yes, quite well No Female No No gainfully employed fulltime Between $60,000 and $80,000 No Yes no no no no none of the above the internet yes Very important Satisfied Important Important Important Important yes, within the past 6 months 1959 51
198 9/21/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 11.3 Overall, my health is good Does not affect my life at all Yes, quite well No No Female Yes Does not apply my illness does not permit work of any type between $20,000 and $40,000 No Yes no no no no none of the above your doctor I don’t have a source of ostomy information yes Neither important or unimportant Do not receive any Neither important or unimportant Important Important Important no

38

9/21/07 urostomy stoma urostomy stoma cancer permanent unexpected 0.3 Overall, my health is good Has greatly affected my life for the worse Yes, somewhat Yes Yes Male Yes Does not apply retired, but not due to health does not apply No Yes no no no no none of the above the internet yes, but not to my satisfaction Very important Very dissatisfied Very important Important Important Neither important or unimportant yes, within the past 6 months 1940 70

200 9/21/07 colostomy stoma colostomy stoma other permanent unexpected 3.3 I am in very good health Has somewhat had a negative effect on my life Yes, somewhat No No Male Yes No retired, but not due to health does not apply Yes Yes no no no no none of the above from an enterostomal therapist/ostomy nurse yes, but not to my satisfaction Very important Dissatisfied Very important Important Unimportant Unimportant no 1945 65

9/21/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 25.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well No Yes Female No No gainfully employed, but part time less than $20,000 No Yes yes no no no from your ostomy retailer an ostomy support group yes Important Satisfied Important Very important Very important Important no 1947 63

9/21/07 ileostomy stoma ileostomy stoma cancer permanent unexpected 5.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Male Yes Yes gainfully employed, but part time between $20,000 and $40,000 No Yes no no no no none of the above from an enterostomal therapist/ostomy nurse yes, but not to my satisfaction Very important Satisfied Very important Very important Very important Very important no 1968 42

9/21/07

I’m not certain what it is cancer permanent expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Female Yes Does not apply my illness does not permit work of any type does not apply No Yes no no no no none of the above magazines or other literature yes Very important Dissatisfied Important Very important Important Neither important or unimportant no 1954 56

9/21/07 ileostomy stoma ileostomy stoma cancer permanent unexpected 2.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Female Does not apply Does not apply retired, but not due to health does not apply No Yes no no no no none of the above from your ostomy retailer Very important Satisfied Important Very important Important Important no 1943 67

9/21/07 colostomy stoma colostomy stoma chronic bowel disease permanent expected (I knew in advance) 0.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, somewhat Yes Yes Female Yes Does not apply my illness does not permit work of any type does not apply Yes Yes no no yes no I don’t have a source of ostomy information no Very important Do not receive any Very important Very important Very important Very important no 1946 64

9/21/07 ileostomy stoma ileostomy stoma other permanent expected (I knew in advance) 9.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No Yes Female Does not apply Does not apply other does not apply Yes Yes no no no no none of the above I don’t have a source of ostomy information yes Important Do not receive any Neither important or unimportant Neither important or unimportant Important Neither important or unimportant no 1947 63

9/21/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 11.3 I am in very good health Has somewhat had a positive effect on my life Yes, quite well No Yes Male No No retired, but not due to health does not apply No Yes yes no no no from your ostomy retailer yes Important Satisfied Unimportant Important Unimportant Neither important or unimportant no 1932 78

9/21/07 colostomy stoma colostomy stoma cancer permanent unexpected 11.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Female Yes Yes other does not apply No Yes no no no no none of the above the internet no Very important Satisfied Very important Very important Important Important yes, within the past 6 months 1963 47

9/21/07 colostomy stoma colostomy stoma chronic bowel disease permanent expected (I knew in advance) 11.3 Overall, my health is good Has greatly affected my life for the worse Yes, somewhat No No Male Yes No my illness does not permit work of any type less than $20,000 No Yes no no no no none of the above magazines or other literature no Important Very satisfied Important Very important Important Important no 1951 59

9/21/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well Yes Yes Male Yes No other Between $60,000 and $80,000 No Yes no no no no none of the above the internet yes, but not to my satisfaction Important Satisfied Neither important or unimportant Important Neither important or unimportant Neither important or unimportant yes, within the past 6 months 1947 63

9/21/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 2.3 I am in very good health Does not affect my life at all Yes, quite well No No Male No Does not apply retired, but not due to health does not apply No Yes yes yes no no magazines or other literature an ostomy support group yes, but not to my satisfaction Important Very satisfied Important Very important Neither important or unimportant Important no 1929 81

9/21/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No Yes Male Yes No gainfully employed, but part time greater than $100,000 No Yes no no yes no from your ostomy retailer the internet no Important Neither satisfied or dissatisfied Neither important or unimportant Important Neither important or unimportant Important yes, within the past 6 months 1950 60

9/21/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 32.4 I am in very good health Has greatly affected my life for the better Yes, quite well No Yes Female No No retired, but not due to health between $40,000 and $60,000 No no no yes no I don’t have a source of ostomy information yes Very important Do not receive any Very important Very important Very important Very important no 1950 60

9/21/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, somewhat No Yes Female Yes No retired, but not due to health does not apply No Yes yes yes yes no from an enterostomal therapist/ostomy nurse no Very important Satisfied Important Very important Neither important or unimportant Very important no 1930 80

colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) Overall, my health is poor Has greatly affected my life for the better Yes, quite well Yes Yes Female No Does not apply retired, but not due to health does not apply No Yes no no no no none of the above from your ostomy retailer yes Neither important or unimportant Very satisfied Neither important or unimportant Important Very important no 1928 82

9/21/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No Yes Female No No gainfully employed fulltime between $40,000 and $60,000 No Yes no yes yes yes from your ostomy retailer magazines or other literature the internet yes Very important Satisfied Very important Neither important or unimportant Neither important or unimportant Important yes, within the past 6 months

41

9/21/07 colostomy stoma colostomy stoma cancer permanent unexpected 9.3 I am in very good health Has somewhat had a positive effect on my life Yes, quite well No Yes Male Does not apply Yes retired, but not due to health does not apply No Yes no no no yes magazines or other literature yes Important Satisfied Neither important or unimportant Important Important Neither important or unimportant no 1926 84

9/21/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 21.3 Overall, my health is poor Has greatly affected my life for the better Yes, somewhat Yes Yes Male Does not apply No my illness does not permit work of any type does not apply Yes No no no yes no from an enterostomal therapist/ostomy nurse your doctor magazines or other literature the internet no Very important Dissatisfied Very important Neither important or unimportant Important Important yes, within the past 6 months 1944 66

9/21/07 urostomy stoma urostomy stoma cancer permanent unexpected 3.3 Overall, my health is good Yes, somewhat No Yes Female Does not apply Does not apply other does not apply Yes Yes no no no no none of the above I don’t have a source of ostomy information n/a Important Do not receive any Important Neither important or unimportant Important Neither important or unimportant no 1948 62

9/21/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No Yes Male Yes No gainfully employed fulltime greater than $100,000 No Yes no yes yes no the internet no Important Neither satisfied or dissatisfied Neither important or unimportant Important Unimportant Neither important or unimportant yes, within the past 6 months 1942 68

colostomy stoma colostomy stoma cancer permanent unexpected 6.3 I am in very good health Has greatly affected my life for the better Yes, quite well No Yes Female No No gainfully employed fulltime less than $20,000 No Yes no no no no none of the above magazines or other literature yes, but not to my satisfaction Very important Satisfied Important Very important Very important Important no

55

9/21/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 5.3 Overall, my health is good Does not affect my life at all Yes, quite well No Yes Female No No gainfully employed fulltime between $20,000 and $40,000 No Yes no no no no none of the above I don’t have a source of ostomy information yes Important Do not receive any Very important Very important Very important Very important no 1961 49

9/21/07 ileostomy stoma ileostomy stoma other permanent unexpected 13.3 I am in very good health Has greatly affected my life for the better Yes, quite well No Yes Male No No gainfully employed fulltime between $20,000 and $40,000 No Yes no no no no none of the above from an enterostomal therapist/ostomy nurse the internet yes Neither important or unimportant Satisfied Neither important or unimportant Neither important or unimportant Important Neither important or unimportant yes, within the past 6 months 1947 63

2/21/07 colostomy stoma colostomy stoma cancer temporary expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Male Does not apply Does not apply retired, but not due to health does not apply No Yes no no yes no magazines or other literature yes Very important Satisfied Neither important or unimportant Important Neither important or unimportant Important no 1936 74

9/21/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 4.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Male No No retired, but not due to health does not apply No Yes no no yes no the internet yes, but not to my satisfaction Important Neither satisfied or dissatisfied Very important Very important Important Very important yes, within the past 6 months 1939 71

9/21/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 0.3 I am in very good health Does not affect my life at all Yes, quite well No Yes Female No No gainfully employed, but part time less than $20,000 No Yes yes no no no from your ostomy retailer yes Very important Satisfied Important Important Neither important or unimportant Important no 1929 81

9/21/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Overall, my health is good Does not affect my life at all Yes, quite well No No Female No No gainfully employed, but part time Between $60,000 and $80,000 No Yes yes yes yes no magazines or other literature an ostomy support group Very important Very satisfied Very important Neither important or unimportant Very important Very important no 1946 64

9/21/07 colostomy stoma colostomy stoma cancer permanent unexpected 5.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No Yes Female Does not apply Does not apply retired, but not due to health does not apply No No no no no no none of the above I don’t have a source of ostomy information n/a Very important Do not receive any Important Very important Important Very important no 1941 69

9/22/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 37.4 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Male Yes No retired, but not due to health between $20,000 and $40,000 No Yes yes no no no the internet no Important Satisfied Very important Very important Neither important or unimportant Important yes, within the past 6 months 1940 70

9/21/07 colostomy stoma colostomy stoma other permanent unexpected 14.3 I am in very good health Has greatly affected my life for the worse Yes, quite well No No Male No No gainfully employed fulltime between $20,000 and $40,000 No Yes no no no no none of the above magazines or other literature I don’t have a source of ostomy information no Very important Do not receive any Important Important Important Important no 1975 35

9/21/07 colostomy stoma colostomy stoma chronic bowel disease permanent unexpected 6.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No Yes Female Does not apply Does not apply retired, but not due to health does not apply No Yes no no no no none of the above from your ostomy retailer yes Important Satisfied Neither important or unimportant Very important Very important Important no

88

9/21/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 6.3 Overall, my health is good Does not affect my life at all Yes, quite well No Yes Male Does not apply Does not apply other does not apply No Yes no no yes no the internet yes Neither important or unimportant Neither satisfied or dissatisfied Neither important or unimportant Important Neither important or unimportant Important yes, within the past 6 months 1935 75

9/21/07 ileostomy stoma ileostomy stoma cancer permanent expected (I knew in advance)

Overall, my health is poor Has somewhat had a negative effect on my life No Yes Male No No retired, but not due to health between $20,000 and $40,000 Yes Yes no no no no none of the above from an enterostomal therapist/ostomy nurse no Important Satisfied Very important Very important Very important Very important no 1935 75

9/22/07 ileostomy stoma ileostomy stoma other permanent unexpected 2.3 Overall, my health is good Has greatly affected my life for the worse Not at all No Yes Male Does not apply Does not apply other does not apply No Yes no no no no none of the above yes Very important Dissatisfied Unimportant Unimportant Neither important or unimportant Neither important or unimportant no 1958 52

9/22/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Female No No gainfully employed fulltime between $40,000 and $60,000 No Yes no no no no none of the above I don’t have a source of ostomy information yes Very important Do not receive any Important Very important Very important Important no 1963 47

9/22/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 11.3 Overall, my health is good Does not affect my life at all Yes, quite well No Yes Male Does not apply Does not apply retired, but not due to health does not apply No Yes no no yes no from your ostomy retailer Neither important or unimportant Neither satisfied or dissatisfied Important Neither important or unimportant Neither important or unimportant no 1936 74

9/22/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 32.4 I am in very poor health Has somewhat had a negative effect on my life Yes, somewhat No No Female Yes No retired, but not due to health does not apply No Yes no no yes no from an enterostomal therapist/ostomy nurse an ostomy support group no Very important Neither satisfied or dissatisfied Important Unimportant Very important Neither important or unimportant no 1944 66

9/22/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 11.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No No Male Yes Yes gainfully employed, but part time less than $20,000 No Yes no no no no none of the above your doctor Neither important or unimportant Neither satisfied or dissatisfied Neither important or unimportant Unimportant Unimportant Neither important or unimportant no 1943 67

9/22/07 colostomy stoma colostomy stoma chronic bowel disease temporary unexpected 0.3 Overall, my health is good Has greatly affected my life for the worse Yes, somewhat No No Female Yes No gainfully employed fulltime greater than $100,000 No Yes yes yes yes no from your ostomy retailer magazines or other literature an ostomy support group the internet yes Very important Neither satisfied or dissatisfied Very important Very important Very important Very important yes, within the past 6 months 1947 63

9/22/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 13.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well No Yes Female Yes No gainfully employed fulltime between $20,000 and $40,000 No Yes no no yes no from your ostomy retailer yes Important Satisfied Neither important or unimportant Neither important or unimportant Important Neither important or unimportant no 1955 55

9/22/07 colostomy stoma colostomy stoma chronic bowel disease temporary unexpected 0.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Male Does not apply Does not apply my illness does not permit work of any type does not apply Yes No no no no no none of the above the internet yes, but not to my satisfaction Very important Satisfied Neither important or unimportant Very important Very important Very important yes, within the past 6 months 1954 56

colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) Overall, my health is poor Has greatly affected my life for the worse Yes, somewhat No Yes Female Does not apply Does not apply unemployed, but not due to illness does not apply Yes Yes yes no yes no an ostomy support group the internet yes Important Neither satisfied or dissatisfied Neither important or unimportant Neither important or unimportant Important Neither important or unimportant yes, within the past 6 months 1954 56

9/22/07 colostomy stoma colostomy stoma cancer permanent unexpected 3.3 I am in very poor health Has greatly affected my life for the worse Yes, somewhat Yes Yes Male Yes Yes my illness does not permit work of any type does not apply Yes Yes no no no no none of the above I don’t have a source of ostomy information n/a Very important Do not receive any Very important Unimportant Neither important or unimportant Unimportant no 1953 57

9/22/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 32.4 I am in very good health Does not affect my life at all Yes, quite well No Yes Female No No gainfully employed fulltime between $40,000 and $60,000 No Yes yes yes yes yes magazines or other literature an ostomy support group yes Very important Very satisfied Neither important or unimportant Neither important or unimportant Very important Neither important or unimportant no 1948 62

9/22/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 11.3 Overall, my health is good Does not affect my life at all Yes, quite well Yes Yes Male No Does not apply retired, but not due to health between $20,000 and $40,000 No Yes no no no no none of the above the internet yes Very important Very satisfied Important Very important Very important Important yes, within the past 6 months 1935 75

ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 4.3 Overall, my health is good Does not affect my life at all Yes, quite well No Yes Male No No gainfully employed fulltime Between $60,000 and $80,000 No Yes no no yes no magazines or other literature yes Very important Dissatisfied Very important Important Very important Important no 1945 65

9/22/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 23.3 Overall, my health is good Has greatly affected my life for the worse Not at all No No Female Yes No gainfully employed, but part time less than $20,000 No Yes no no no no none of the above the internet yes, but not to my satisfaction Very important Satisfied Very important Very important Important Important yes, within the past 6 months 1958 52

ileostomy stoma ileostomy stoma other permanent unexpected 13.3 I am in very good health Has somewhat had a negative effect on my life Yes, somewhat No Yes Male No No gainfully employed, but part time does not apply No Yes no no no no none of the above the internet yes, but not to my satisfaction Very important Satisfied Very important Important Important Important yes, within the past 6 months

30

9/22/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 37.4 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well Yes No Female Yes Yes retired, but not due to health does not apply No Yes yes yes yes no magazines or other literature the internet yes Very important Satisfied Neither important or unimportant Very important Important Important yes, within the past 6 months 1942 68

9/22/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 2.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well No Yes Female Yes No gainfully employed fulltime between $20,000 and $40,000 No Yes no no no no none of the above from your ostomy retailer from an enterostomal therapist/ostomy nurse yes, but not to my satisfaction Very important Satisfied Very important Neither important or unimportant Important Neither important or unimportant no

29

9/22/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 24.3 Overall, my health is good Does not affect my life at all Yes, quite well No No Female No No gainfully employed fulltime between $20,000 and $40,000 No Yes no no no no none of the above the internet yes Neither important or unimportant Satisfied Neither important or unimportant Important Important Important yes, within the past 6 months 1958 52

9/22/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 27.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Female Yes No retired, but not due to health does not apply No Yes no no yes no from your ostomy retailer magazines or other literature yes Important Satisfied Neither important or unimportant Neither important or unimportant Neither important or unimportant Neither important or unimportant no 1938 72

9/22/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 26.3 Overall, my health is good Does not affect my life at all Yes, quite well No No Male No No gainfully employed fulltime Between $80,000 and $100,000 No Yes no no no no none of the above the internet yes, but not to my satisfaction Very important Satisfied Important Neither important or unimportant Neither important or unimportant Neither important or unimportant yes, within the past 6 months 1950 60

9/22/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 12.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Female Yes No gainfully employed fulltime Between $60,000 and $80,000 Yes Yes no no no no none of the above I don’t have a source of ostomy information no Very important Dissatisfied Important Very important Very important Very important no 1955 55

9/22/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 0.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No Yes Male Does not apply No other Between $60,000 and $80,000 No Yes no no no yes from your ostomy retailer your doctor the internet yes Very important Satisfied Important Very important Very important Important yes, but more than 6 months ago 1958 52

9/22/07 colostomy stoma colostomy stoma cancer temporary unexpected 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well Yes No Female Yes Does not apply unemployed, but not due to illness less than $20,000 No Yes no no yes no from your ostomy retailer the internet yes Very important Dissatisfied Important Important Important Important yes, but more than 6 months ago 1955 55

9/22/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 7.3 Overall, my health is good Has somewhat had a negative effect on my life No Yes Male Does not apply Does not apply retired, but not due to health does not apply No Yes yes yes yes yes magazines or other literature an ostomy support group the internet yes, but not to my satisfaction Very important Very satisfied Very important Very important Very important yes, within the past 6 months 1928 82

9/22/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 13.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well No Yes Male Yes No retired, but not due to health does not apply No Yes no no no no none of the above magazines or other literature Very important Neither satisfied or dissatisfied Very important Neither important or unimportant Neither important or unimportant Neither important or unimportant no 1946 64

9/23/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 4.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, somewhat Yes Yes Female No No gainfully employed fulltime between $20,000 and $40,000 No Yes no no yes no from your ostomy retailer from an enterostomal therapist/ostomy nurse your doctor an ostomy support group the internet yes Very important Satisfied Neither important or unimportant Important Important Important yes, within the past 6 months

34

9/23/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 4.3 Overall, my health is good Has greatly affected my life for the better Yes, somewhat No No Female No No

No Yes yes yes no no from an enterostomal therapist/ostomy nurse magazines or other literature Very important Dissatisfied Very important Unimportant Important Important no 1956 54

9/22/07 ileostomy stoma ileostomy stoma cancer permanent expected (I knew in advance) 17.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Female No No retired, but not due to health does not apply Yes Yes no no yes yes from your ostomy retailer your doctor your doctor’s nurse magazines or other literature the internet yes, but not to my satisfaction Important Satisfied Important Very important Very important Very important yes, but more than 6 months ago 1929 81

9/22/07 colostomy stoma colostomy stoma chronic bowel disease temporary unexpected 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Male Yes No other Between $60,000 and $80,000 Yes Yes no no no no none of the above from your ostomy retailer your doctor yes Very important Satisfied Very important Important Important Important no 1959 51

9/23/07 colostomy stoma colostomy stoma cancer expected (I knew in advance) 24.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Female No No retired, but not due to health does not apply No Yes no no yes no from your ostomy retailer yes Unimportant Neither satisfied or dissatisfied Neither important or unimportant Neither important or unimportant Neither important or unimportant Neither important or unimportant no 1926 84

9/22/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 16.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well No Yes Female No No doing volunteer work does not apply No Yes yes yes yes yes magazines or other literature the internet yes Very important Very satisfied Very important Very important Very important Important yes, within the past 6 months 1960 50

9/23/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 0.3 I am in very good health Has greatly affected my life for the worse Yes, somewhat No Yes Male Yes No gainfully employed fulltime Between $80,000 and $100,000 No Yes yes no no no magazines or other literature an ostomy support group Very important Very satisfied Very important Very important Very important Very important no 1946 64

9/23/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 3.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Male Yes Yes gainfully employed, but part time less than $20,000 No Yes no no no no none of the above your doctor yes, but not to my satisfaction Very important Satisfied Very important Very important Very important Very important no 1946 64

9/23/07 colostomy stoma colostomy stoma cancer permanent unexpected 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well Yes Yes Female No No gainfully employed fulltime does not apply No Yes no no yes no the internet yes Very important Satisfied Very important Very important Very important Very important yes, within the past 6 months 1947 63

9/23/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 8.3 Overall, my health is good Does not affect my life at all Yes, quite well Yes No Female No No gainfully employed, but part time does not apply No Yes no no yes no the internet yes, but not to my satisfaction Important Very satisfied Very important Very important Very important Important yes, within the past 6 months 1932 78

9/23/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 19.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Female No No gainfully employed fulltime between $20,000 and $40,000 No No no no no no none of the above from your ostomy retailer no Very important Satisfied Unimportant Important Neither important or unimportant Neither important or unimportant no 1966 44

9/23/07 ileostomy stoma ileostomy stoma other permanent unexpected 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat Yes No Female Yes No gainfully employed fulltime between $20,000 and $40,000 No no no no no none of the above from an enterostomal therapist/ostomy nurse yes Very important Neither satisfied or dissatisfied Important Very important Important no 1948 62

9/23/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected

Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No No Female No No retired, but not due to health does not apply No no no yes no from your ostomy retailer no Very important Satisfied Important Important Very important Important no 1930 80

9/23/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 8.3 Overall, my health is good Does not affect my life at all Yes, quite well No No Male Yes No gainfully employed fulltime between $40,000 and $60,000 No No no yes no no magazines or other literature the internet yes, but not to my satisfaction Very important Neither satisfied or dissatisfied Neither important or unimportant Neither important or unimportant Important Important yes, within the past 6 months 1967 43

9/23/07 I’m not certain what it is I’m not certain what it is chronic bowel disease permanent expected (I knew in advance) 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Male Does not apply No gainfully employed fulltime Between $60,000 and $80,000 No Yes yes yes yes no from your ostomy retailer yes Very important Satisfied Very important Important Important Important no 1961 49

9/23/07 ileostomy stoma ileostomy stoma cancer permanent expected (I knew in advance) 10.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Male Does not apply No retired, but not due to health does not apply No No yes yes yes no from your ostomy retailer magazines or other literature an ostomy support group yes, but not to my satisfaction Neither important or unimportant Satisfied Very important Neither important or unimportant Unimportant Neither important or unimportant no 1937 73

9/23/07 colostomy stoma colostomy stoma cancer permanent unexpected 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat Yes No Male Yes No retired, but not due to health does not apply No No no yes no no magazines or other literature yes, but not to my satisfaction Very important Satisfied Important Very important Important Important no 1928 82

9/23/07 ileostomy stoma ileostomy stoma cancer temporary expected (I knew in advance) 0.3 I am in very good health Has greatly affected my life for the better Yes, quite well Yes Yes Female Yes No unemployed, but not due to illness does not apply No Yes no no no no none of the above from your ostomy retailer yes Very important Neither satisfied or dissatisfied Very important Very important Very important Very important no 1954 56

9/23/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 8.3 I am in very good health Has somewhat had a positive effect on my life Yes, quite well No No Male Yes No gainfully employed fulltime between $40,000 and $60,000 No Yes yes no yes no from your ostomy retailer magazines or other literature Important Satisfied Neither important or unimportant Important Neither important or unimportant Important no 1952 58

9/23/07 ileostomy stoma ileostomy stoma other permanent unexpected 11.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, quite well Yes Yes Female Yes Yes other less than $20,000 No Yes no no yes no from an enterostomal therapist/ostomy nurse your doctor magazines or other literature the internet yes Very important Satisfied Important Important Very important Important yes, within the past 6 months

37

9/23/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 2.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well No No Female No No gainfully employed, but part time between $20,000 and $40,000 No Yes no no yes no the internet yes Very important Satisfied Important Very important Very important Important yes, within the past 6 months 1956 54

ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 2.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, somewhat No Yes Male Yes Yes my illness does not permit work of any type does not apply Yes No no no no no none of the above your doctor no Important Dissatisfied Important Very important Very important Very important no 1941 69

9/24/07 ileostomy stoma ileostomy stoma chronic bowel disease temporary expected (I knew in advance) 24.3 Overall, my health is good Does not affect my life at all Yes, quite well No No Male No No gainfully employed fulltime less than $20,000 No Yes no no no no none of the above I don’t have a source of ostomy information n/a Important Do not receive any Important Important Important Neither important or unimportant no 1958 52

9/24/07 urostomy stoma urostomy stoma other permanent unexpected 0.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, somewhat No No Female No No gainfully employed, but part time does not apply No Yes yes yes yes no from your ostomy retailer from an enterostomal therapist/ostomy nurse your doctor magazines or other literature an ostomy support group the internet yes Very important Satisfied Very important Very important Very important Very important yes, within the past 6 months 1951 59

9/24/07 colostomy stoma colostomy stoma cancer permanent unexpected

Overall, my health is good Has greatly affected my life for the worse Yes, somewhat No No Male Yes No retired, but not due to health does not apply No Yes yes yes yes no from your ostomy retailer from an enterostomal therapist/ostomy nurse magazines or other literature no Important Very satisfied Very unimportant Important Neither important or unimportant Important no 1928 82

9/24/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected

Overall, my health is good Has greatly affected my life for the better Yes, quite well No Yes Female No No gainfully employed fulltime Between $80,000 and $100,000 No Yes no no no no none of the above from your ostomy retailer yes Very important Very satisfied Important Very important Very important Very important no 1950 60

9/24/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 37.4 I am in very good health Has greatly affected my life for the better Yes, quite well No No Male No No gainfully employed fulltime between $20,000 and $40,000 No Yes no no no no none of the above I don’t have a source of ostomy information no Very important Do not receive any Neither important or unimportant Very important Neither important or unimportant Very important no 1940 70

9/24/07 ileostomy stoma ileostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Female No No gainfully employed, but part time does not apply No No no no yes no from your ostomy retailer yes, but not to my satisfaction Very important Dissatisfied Very important Very important Neither important or unimportant Very important no 1940 70

9/24/07 ileostomy stoma ileostomy stoma cancer permanent unexpected 0.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well Yes Yes Male No Yes gainfully employed fulltime between $40,000 and $60,000 No Yes yes no no no from your ostomy retailer the internet no Very important Satisfied Important Important Important Important yes, within the past 6 months 1964 46

9/23/07 ileostomy stoma ileostomy stoma cancer permanent expected (I knew in advance) 0.3 I am in very good health Has somewhat had a positive effect on my life Yes, quite well No Yes Male Yes other does not apply No Yes no no no no none of the above magazines or other literature Important Dissatisfied Neither important or unimportant Important Important Important no 1955 55

urostomy stoma urostomy stoma cancer permanent unexpected 8.3 I am in very good health Has somewhat had a negative effect on my life Yes, quite well No No Male No No retired, but not due to health between $40,000 and $60,000 No Yes no no no no none of the above yes Very important Satisfied Neither important or unimportant Very important Important Important no 1927 83

9/24/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 6.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No Yes Male Yes No gainfully employed fulltime does not apply No Yes no no yes no from an enterostomal therapist/ostomy nurse yes, but not to my satisfaction Important Neither satisfied or dissatisfied Neither important or unimportant Very important Neither important or unimportant Very important no 1942 68

ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 15.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well No No Male No No retired, but not due to health does not apply No Yes no no no no none of the above from your ostomy retailer Important Neither satisfied or dissatisfied Important Very important Very important Very important no 1926 84

9/25/07 ileostomy stoma ileostomy stoma chronic bowel disease temporary unexpected 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well Yes Yes Female Yes No gainfully employed fulltime between $20,000 and $40,000 No Yes no no yes no the internet yes Important Satisfied Neither important or unimportant Important Important Important yes, within the past 6 months 1959 51

9/25/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 13.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Male Does not apply Does not apply retired, but not due to health does not apply No Yes no no no no none of the above from an enterostomal therapist/ostomy nurse Neither important or unimportant Satisfied Neither important or unimportant Neither important or unimportant Neither important or unimportant Neither important or unimportant no 1928 82

9/25/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 8.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Female No No gainfully employed fulltime between $20,000 and $40,000 No Yes no yes yes no from your ostomy retailer magazines or other literature the internet yes, but not to my satisfaction Very important Satisfied Neither important or unimportant Very important Important Important yes, within the past 6 months 1946 64

9/25/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected

Overall, my health is good Does not affect my life at all Yes, quite well No No Female Yes No gainfully employed fulltime between $40,000 and $60,000 No Yes yes no no no from your ostomy retailer the internet no Very important Dissatisfied Important Unimportant Very important Very unimportant yes, within the past 6 months 1946 64

9/25/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 9.3 Overall, my health is good Has greatly affected my life for the better Yes, quite well No Yes Female Yes No retired, but not due to health does not apply Yes Yes no no no no none of the above from your ostomy retailer yes Important Satisfied Important Important Neither important or unimportant Neither important or unimportant no 1938 72

9/25/07 multiple multiple cancer permanent expected (I knew in advance) 0.3 Overall, my health is good Has greatly affected my life for the worse Yes, quite well No Yes Male No No gainfully employed fulltime greater than $100,000 No Yes no no no no none of the above the internet yes, but not to my satisfaction Very important Very satisfied Important Very important Unimportant Very important yes, within the past 6 months 1956 54

9/25/07 urostomy stoma urostomy stoma other permanent unexpected 38.4 Overall, my health is good Has greatly affected my life for the better Yes, quite well No No Female No No gainfully employed, but part time less than $20,000 No Yes no no no no none of the above I don’t have a source of ostomy information no Very important Do not receive any Unimportant Very important Very important Very important no 1951 59

9/25/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 16.3 Overall, my health is poor Yes, quite well Yes Female Yes Yes gainfully employed fulltime No Yes no no yes no from your ostomy retailer Very important no 1942 68

9/25/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Male Yes No gainfully employed, but part time less than $20,000 No Yes yes yes yes no from your ostomy retailer magazines or other literature an ostomy support group the internet yes, but not to my satisfaction Very important Neither satisfied or dissatisfied Important Very important Important Important yes, within the past 6 months 1947 63

9/25/07 colostomy stoma colostomy stoma cancer permanent unexpected 3.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Female Yes No gainfully employed, but part time between $20,000 and $40,000 No No no no yes no from your ostomy retailer yes Very important Satisfied Important Very important Very important Very important no 1950 60

9/25/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 3.3 Overall, my health is poor Does not affect my life at all Yes, quite well Yes Yes Male No Does not apply retired, but not due to health No Yes no no no no none of the above your doctor the internet yes Neither important or unimportant Neither satisfied or dissatisfied Neither important or unimportant Important Neither important or unimportant Important yes, within the past 6 months 1933 77

ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 2.3 I am in very poor health Has somewhat had a negative effect on my life Not at all No No Male Yes Yes unemployed, but not due to illness does not apply No No no no yes no the internet no Unimportant Neither satisfied or dissatisfied Important Important Neither important or unimportant Important yes, within the past 6 months 1957 53

9/26/07 ileostomy stoma ileostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well Yes Yes Female Yes Yes my illness does not permit work of any type does not apply Yes Yes no no yes no from your ostomy retailer from an enterostomal therapist/ostomy nurse the internet yes Important Neither satisfied or dissatisfied Neither important or unimportant Very important Very important Neither important or unimportant yes, within the past 6 months 1944 66

9/26/07 ileostomy stoma ileostomy stoma cancer permanent unexpected 0.3 I am in very good health Has greatly affected my life for the better Yes, quite well Yes Yes Female No No gainfully employed fulltime between $20,000 and $40,000 No Yes no yes yes yes your doctor your doctor’s nurse magazines or other literature the internet yes, but not to my satisfaction Very important Satisfied Very important Very important Very important Very important yes, within the past 6 months 1975 35

multiple multiple cancer permanent expected (I knew in advance) 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat Yes Female Does not apply No gainfully employed, but part time between $20,000 and $40,000 No Yes no no yes no the internet yes Important Neither satisfied or dissatisfied Very important Very important Very important Very important yes, within the past 6 months 1949 61

9/26/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 17.3 Overall, my health is good Does not affect my life at all Yes, quite well No Yes Male No No gainfully employed, but part time No Yes yes yes yes no magazines or other literature an ostomy support group the internet yes Important Satisfied Important Neither important or unimportant Neither important or unimportant yes, within the past 6 months 1944 66

9/25/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 10.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No No Female Does not apply No retired, but not due to health does not apply No Yes no no yes no magazines or other literature the internet no Important Very satisfied Neither important or unimportant Neither important or unimportant Important Neither important or unimportant yes, within the past 6 months 1945 65

9/26/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Male No Yes gainfully employed fulltime Between $80,000 and $100,000 No Yes no no yes no magazines or other literature Very important Very satisfied Neither important or unimportant Important Important Important no 1945 65

9/26/07 urostomy stoma urostomy stoma other permanent

Overall, my health is good Does not affect my life at all Yes, quite well No Yes Male No No other does not apply No Yes no no no no none of the above from your ostomy retailer Neither important or unimportant Very satisfied Neither important or unimportant Important Neither important or unimportant Neither important or unimportant no 1961 49

9/26/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected

Overall, my health is poor Has somewhat had a negative effect on my life Yes, quite well No No Female No No unemployed, but not due to illness between $20,000 and $40,000 No Yes no no no no none of the above I don’t have a source of ostomy information yes Very important Do not receive any Important Important Important Important no 1947 63

ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 21.3 I am in very good health Has greatly affected my life for the better Yes, quite well No No Female No No gainfully employed fulltime between $20,000 and $40,000 No No no no no no none of the above the internet yes Very important Very satisfied Very important Very important Important Important yes, within the past 6 months 1970 40

9/27/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 15.3 I am in very good health Has somewhat had a negative effect on my life Yes, somewhat No No Female Yes No gainfully employed fulltime between $40,000 and $60,000 No Yes no yes yes no magazines or other literature Very important Satisfied Very important Important Very important Neither important or unimportant no 1956 54

9/27/07 colostomy stoma colostomy stoma cancer permanent 3.3 Overall, my health is poor Has somewhat had a positive effect on my life Yes, quite well No Yes Male No No my illness does not permit work of any type between $20,000 and $40,000 No Yes no no yes no magazines or other literature yes Important Very satisfied Important Very important Very important Important no 1959 51

9/27/07 urostomy stoma urostomy stoma cancer permanent unexpected 9.3 I am in very good health Has greatly affected my life for the better Yes, quite well No Yes Male Does not apply Does not apply retired, but not due to health does not apply No Yes yes yes yes no magazines or other literature an ostomy support group the internet yes, but not to my satisfaction Important Satisfied Important Very important Very important Important yes, within the past 6 months 1928 82

9/27/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 7.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, somewhat No Yes Female No No retired, but not due to health does not apply No No no no no no none of the above I don’t have a source of ostomy information no Very important Do not receive any Very important Very important Very important Neither important or unimportant no 1937 73

colostomy stoma colostomy stoma other temporary unexpected 0.3 Overall, my health is poor Has somewhat had a negative effect on my life Not at all No No Female Does not apply Does not apply other does not apply No Yes no no no no none of the above the internet yes, but not to my satisfaction Very important Very dissatisfied Very important Very important Important Important yes, within the past 6 months 1960 50

colostomy stoma colostomy stoma chronic bowel disease permanent unexpected 2.3 Overall, my health is good Does not affect my life at all Yes, quite well No Yes Female No No retired, but not due to health does not apply No Yes no no no no none of the above from your ostomy retailer I don’t have a source of ostomy information yes Important Do not receive any Neither important or unimportant Important Important Very important no 1933 77

9/28/07 urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 12.3 Overall, my health is good Does not affect my life at all Yes, quite well No Yes Male No No retired, but not due to health does not apply No Yes yes yes yes yes from an enterostomal therapist/ostomy nurse magazines or other literature an ostomy support group the internet yes Neither important or unimportant Satisfied Unimportant Neither important or unimportant Unimportant Unimportant yes, within the past 6 months 1934 76

9/27/07 ileostomy stoma ileostomy stoma other permanent expected (I knew in advance)

I am in very good health Has greatly affected my life for the better Yes, quite well No Yes Female No No gainfully employed fulltime Between $80,000 and $100,000 No Yes yes yes no no magazines or other literature yes Important Satisfied Neither important or unimportant Very important Important Important no 1945 65

9/28/07 ileostomy stoma ileostomy stoma other permanent expected (I knew in advance) 4.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Male Yes No gainfully employed fulltime between $20,000 and $40,000 No Yes no no yes yes magazines or other literature the internet yes, but not to my satisfaction Very important Satisfied Very important Very important Important Important yes, within the past 6 months 1965 45

9/29/07 urostomy stoma urostomy stoma cancer permanent unexpected Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Male No No retired, but not due to health does not apply No Yes no no no no none of the above your doctor yes Neither important or unimportant Satisfied Unimportant Important no 1933 77

9/29/07 colostomy stoma colostomy stoma chronic bowel disease permanent expected (I knew in advance) Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Male No No gainfully employed fulltime between $40,000 and $60,000 No Yes no no no no none of the above I don’t have a source of ostomy information yes Very important Do not receive any Important Very important Important no 1950 60

9/29/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) Overall, my health is good Does not affect my life at all Yes, quite well Yes Yes Female No No gainfully employed fulltime between $40,000 and $60,000 No Yes no no no no none of the above your doctor no Very important Very satisfied Neither important or unimportant Very important Very important Very important no 1948 62

9/30/07 colostomy stoma colostomy stoma chronic bowel disease temporary unexpected 2.3 Overall, my health is poor Does not affect my life at all Yes, quite well No Yes Male No Does not apply my illness does not permit work of any type does not apply Yes Yes no no no no none of the above I don’t have a source of ostomy information n/a Very important Do not receive any Very important Very important Very important Very important no 1946 64

ileostomy stoma ileostomy stoma other permanent unexpected 0.3 I am in very poor health Has somewhat had a negative effect on my life Yes, somewhat No No Male Does not apply Does not apply my illness does not permit work of any type does not apply No No no no yes no from your ostomy retailer from an enterostomal therapist/ostomy nurse the internet yes Very important Very satisfied Important Very important Important Neither important or unimportant yes, within the past 6 months 1952 58

9/30/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 37.4 Overall, my health is good Has greatly affected my life for the better Yes, quite well No No Female No No gainfully employed fulltime between $40,000 and $60,000 No Yes no no yes no I don’t have a source of ostomy information n/a Very important Do not receive any Important Very important Important Important no 1941 69

9/30/07 ileostomy stoma ileostomy stoma cancer permanent unexpected Overall, my health is poor Has greatly affected my life for the worse Yes, somewhat Yes Yes Male Yes Yes my illness does not permit work of any type between $40,000 and $60,000 Yes Yes no no no no none of the above I don’t have a source of ostomy information yes, but not to my satisfaction Very important Do not receive any Very important Very important Important Very important no 1947 63

9/30/07 multiple multiple cancer permanent expected (I knew in advance)

Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well Yes No Male Yes Yes my illness does not permit work of any type does not apply No Yes no no no no none of the above yes Important Satisfied Neither important or unimportant Important Neither important or unimportant Neither important or unimportant no 1953 57

9/30/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 6.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No No Female No No gainfully employed fulltime between $20,000 and $40,000 No Yes yes no no no an ostomy support group yes, but not to my satisfaction Very important Satisfied Important Very important Very important Very important no 1956 54

9/30/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No Yes Male No No gainfully employed fulltime greater than $100,000 No Yes no no yes no from your ostomy retailer the internet yes Important Neither satisfied or dissatisfied Neither important or unimportant Important Neither important or unimportant Important yes, within the past 6 months 1953 57

ileostomy stoma ileostomy stoma chronic bowel disease temporary expected (I knew in advance) Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No Yes Male Does not apply Does not apply retired, but not due to health does not apply No Yes no no no no none of the above yes, but not to my satisfaction Very important Satisfied Important Important Important Important no 1949 61

9/31/2007 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Female No No gainfully employed fulltime between $20,000 and $40,000 No Yes no no yes no from your ostomy retailer the internet no Very important Neither satisfied or dissatisfied Important Very important Important Important yes, within the past 6 months 1950 60

urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Male Yes Does not apply retired, but not due to health does not apply Yes No no no no no none of the above I don’t have a source of ostomy information no Very important Do not receive any Very important Very important Very important Very important no 1928 82

ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 61.5 Overall, my health is poor Has somewhat had a positive effect on my life Yes, quite well Yes No Male No No my illness does not permit work of any type less than $20,000 No Yes no no no no none of the above I don’t have a source of ostomy information Important Do not receive any Neither important or unimportant Neither important or unimportant Neither important or unimportant Neither important or unimportant no 1927 83

colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, somewhat Yes Yes Female No Does not apply retired, but not due to health does not apply No Yes no no yes no from your ostomy retailer magazines or other literature the internet yes Very important Satisfied Neither important or unimportant Very important Important Important yes, within the past 6 months 1939 71

10/2/07 ileostomy stoma ileostomy stoma cancer permanent expected (I knew in advance) 27.4 I am in very good health Has greatly affected my life for the worse Yes, quite well No Female No No gainfully employed fulltime between $20,000 and $40,000 No Yes yes yes no no magazines or other literature an ostomy support group yes Very important Satisfied Very unimportant Very important Very important Very important no 1938 72

10/2/07 colostomy stoma colostomy stoma cancer permanent unexpected 2.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well Yes Yes Male Yes No gainfully employed fulltime Between $80,000 and $100,000 No Yes no no no no none of the above from your ostomy retailer yes, but not to my satisfaction Very important Neither satisfied or dissatisfied Very important Very important Very important Neither important or unimportant no 1956 54

10/2/07 ileostomy stoma ileostomy stoma chronic bowel disease temporary unexpected 2.3 Overall, my health is good Has greatly affected my life for the worse Yes, somewhat Yes Yes Female Yes No gainfully employed fulltime between $40,000 and $60,000 No Yes yes yes no no the internet I don’t have a source of ostomy information no Very important Do not receive any Very important Very important Neither important or unimportant Neither important or unimportant yes, within the past 6 months 1942 68

10/2/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected

I am in very good health Has somewhat had a negative effect on my life Yes, quite well No No Female No Does not apply gainfully employed fulltime Between $60,000 and $80,000 No Yes no no no no none of the above from your ostomy retailer yes Very important Neither satisfied or dissatisfied Very important Very important Very important Very important no 1964 46

10/2/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Overall, my health is good Has greatly affected my life for the better Yes, quite well No Yes Female No Does not apply gainfully employed fulltime between $20,000 and $40,000 No No no no no no none of the above the internet yes Important Satisfied Important Important Important Important yes, within the past 6 months 1962 48

colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 3.3 Overall, my health is good Does not affect my life at all Yes, quite well Yes Yes Female No No gainfully employed fulltime Between $80,000 and $100,000 No Yes no no no no none of the above the internet yes, but not to my satisfaction Very important Satisfied Neither important or unimportant Important Very important Important yes, within the past 6 months 1963 47

10/3/07 multiple multiple other permanent expected (I knew in advance) 6.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No Yes Female No Does not apply unemployed, but not due to illness does not apply No Yes no yes yes yes magazines or other literature no Important Very satisfied Important Very important Very important Very important no 1954 56

colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 2.3 Overall, my health is poor Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Male Yes Does not apply my illness does not permit work of any type does not apply No Yes no yes no no from your ostomy retailer yes, but not to my satisfaction Very important Neither satisfied or dissatisfied Very important Important Very important Very important no 1961 49

colostomy stoma colostomy stoma other temporary unexpected 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Male Yes No gainfully employed fulltime does not apply No Yes no no no no none of the above from your ostomy retailer magazines or other literature the internet yes, but not to my satisfaction Important Neither satisfied or dissatisfied Important Very important Very important Important yes, within the past 6 months 1948 62

colostomy stoma colostomy stoma cancer permanent unexpected 2.3 I am in very good health Has somewhat had a negative effect on my life Yes, somewhat No Yes Male No gainfully employed fulltime greater than $100,000 Yes Yes no no no no your doctor’s nurse magazines or other literature the internet Important Satisfied Very important yes, within the past 6 months 1957 53

ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 26.4 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No Yes Female No No retired, but not due to health does not apply Yes Yes no no no no none of the above the internet yes Important Satisfied Important Neither important or unimportant Important Important yes, within the past 6 months 1938 72

10/8/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Overall, my health is good Has greatly affected my life for the better Yes, quite well No No Female No No gainfully employed fulltime between $20,000 and $40,000 No Yes no no no no none of the above from your ostomy retailer the internet yes Important Satisfied Neither important or unimportant Neither important or unimportant Important Neither important or unimportant yes, within the past 6 months 1967 43

ileostomy stoma ileostomy stoma cancer permanent expected (I knew in advance) 0.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No Yes Male No Does not apply retired, but not due to health between $20,000 and $40,000 Yes No no no yes no from your ostomy retailer magazines or other literature the internet yes, but not to my satisfaction Very important Satisfied Neither important or unimportant Important Important Neither important or unimportant yes, within the past 6 months 1932 78

colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 12.4 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well No No Female No No retired, but not due to health does not apply No Yes yes yes yes no an ostomy support group no Very important Very satisfied Important Important Very important Very important no 1931 79

ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 13.4 I am in very good health Has somewhat had a positive effect on my life Yes, quite well No No Female No No gainfully employed, but part time less than $20,000 No Yes no no no no none of the above the internet Very important Neither satisfied or dissatisfied Important Neither important or unimportant Important Important yes, within the past 6 months 1953 57

10/13/07 colostomy stoma colostomy stoma other permanent unexpected 4.3 Overall, my health is poor Has greatly affected my life for the worse Yes, quite well No Yes Female No No retired, but not due to health does not apply Yes Yes no no no no none of the above no Very important Neither satisfied or dissatisfied Very important Very important Very important Important no

85

ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well No Yes Female Does not apply Does not apply gainfully employed fulltime between $20,000 and $40,000 No Yes no no yes no from your ostomy retailer Very important Neither satisfied or dissatisfied Important Very important Very important Very important no 1955 55

10/13/07 ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance) 5.3 Overall, my health is good Has somewhat had a negative effect on my life Yes, somewhat No No Male Yes No gainfully employed fulltime Between $80,000 and $100,000 No Yes no no yes no none of the above from your ostomy retailer Very important Satisfied Important Important Very important Very important no 1947 63

colostomy stoma colostomy stoma other temporary expected (I knew in advance) 2.3 Overall, my health is good Has somewhat had a positive effect on my life Yes, quite well Yes Yes Male Yes No my illness does not permit work of any type between $20,000 and $40,000 No Yes yes no no no an ostomy support group yes Unimportant Neither satisfied or dissatisfied Important Important Neither important or unimportant Neither important or unimportant no 1951 59

colostomy stoma colostomy stoma chronic bowel disease permanent unexpected

Overall, my health is good Does not affect my life at all Yes, quite well No No Male Yes Yes gainfully employed fulltime between $20,000 and $40,000 No No no no no no none of the above the internet no Important Neither satisfied or dissatisfied

Neither important or unimportant Neither important or unimportant Neither important or unimportant yes, within the past 6 months 1956 54

urostomy stoma urostomy stoma cancer permanent expected (I knew in advance) 8.4 I am in very good health Has somewhat had a negative effect on my life Yes, quite well No Yes Male Yes Yes unemployed, but not due to illness does not apply No Yes no no no no none of the above from your ostomy retailer I don’t have a source of ostomy information no Very important Do not receive any Important Important Important Important no 1944 66

multiple multiple cancer permanent 4.4 Overall, my health is good Has somewhat had a negative effect on my life Yes, quite well Yes Yes Male Yes Yes my illness does not permit work of any type does not apply No Yes no no no yes from your ostomy retailer an ostomy support group yes, but not to my satisfaction Unimportant Satisfied Neither important or unimportant Very important Important Neither important or unimportant no 1953 57

ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Overall, my health is poor Has somewhat had a negative effect on my life Yes, quite well No Yes Male No No retired, but not due to health does not apply No Yes no no no no none of the above I don’t have a source of ostomy information Important Do not receive any Neither important or unimportant Important Neither important or unimportant Neither important or unimportant no 1943 67

colostomy stoma colostomy stoma other permanent unexpected 3.4 Overall, my health is good Has greatly affected my life for the worse Yes, somewhat No Yes Female Does not apply Does not apply retired, but not due to health does not apply Yes Yes no no no no none of the above I don’t have a source of ostomy information yes Very important Do not receive any Neither important or unimportant Important Neither important or unimportant Neither important or unimportant no

90

11/1/07 colostomy stoma colostomy stoma cancer permanent expected (I knew in advance)

Overall, my health is good Has greatly affected my life for the worse Yes, somewhat No Yes Female No No retired, but not due to health does not apply No Yes no no no no none of the above I don’t have a source of ostomy information no Very important Do not receive any Very important Very important Very important Important no 1962 48

ileostomy stoma ileostomy stoma chronic bowel disease permanent expected (I knew in advance)

Overall, my health is good Has greatly affected my life for the better Yes, quite well No No Female No No retired, but not due to health does not apply No Yes yes yes yes yes magazines or other literature an ostomy support group the internet yes Important Very satisfied Neither important or unimportant Neither important or unimportant Neither important or unimportant Unimportant yes, within the past 6 months 1943 67

colostomy stoma colostomy stoma cancer permanent expected (I knew in advance) 0.4 I am in very good health Has somewhat had a negative effect on my life Yes, somewhat Yes Yes Male No No gainfully employed, but part time Between $60,000 and $80,000 Yes Yes no no no no none of the above I don’t have a source of ostomy information n/a Very important Do not receive any Neither important or unimportant Very important Very important Neither important or unimportant no 1936 74

ileostomy stoma ileostomy stoma chronic bowel disease permanent unexpected 2.4 Overall, my health is good Has somewhat had a positive effect on my life Yes, somewhat No Yes Male Yes No gainfully employed fulltime Between $60,000 and $80,000 No No no no no no none of the above from your ostomy retailer yes, but not to my satisfaction Very important Satisfied Neither important or unimportant Very important Important Important no 1951 59

q2	q3_1	q3_2	q3_3	q3_4	q3_5	q3 (comb)	q6	q7	q8	q9	q10	q11	q12	q14	q15	q16	q	17	q	18	q19	q22_1	q22_2	q22_3	q22_4	q22_5	q	23	q23_2	q23_3	q23_4	q23_5	q23_6	q23_7	q23_8	q	24	q	25	q		26	q	27	q	28	q		29	q30	q31	q		32	Age
																														9/22/07																																																																																																																																																																																																																																																																																		colostomy stoma																																																																																																																																																																																																																																		expected (I knew in advance)																																																																											I am in very good health																																																																			Does not affect my life at all																																																																																																																																																																																																																																																								Yes, quite well																																												gainfully employed, but part time								between $20,000 and $				40																																																																																																																																																																																																																																																																																																																																																																																																																																																											yes																																																																																													magazines or other literature																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																													Very important																																																													Very satisfied																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																																					Important																																																																																																																																														yes, within the past 6 months					19					46
																																																																																																																																																																																																																																																																																																																																																																	ileostomy stoma																																																															Has greatly affected my life for the better																																																																																																																	gainfully employed fulltime																																																								between $20,000 and $40,000																																																																																																																																			the internet																																																																			Neither satisfied or dissatisfied																																																																																																																																																																																																																																																																																																																																																																				Neither important or unimportant		19										53
																																																																					urostomy stoma									7.3																																																																																																																																																																																																																																													Overall, my health is good																																																																																																																	retired, but not due to health																																																																																																																																																																														does not apply																																																																																																																																																																																					none of the above																																																																																																																													from your ostomy retailer																yes, but more than 6 months ago		1	94
																			9/23/07			Between $							80	19							76			34
																																																																																																																																					unexpected																																																																																																																																																										Has somewhat had a negative effect on my life																																																																																																										Yes, somewhat																																																																																																																																																																					Does not apply															unemployed, but not due to illness																																																																I don’t have a source of ostomy information																							n/a																																																										Do not receive any																																																										Unimportant	19						78
																																																																																																																																																						9/20/07							between $40,000 and $															60	1		93
												5.3																																						less than $20,000														Very unimportant										Very dissatisfied	19		37							73
																												between $40,000 and $60,000																																																																																																																																													Satisfied		19						51												59
	2															8.3						193										72
																																															Has somewhat had a positive effect on my life																																			my illness does not permit work of any type																																																																					yes, but not to my satisfaction	95
																																			an ostomy support group	1	91
						9/30/07							I am in very poor health			1	96							48
		39.4				194
	18.3		195
19														69
																																					from an enterostomal therapist/ostomy nurse												1954													56
	28.3																	Between $60,000 and $80,000															1946
19								75
4	4.4													Between $80,000 and $100,000										1940											70
21				196								49
							24.3																																											Overall, my health is poor						1949
		1962
				1945
			10.3																								Dissatisfied								1943									67
																												Has greatly affected my life for the worse							Not at all
											1956
																									multiple				1967
2/20/07																										your doctor				1	92								83
			9/29/07							9.3		192			85
33	3/16/07													greater than $100,000											your doctor’s nurse		19								52							58
												1941
					16.3
	1	97
			19.3
								1951
45.4										1948
				doing volunteer work
										11.3							1933								77
19							47																				63
			1952
	1924			86
						1936								74
				32.4					1942
19					50
		1927
4	8.4
1	98
								1944
				1937
		29.3				1960
30.3							1958
								1957
			21.3
												1950
197
					12.3
		1965
										1939
																	1947
		14.3				1961
		1970
	25.3
	1968
																																																		9/21/07
		79					1929						81
								82						1934
			1938
					84						1963
	87			17.3
	88
						1935
	90
					1930
			1964
99
101					9/19/07								13.3					1926
102					1932
103
104
105
107		4	0.4
108										1953
109
110
111
112
113
114
115
116
117
118
119
120
121
122			1966
123
124
125
126		1931
127			26.3
128
129				27.3	1923
130
131
132
133	31.3
134
135
136			1975
137	5	3.4
138
139		22.3
140
141
142
143
145				15.3
146
147	3/17/07
148
149
150
151
152
153
154
155
156
157					1959
158
159
160
161
162
163
164
165
166
167
168
169
170						37.4
171
172
173
174
175
176
177
178
179
180								1928
181
182
183
184
185
186
187	3/15/07
188
189
190
191
	198
09/31/	200
1972
199
201
202
203				I’m not certain what it is
204
205
206
207
208
209
210
211
212
213
214
215
216		23.3	1969
217
218
219
220
221		2/21/07						1955
222
223
224
225
226
227	33.4
228
229
230
231	1922
232
233		38.4
234
235
236
237
238
239
240
241
242	3/22/53
243
244
245
246
247
248	1980
249
250	1981
251
252
253
254
255
256
257
258
259	1976
260	student: full time
261
262
263
264
265
266
267
268
269
270
271	57.4
272
273
274
275
276
277
278	1973
279
280									9/24/07
281
282
283	34.4
284	43.4
285
286
287
288
289													9/25/07
290
291
292
293
294
295	29.4
296
297
298
299
300
301
302
303							9/26/07
304
305
306
307
308
309		27.4
310	46.4
311	36.4
312						9/27/07
313
314
315
316
317	2/28/07
318			9/28/07
319
320		26.4
321
322
323
324
325
326
327
328
329	52.4
330
331
332		9/31/2007
333
334	10/1/07
335
336						10/2/07
337
338
339
340	25.4
341	20.4
342		10/3/07
343
344	10/4/07
345	10/6/07
346
347		10/8/07
348		13.4
349	10/9/07
350	10/10/07
351			10/13/07
352	1925
353	10/14/07	24.4
354
355	10/15/07
356	10/16/07	21.4	Does not apply to me because I irrigate my stoma
357	10/22/07
358
359	10/27/07	17.4
360		11/1/07	1920
361	22.4
362	11/3/07	37.5
363	11/10/07
364	11/19/07

&C&A
&RPage &P of &N

©

Lake Forest Graduate School of Management – 2010

April 24, 2010

United Ostomy Network (UON): Meeting the Differentiation Challenge

“If there ever would be a time for us to differentiate ourselves by better using the internet, this is it,” thought April

Flowers, Executive Director of the United Ostomy Network (UON) — a not for profit North American organization that

provides health care information to those that have undergone, or will undergo surgery resulting in the formation of a

temporary or permanent stoma (ostomy).

The directors of the UON are concerned about the possible overlap of efforts with other organizations. They view most of

the available informational websites as being somewhat the same in their offerings. That is, they do not want their

website to be another „me too‟ website, offering the same information available elsewhere on the internet. To move ahead,

they feel that they must differentiate and are willing to make the necessary investments to do so but not without a proper

facts based analysis.

As her chief analyst, Flowers asked you to analyze the results of a just completed survey and to make specific

recommendations to her and the directors on the course of action UON should take.

Mission Statement: UON is a network for those that have undergone a bowel and urinary diversion, their caregivers, and

support groups. Its goal as a nonprofit association is to provide and disseminate health care information that will serve

and benefit those that have undergone a bowel or

urinary diversion.

 UON is committed to the improvement of the quality of life of people who have, or will have, an intestinal or

urinary diversion.

 UON is dedicated to the provision of information, advocacy and service to their members and the

intestinal/urinary diversion community at large.

 It is organized to grow and develop while remaining independent and financially viable.

Background: A stoma is a temporary or permanent surgically created opening of the bowel or urinary tract to the

abdominal surface of the body. Its function is to facilitate the removal of waste (feces or urine) from the body. Those that

undergo stoma surgery may do so to alleviate years of pain and suffering from debilitating intestinal diseases such as

Crohn‟s Disease or Diverticulitis, or to stop the spread of intestinal or bladder cancers. Stoma surgeries are generally

classified into three major types; surgeries of the colon, know as colostomies; surgeries of the ileum, known as

ileostomies, and surgeries of the urinary tract, known as urostomies.

Stoma surgery is a life altering surgery often requiring a lengthy period of coping and adapting to an altered body schema,

altered continence states, and social stigmas. Fortunately, most people who undergo this type of surgery do adapt well,

and go on to live productive quality lives.

Approximately 80,000 ostomy surgeries are performed in the US annually, and while there are no statistics as to the death

rate among ostomates, it is estimated that there may be as many as 800,000 ostomates currently living in the US.

This case was prepared by Professor of Business Management Thomas Nichols. It was written as a basis for class discussion rather than to illustrate effective or

ineffective handling of an administrative situation.

© Lake Forest Graduate School of Management – 2010

Temporary stomas are usually reversed (normal bowel function is returned) within 6 to 12 months after the date of the

original surgery. Not all temporary stomas are reversed. While reversal statistics are sketchy at best, it is estimated that

20 to 33 percent of all surgeries scheduled for reversal are not reversed due to complications.

The situation: United Ostomy Network has taken its website offline while it deliberates how to best differentiate itself

from other not for profit organizations such as the United Ostomy Association of America (UOAA: www.uoaa.org ), and
the International Ostomy Association (IOA: www.ostomyinternational.org/ ). UON would like to increase its use of the
internet to provide quality informational services to those that have undergone ostomy surgery. They would like to model

this extended service, in part, after the format of a popular ostomy website www.c3life.com. However, they believe that
those who would require their service most are those within three years post surgery, but given that population

demographics point to the fact that the ostomy population is an older population they are concerned that internet use may

not be common among an older population
A
. Hence, their first goal is to obtain a demographic profile of the general

ostomy population within the US and Canada. To this end, they have commissioned a survey of the ostomy population.

Secondary to a demographic profile of the general population is to profile where the ostomy population currently gets

health care information.

During a brainstorming session with key health care opinion leaders it was also determined that the UON should provide

stoma management and support services, support services for complications of stoma management such as hernias and

skin irritation or infection, support with ordering stoma management products, counseling in support of stoma

management, and support with health insurance related to the stoma.

Obstacles: No databases of the general population of people that have undergone ostomy surgery exist in the public

domain; therefore the UON has contracted with a North American distributor of ostomy supplies to distribute the survey

to ostomy customers. The survey was included in the customer‟s normal shipment of ostomy products. The 1500 surveys

were randomly distributed with 367 respondents. See Exhibit 1 for the questions listed in the survey. The results are

contained in the Excel file: lfgsm-UON Case 042410.

Regulatory considerations: Because the survey is intended for people with health considerations, it is subject to

regulatory restrictions. The survey is not a clinical investigation as outlined in the Code of Federal Regulations (CFR),

and falls within compliance for “survey procedures where no identifying information will be recorded that can link

subjects to the data, and disclosure of the data could not reasonably place the subjects at risk of civil or criminal liability

or be damaging to the subjects’ financial standing, employability, or reputation.”

The confidentiality of all respondents was assured, and no identifying information that could link the respondent to the

survey was collected.

As a matter of survey record, the survey will ask the respondents to provide the date of the original ostomy surgery. To

further protect the identity of its customers, the distributor requires that the date of original ostomy surgery be recoded in

the database as June 15, of the year of the surgery.

The survey has been constructed, implemented and completed. The data has been returned to the UON for analysis.

The key variables of interest in the survey are

1) type of surgery; colostomy, ileostomy, or urostomy (q3_1, q3_2, q3_3, q3_4, and Q3_5)

2) the reason for the surgery (q4)

3) permanent or temporary stoma (q5)

4) whether the stoma surgery was expected or unexpected (q6)

A
: While demographic information points to an older population, the need for ostomy surgery has no age limit; affecting a range from

infancy to senior citizens.

http://www.uoaa.org/

Home

http://www.c3life.com/

© Lake Forest Graduate School of Management – 2010

5) time in years since initial stoma surgery (q7)

6) current health assessment (q8)

7) the stoma‟s affect on their life (q9)

8) adaptation to living with a stoma (q10)

9) continuation of treatment (q11)

10) spouse/partner/family member involvement (q12)

11) gender (q13)

12) work habits (q14)

13) occupational status (q15)

14) employment status (q16)

15) current annual salary (q17)

16) help with the care and management (q18)

17) well informed (q19)

18) information resources (q22_1, q22_2, q22_3, q22_4, q22_5)

19) sources of information (q23_1 – q23_8)

20) information value_1: importance (q24)

21) information value_2: importance (q25)

22) information value_3: satisfaction (q26)

23) information value_4: importance (q27)

24) information value_5: importance (q28)

25) information value_6: importance (q29)

26) information value_7: importance (q30)

27) online support (q31)

28) year of birth (q32)

© Lake Forest Graduate School of Management – 2010

Analysis Expectations:

The directors of UON feel that the key to their decision making is the demographic profile of the sample, information as

to where the sample currently gets its health care information, information as to the provisions determined by the key

health care opinion leaders, and other recommendations based on the data.

They are expecting the analysis will provide answers to the following questions along with supporting analysis:

1) Does the survey satisfy the goal of obtaining a demographic profile of the general ostomy population within the US and

Canada?

Provide pivot tables and descriptive statistics are required to support the answer. All pivot tables must include n and

percent.

a) what is the gender distribution of the sample?

b) provide descriptive statistics of age of the survey respondent, age by stoma type, and age by gender.

c) provide descriptive statistics of the length of time since their surgery. How many of these are less than three

years post surgery.

d) provide a pivot table of type of stoma by originating diagnosis. Hint: use an Excel function to combine stoma

types (Q3_1 thought Q3_5 ) into a single variable.

e) provide a pivot table of the frequency of permanent and temporary stomas.

f) provide a pivot table of expected and unexpected surgeries.

g) provide a pivot table of the respondents current health status.

h) provide a pivot tables showing Q9 (How much do you think having a stoma affects your life) by Q10 (Have you
adapted to living with a stoma).

2) Where does this sample currently get its health care information?

a) Does the sample consider itself well informed about their stoma? Provide a pivot table of Q19.

b) Where do they currently get their information? Provide pivot tables of Q22_1 through Q22_4.

How many respondents do none of these?

c) What is their primary source of new ostomy information? Provide frequencies of Q23_1 through Q23_8.

3) Key health care opinion leaders in a focus group determined that the UON should provide stoma management and

support services, support services for complications of stoma management such as hernias and skin irritation or infection,

support with ordering stoma management products, counseling in support of stoma management, and support with health

insurance related to the stoma. What information do you have that this should be pursued?

a) Provide a pivot table of Q24 (The very last time you asked a health care professional about the management of

your stoma, did you receive useful information?).

b) Provide a pivot table that cross-tabulates Q25 and Q26 (Many health care organizations provide stoma

management and support services. If an organization provides health care information and support related to

stoma management, how important is this to you? by How satisfied are you with the stoma management and

support information you currently receive?)

c) Provide pivot tables to determine the importance of Q27 through Q30.

d) Provide a pivot table to determine the frequency of those that have sough help via the internet (Q31).

© Lake Forest Graduate School of Management – 2010

Recommendations to the directors of the UON:

Flower and the directors are anxiously awaiting your finding on the demographic profile of the general ostomy population

within the US and Canada, and whether or not you believe they should proceed with their plans to restructure the website,

and if yes, to provide recommendations as how to best do this.

© Lake Forest Graduate School of Management – 2010

Exhibit 1

UON

Survey questions

Q2. What is today’s date?

_____/_____/____

Mon day year

Q3. I have a
____(1) colostomy stoma
____(2) ileostomy stoma
____(3) urostomy stoma
____(4) I am not certain what it is
____(5) I have multiple stomas

Q4 My ostomy surgery is a result of

___(1) Cancer
___(2) Diverticulitis
___(3) Familial polyposis
___(4) Multiple Sclerosis
___(5) Congenital illness

___(6) Crohn’s Disease
___(7) Ulcerative colitis
___(8) Diabetes
___(9) Accident or injury
___(10) Inflammatory Bowel Disease
___(11) Other, please identify___________________

___(12) I don’t know

Note: for the case study, Q4 responses have been combined
Into three categories of originating diagnosis, cancer, chronic bowel
disease, and other.

Q5. My stoma is

___(1) permanent
___(2) temporary

Q6. My ostomy surgery was
___(1) planned
___(2) unexpected

Q7. When did you have your initial ostomy surgery?

______Year

______Month
______Date if known (ex: the 17

th
)

Note: Q7, in the data, presents the time since surgery based upon the response to the question.

Q8. How would you describe your health at present?

___(1) I am in very good health

___(2) overall, my health is good
___(3) I am in fair health
___(4) I am in poor health
___(5) I am in very poor health

© Lake Forest Graduate School of Management – 2010

Q9. How much do you think having a stoma affects your life?

___(1) has greatly affected my life for the better
___(2) has somewhat had a positive effect on my life
___(3) does not effect my life at all

___(4) has somewhat had a negative effect on my life
___(5) has greatly affected my life for the worse

Q10. Have you adapted to living with a stoma.
____(1) not at all
____(2) somewhat
____(3) quite well

Q11. Do you continue to undergo treatment of the disease or injury that caused your ostomy surgery.

____(1) yes
____(2) no

Q12. Did your spouse/partner, or a family member, learn about stoma care with you during your
hospitalization?
____(1) yes
____(2) no

Q13. What is your gender?
___Male

___Female

Q14. Because of your ostomy surgery did you need to change how you go about working (your work
habits)?
___(1) yes
___(2) no
___(3) does not apply

Q15. Because of your ostomy surgery did you need to change occupations?
___(1) yes
___(2) no
___(3) does not apply

Q16. Are you now

____(1) gainfully employed full time

____(2) gainfully employed but part time

____(3) student; full time
____(4) doing volunteer work
____(5) my illness does not permit any type of work
____(6) unemployed, but not due to my illness
____(7) retired, but not because of health
____(8) other, please explain ________

Q17. Is your annual salary, (money generated only from current employment)

___(1) less than $20,000
___(2) between $20,000 and $40,000
___(3) between $40,000 and $60,000
___(4) between $60,000 and $80,000
___(5) between $80,000 and $100,000
___(6) over $100,000

___(7) does not apply

© Lake Forest Graduate School of Management – 2010

Q18. Do you now require help with the care and management of your stoma?

____(1) yes
____(2) no

Q19. Do you consider yourself well informed about your stoma?
____(1) yes
____(2) no

Q22. Do you (check all that apply)

____(1) belong to an ostomy support group
____(2) subscribe to any magazines for ostomates

____(3) read any current ostomy literature
____(4) frequently discuss current ostomy topics
____(5) none of the above

Defined in the data as Q22_1 – Q22_5

Q23. Is your primary source of new ostomy information

____(1) from your ostomy retail supplier

____(2) from an enterostomal therapist
____(3) your doctor
____(4) your doctor’s nurse
____(5) magazines or other literature
____(6) an ostomy support group
____(7) the internet

____(8) I do not have a source of information
____(9) other; please explain________________

Q23_1 – Q23_8
Note: the category other has been removed from the case study
due to non-response in the category.

Q24: The very last time you asked a health care professional about the management of your stoma, did
you receive useful information?

___(1) Yes
___(2) Yes, but not to my satisfaction
___(3) No

___(4) does not apply

Q25. Many health care organizations provide stoma management and support services. If an organization
provides health care information and support related to stoma management, how important is this to
you?

___(1) Very important

___(2) Important
___(3) Neither important or unimportant

___(4) Unimportant
___(5) Very unimportant

Q26: How satisfied are you with the stoma management and support information you currently receive?

___(1) Very satisfied
___(2) Satisfied
___(3) Neither satisfied or dissatisfied
___(4) Dissatisfied
___(5) Very dissatisfied

© Lake Forest Graduate School of Management – 2010

Q27: If a health care organization offered support services for complications of stoma management such

as skin irritation or infection, hernias, etc., how important is this to you?

___(1) Very important

___(2) Important
___(3) Neither important or unimportant
___(4) Unimportant
___(5) Very unimportant

Q28: If a health care organization offered support with ordering stoma management products, that is
selection and ordering, how important is this to you?

___(1) Very important
___(2) Important
___(3) Neither important or unimportant
___(4) Unimportant
___(5) Very unimportant

Q29: If a health care organization offered counseling in support of your stoma management, how
important is this to you?

___(1) Very important
___(2) Important
___(3) Neither important or unimportant

___(4) Unimportant
___(5) Very unimportant

Q30: If a health care organization offered support with health insurance related to your stoma, how
important is this to you?

___(1) Very important

___(2) Important
___(3) Neither important or unimportant

___(4) Unimportant
___(5) Very unimportant

Q31: Have you ever sought online (internet) help or support for issues related to your stoma

management?

___(1) Yes, within the past six months
___(2) Yes, but more than six months ago
___(3) No

Q32: In what year were you born?

_____

© Lake Forest Graduate School of Management – 2010

Statistics:

Identifying the respondent

1: Gender frequency
2: Descriptive statistics of age of respondent
3: Age by gender
4: Surgery resulted in
5: Age by stoma type
6: Type of stoma and originating diagnosis
7: Descriptive statistics of time (years) since surgery
8: Frequency of surgeries performed within three years and beyond three years of date of surgery
9: Frequency of permanent and temporary stomas
10: Frequency of expected vs unexpected surgeries
11: Current health status
12: Frequency of those continuing to undergo treatment for the reason(s) that resulted in surgery
13: Cross-tabulated response.
9: How much do you think having a stoma affects your life x 10: Have you adapted to living with a
stoma.

Information status

14: Do you consider yourself well informed about your stoma? x Do you belong to an ostomy
support group or organization?
15: Do you consider yourself well informed about your stoma? x Do you subscribe to any
magazines for ostomates?
16: Do you consider yourself well informed about your stoma? x Do you read any current ostomy
literature?
17: Do you consider yourself well informed about your stoma? x Do you frequently discuss
current ostomy topics?
18: The very last time you asked a health care professional about the management of your stoma, did you receive
useful information?
19: Q25: Many health care organizations provide stoma management and support services. If an organization
provides health care information and support related to stoma management, how important is this to you? x
Q26:How satisfied are you with the stoma management and support information you currently receive?
20: If a health care organization offered support services for complications of stoma management such as skin
irritation or infection, hernias, etc., how important is this to you?
21: If a health care organization offered support with ordering stoma management products, that is selection and
ordering, how important is this to you?
22: If a health care organization offered counseling in support of your stoma management, how important is this
to you?
23: If a health care organization offered support with health insurance related to your stoma, how important is
this to you?
24: Have you ever sought online (internet) help or support for issues related to your stoma management?
25: Those seeking on-line help by age category
26: Do you now require help with the care and management of your stoma?
27: Did your spouse/partner, or a family member, learn about stoma care with you during your hospitalization?
28: Because of your ostomy surgery did you need to change how you go about working (your work habits)?
29: Because of your ostomy surgery, did you need to change occupations?
30: Employment. Are you now….
31: Is your current annual salary (money generated only from current employment)